How did you feel after pelvic radiation was completed?
I finished up radiation (photon) for endometrial cancer last week at Mayo Clinic. I had 25 sessions of external beam radiation and 2 sessions of internal (brachytherapy) radiation. I had very few side effects during radiation other than frequent urination and occasional diarrhea. Now that I'm finished with radiation and back home I'm having the following: lots of fatigue during the day that comes and goes, pelvic aching ( 3 out of 10 on the pain scale), and urinary tract-like pain on urination (not burning, more pain).
Back to my original question. How did you feel after your pelvic radiation was done? What did you do to help yourself through it? And how long did these symptoms last (the medical staff at Mayo told me 1-2 weeks)?
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That's good news that the Paget's hasn't bothered you and you return for 6 month checkups. You have such an optimistic outlook.
I still have the Paget's. My margins were not clear after wide local excision in 2015 and a biopsy a couple of years ago indicated Paget;s was still present. I have a checkup every 6 months. So far it has not been a bother to me.
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1 ReactionThe itchy bumps seem to be spreading. It's very puzzling. Does the Paget's Disease still affect you? Yes, I read a little about that and it doesn't appear connected.
I did not have the itching bumps as you have. Some years later I was diagnosed with Extra Mammary Paget's Disease, but so far the oncologist has not connected the two.
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1 ReactionThank you, @ejrdevries for responding to my questions. I'm not having too much problem with digestion or bowel problems. Fortunately. Yes, my body was beat up big time like you said so I've been trying to pay attention to what my body tells me. That has meant more time at home and rest and I've been feeling more energy with every day.
I decided I will call my radiation oncologist next week and ask a few questions. One of the questions is about the bumps I have developed on the top of my forearms and my lower legs. These bumps are itchy and not at all in the area where I had radiation which was the pelvis. I've read up on this bit and it could be something called radiation dermatitis. I've been using moisturizing lotion and Benadryl (at night) and that helps. I'm wondering if there is something else I can do and how long this will last. Did you have anything like this?
I do not remember feeling do bad. I did use the BRATT diet for a couple of weeks to quell the colon issues. Banana, Rice, Applesauce, Tea, and Toast. Allow yourself to rest. I had three weeks for that then back to the chemotherapy. You will start feeling better. Remember that your body is really being beat up big time and it will take time to get back to normal.
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