How Long Since Your Diagnosis?

PCa diagnosis on 5/9/25 after biopsy. Diagnosed mCSPC on 6/6 after PSMA PET. Other than having to remember to take some new medications, not much is different. (I bought a pill reminder clock because I kept screwing up) 😊

That's about to change when IMRT starts in a couple weeks. Then it will be 5 weeks of daily PITA.

It will have been 4 years this October. The cancer left me paralysed in a hospital bed initially from spinal compression, but I've recovered a significant portion of my mobility and all my quality of life since then. I'm tolerating Orgovyx and Apalutamide well, and they're keeping my stage 4 oligometastatic cancer in full remission. Day to day, I'd say I'm happier than I was before my "incurable" cancer diagnosis, strange as that might sound.

Diagnosis in April, 2023 - localized cancer, Gleason 6. Started with active surveillance, decided on treatment summer of 2024 after an uptick in PSA and some genomic testing. Six months on Orgovyx, wrapped around 28 sessions of EBRT during fall/winter 2024/25. Pretty much past that now, but still working on losing the weight I gained while on Orgovyx.

For my part, I don't think the cancer diagnosis had much of an effect on me. My Dad was diagnosed at about my age and died ten years later of something unrelated, and I have several friends who are cancer survivors. The Orgovyx hit me pretty hard - my "get up and go" "got up and went." Some of that was physical, some of it mental.

Diagnosed in the dying days of 2024. Initial diagnosis was Gleason 8 and first reaction was a deep depression. Things got better after a couple of weeks as I became prosctive on researching treatment options. Had RARP in June. Right now, still dealing with incontinence and ED, but otherwise life is normal.

I was diagnosed in June, 2023. Had RARP in September of 2023. It took about seven and a half months to regain continence fully, but since then I have returned to a normal life.

Diagnosis on Valentine’s Day 2025. I am on x-tandi and Lupron. Results so far: PSA down from 100+ to 2.88 after 5 months. Stay physically active; force myself to do same things I’ve always done; sex is a fond memory. Mood swings, quick temper and hot flashes that I control with Thermella (it works). Frequent light-headedness.

I was diagnosed in 2010. Had surgery and for 3 1/2 years I had no issues at all. I led a normal life, I was running a computer consulting business and was working full-time with almost 100 companies. 3 1/2 years later, when the cancer came back I had seven weeks of radiation. I had the radiation first thing in the morning and then went to clients offices for the rest of the day. Never had any side effects from the radiation. I did have a six month shot of Lupron a couple of months before my radiation started, It caused no side effects.

I’ve had three more reoccurrences and went on ADT in early 2017, been on it since.

You would have a hard time telling I have anything wrong. I have BRCA2 so my cancer will continue to reoccur.

After a PSA of 7.8 and finding mpMRI PIRADS 3,4 and 5 lesions, I was diagnosed in October 2023 with low volume Gleason 3+4 and Decipher score of 0.22, at 67 y/o.

Began active surveillance and started running three 5K’s/week and regular HIIT.

12 month follow up mpMRI only found one lesion and my most recent PSA was 5.6.

My overall fitness has dramatically improved and several chronic health issues have disappeared.

I find I now have extra energy and endurance for many activities that 10-15 years ago would have worn me out.

Just completed a move to a new city and worked almost non-stop remodeling our new house for the last two months….I’ll be 70 y/o next June.

We live with my daughter, son-in-law and two grandchildren and travel to visit our two sons and 12 other grandchildren (combined total) in Idaho and Texas regularly.

I was diagnosed in Dec 2019. Removal Jan 2020. I think its hard to generalized from the year I have spent on this site. I have both incontinence and ED but no other treatments and no physical restrictions. PSA has remained at < .01 . At 73 I live my life normally.

A year and half, Gleason 7 4+3. Had bad mental health for awhile and totally lost appetite. SBRT + ADT that ended. Saw a therapist, joined a support group and started posting here and doing 80% better now. Able to do everything I did before for the most part. Testosterone hasn't reached low normal yet so workouts don't do much besides maintain where I was. Some bone deterioration from ADT. Need Viagra for erections, orgasms are weaker but last longer. Appetite is back and I do have to say it's a lot easier to gain back 40 pounds (20 back so far) than if I had to lose it! PSA is < .1 so that's good too.