Hormone Treatment Experience
Had my first visit today at MD Anderson Proton Center and the Dr ordered AlteraAI to see if Hormone Therapy would help
If so he is leaning to Hormone Therapy Light. Not sure what that means? Hormone Therapy does not look like fun!
Anyone have experience with ADT Light or just Hormone Md light? Are the side effects the same?
Thanks for any feedback
Mark H
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I should’ve realized that, The way you put it did look a little suspect 😀
Your testosterone sure came back aggressively. Gotta make you feel a little bit better, like normal!! Whatever that is after PC
The results of my ArteraAI test were:
"ST-ADT Biomarker: Positive. On average, patients with this result had significant risk reduction in distant metastasis with the addition short term androgen deprivation therapy."
The report itself says nothing about what type of ADT, and my RO recommended 6 months of Orgovyx, which I agreed to.
I believe you are right in how ArteraAI makes the determination.
Oh, ok, thanks. I didn’t realize, they may have different focus of report based on what they find, makes sense.
Thanks,
Phil
Yes, much better physically but always worried that all that T will be food for you know what!
I took just 4 months of Orgovyx that completed about 1.5 years ago. I eat well, exercise daily and play pickleball and golf. After one year, my Testosterone did not fully recover and my team agreed that I could take supplements. My fertility RO prescribed TGel and Cialis. My T returned to normal and I'm in the process of weaning off both drugs. My PSA was stable during this time.
Compared to many others, 4 months is 'ADT light'. Sadly, I still have not recovered from the main 4 side effects: Belly Fat (gained 10 lbs. eating a healthy Mediterranean diet and drinking less); Hot Flashes: definitely still happening; Energy/Strength: struggle to run (5-10K) distances as I could before ADT; ED: about 80% of normal.
I'm trying to understand how these side effects could still be so active when I clearly had a 'light' version of ADT. I'm meeting one of my Dr. team on Monday and, if I don't get a suitable reply, I'll check with some of my other doctors. The literature on this topic is all over the map, hence, not useful. (Disclaimer: I'm grateful not to need more intense treatments at this time...just want to understand what's going on and maximize QOL like we all do).
Do you perhaps know where I can get it online. I'm in South Africa.
I got it from Amazon.ca; in South Africa, you might find something like it from Takealot.com, or maybe Alibaba (?).
Jeff
My AI test will not be back for a few weeks
Having read about the side effects of ADT not sure I can handle them if the RO recommends it even ADT lite with 28 Proton Radio
For a year now I have struggled with the side effects of a reverse shoulder replacement which has been tough
The whole ATD choice has been on my mind a lot to go without ADT as part of the radiation
Seems like lousy choices at age 80 to have to make
I’m 77 going 78 I’ve been on ADT for eight years. It’s really something that most people can manage. For me, it’s not a big deal, It has kept me alive in the last eight years.
When they want to do radiation, they want to try to limit how much radiation they give, If they can get you on ADT, ahead of the radiation, it can shrink the tumors and stop them from growing. They probably won’t want you on it more than six months because of your age.
You could tell your doctor that you want to go on the estradiol patch, Instead of ADT. According to the latest study in England, it’s just as effective as ADT, but has many fewer side effects.
Not sure if you saw this video, it discusses over treatment of people in their 80s
My experience after 7 weeks on ADT is very similar and I believe that my diet, daily exercise and D and B supplements have greatly contributed managing side effects. It’s early on but I’m optimistic about minimizing side effects.