How can a person be diagnosed with Neuropathy if not Diabetic?
I was told that I have Neuropathy in my right ankle and server infection in my left ankle. Now I am understanding that a person must be a diabetic in order to be diagnosed with Neuropathy. Is any of that true?
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@carol1024 Funny you mentioned the nerves and such. If that is the case in 2025. I have had L1-L2-L3-L4 blown in my lower back and C2 in my neck "To date are still herniated" with no surgery in the future. At the ending of 2025 I have in a two week period have had UTI in my kidney and they seen I had a stone in there. I have had an infection in my left ankle that they can't do anything about right now and it has gone from a small hole to the size of my thumb. My right ankle is going through hell due to the doctor telling me that it sounds like Neuropathy but they can not pinpoint it fursure. I have been hospitalized for my kidney twice in the last two weeks and still nothing for both my ankles but guess work. Oww and then that stone they seen in an X-ray wanted to put me even more hell and took a week to pass and I wish that on no one to go through. Yet the pain I am in on a daily basis would put a normal person on their knees and I don't take any medication for any of it. If it doesn't work why take it. I will try the medicine they give me but why again if you are still in pain take a pill that has no effect on you? Just like blood pressure medicine. I am on an average 205 and higher every single day and the medicine they want me to take is either to much or not enough and I at times will either wake up not knowing what happened or I get very sick and then the last thing they found and again in the last two weeks of 2025 was a blood clot in my right leg to which I can not take any blood thinners for due to the fact that my blood pressure is on an average of being 205/155 so I am waiting on them to schedule to receive a stint before it's too late. So 2025 has been one hell of an ending for me. I for one won't miss anything of that year. Just pray that they will be able to get some sort of an understanding of what I am going through and hopefully get this shit figured out so 2026 will be a better year for us all.
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3 Reactions@dinosoke
Are you sure that they even knew about vitamins?
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1 Reaction@dinosoke I wouldn't take medicine that didn't work either. If you don't take pain medicine when you have pain then that's your choice. I have to. Even though there is still some pain there, I can only wonder just how bad it would be if I took nothing for pain. I'm thinking a lot worse. Nothing is going to take the pain away 100% unless you are in hospital for something stronger. I have done that too. Spent a weekend getting IV pain meds for pain and spasms in both legs. I could hardly walk. EMS came and took me to hospital. Pain is awful and as long as there is something available for it, I'm taking it. I've heard that some cancer pain is horrible too but I'm praying that's not true in my case. Bone pain I experience is way worse than my back pain has ever been but I would never consider not taking something for it. Again, nothing takes it completely away but I'm sure I'd be screaming if I took nothing. I guess you can say the pain meds take the edge off and make it more tolerable. It does in my case. 😊
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3 Reactions@carol1024 Thank you Carol for your response. It's not that I have anything against med's for whatever reason but I have been in the hospital couple times and once I was in for my kidney and it was my first time dealing with the headache from hell along with the pain from my kidney being so server infected that they were pumping me up full of Morphine. I was in for almost a week when the Doctor came in and explained to me that I was going to receive a spinal tap in the morning. I said The hell I am. For kidney infection they wanted to check for meningitis and I told him. Look I'm not a freaking ginny pig and I don't want any more Morphine. I want you to give me what you're going to give me at the end now because every single person I have ever spoken with says the same thing. At the end the doctor says. Here this will work and guess what? My headache from hell went away within 20 minutes so I know that they have medicine they can give us right then and there but since they are only Practicing Physicians here in the United States not like those across the waters from us that will give you what you need from the start for the fact that they are going to be paid no matter what. Here they will give us whatever medicine they have either are just testing out or the lowest cost of medication they can get away with. I was on morphine for 5 days just to ease my pain and once I started telling him what to do and then with just one pill the pain went away and not just to cover my pain but took the headache away. That's the main reason why I don't take medicine because I know it's only a temporary thing they are giving me. The pain is there trust me it's there but I learned some time ago how to channel the pain in my body. There's lots of times I can't do that because either I'm at work or too much noise and at work it looks like I am sleeping when I try to get centered and we can't have that considering that I am the only doorman they have on duty and it's too much noise for it anyway but when I get the chance I will channel it and throw it out of my body and mind. Granted it only last a short time but it beats letting them practice on me by trying out different types of medication when in the long run they have the medicine that could have worked from the start.
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1 Reaction@dinosoke oh I know about those headaches. I had a brain aneurysm in 2011. When I swallowed, coughed, turned over, opened my eyes, cried, talked it felt like the top of my head was going to pop off. I've birthed 3 children and that aneurysm was way worse than childbirth. It took about a year for me to get back to 100% but I was back at work in 2 weeks. I only missed 2 weeks of work. The week in the hospital and the week the Dr made me take off. I worked in a hair salon so I was able to make my load as much as I could handle. I did not need surgery praise the Lord. 🙏🏻
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1 Reaction@dinosoke - I feel your pain (literally and figuratively). Here's my cautionary tale....
I have idiopathic* peripheral neuropathy (*translate = unknown cause). in both feet. It started with a feeling that I had tape stuck to the bottoms of my feet, pain with prolonged standing and walking (a trip to the grocery store was painful), and quickly spread to "sock and glove" numbness as high as 6" above my ankles. Over 5 months I saw many specialists (podiatrist, orthopedist, physical therapist, spine MD, 2 neurologists), had x-rays, MRI, many nerve and blood tests, a spinal injection, a steroid injection in my feet, and a prescription for gabapentin (and a laughable recommendation for "Two Old Goats" lotion). Nothing helped.
That was almost 6 years ago. Since then, the pain when walking/standing has subsided, but my balance is off, I still have loss of sensation in the bottoms of my feet, and sometimes the sock-and-glove foot/ankle numbness. It has impacted my physical activity and quality of life.
Nine months after the onset of the numbness (after all the specialists had weighed in), I stumbled across a study about statins and neuropathy and learned that rosuvastatin (generic for Crestor) can cause neuropathy. It is rare, though. Often the symptoms don't arise until 1-2 years after starting the med. I had been talking rosuvastatin for 2 years when the symptoms started. By the time I read the study, I had been taking rosuvastatin it for about 3 years. I stopped taking it that same day.
**NOT ONE of the MDs I saw even suggested the statin might be the cause.**
The medical professionals had automatically jumped to the quickest, easiest cause. I had elevated A1C -- but it was not even prediabetic high. The 2nd neurologist monitored my case for 3 years and after seeing the A1C did not increase, but actually came down, he finally told me he was inclined to believe my assessment. Unfortunately, he told me if the nerves don't regenerate within 2 years of onset, it's permanent damage.
Now there is more available info about statins and neuropathy than there was 5-6 years ago. If you are taking a statin, I recommend looking into this more.
Wishing you the best!
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4 ReactionsYou don’t have to have diabetes to have small fiber neuropathy. You can also get it if you have celiac. I have celiac Small, fiber, neuropathy, and fibromyalgia. Two of them are hereditary.
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2 Reactions@justlucky I really appreciate you taking time out of your day and responding back to this post I created. Everything anyone post on here I read and anybody that makes any type of a suggestion I look into. So I looked at anything that might have Satin in it and unfortunately nothing does. I have been receiving reports of people that have had some sort of spinal problems and those I am able to relate with. To this day my L1, L2, L3, L4 S1 and C2 are Herniated. Sadly I have been living with this pain for a while and no chance of having an operation to repair them. According to the CMO at General Hospital here in Los Angeles CA if I do find someone to operate on me that person should have their license removed from practicing medicine and I need to learn just to live with the pain because I have 100% of walking into the hospital and less than 90% of walking out on my because of where the disc are and where the nerve is located and so he said he will not take the chance to of having that happen and said he prey's that I don't and won't find someone else to talk them into doing it. So considering all of the responses I have received I'm leaning more towards that being the main reason for everything then anything else.
Now another question maybe you might know. I was asked "Why am I not on disability because of all this?" My response was because I am still able to work even though in tremendous pain and the fact that I am still in my 40's. Is this or would this be grounds for a disability case if you would know?
Okay again Thank you for your feedback.
Smile Always Dino
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4 Reactions