Staying (Lung) Safe this Holiday Season

@carolplatt3
Hi, I Have MAC disease and recently was invited to a couples home for a party. They have a townhome and there were a lot of people squeezed in to a small area. She had 3 different scented candles going. I wasn't going to say anything and just tell them I didn't feel well; but one of my other friends asked me what was wrong and then told the hostess. She apologized and said she would just put them out. The scent lingered for awhile. I wear a mask everywhere I go including in Church for 1 1/2 hrs. Trying to stay healthy.

@lls8000 good suggestion in February I go again to the Cancer Center for another ct scan and appointment. I had half lung removed last September and they are watching a spot on the left lung now to see if it changes. I am fortunate than most.

I will ask the doctors to explain things to my husband.
Merry Christmas 🎁🎄

@please, I’m also surprised how many people still want to breathe in these chemicals.
Maybe your husband needs to hear the message from someone other than you. If he goes to any of your follow up appointments, maybe you could ask the clinician to explain why your remaining lung capacity needs all in oxygen that it can get, without these extra particles getting in the way.
How is your recovery going? What type of lung cancer do you have? Will you face any other treatments?

Thanks very much

Merry Christmas to you all too. ❤️😁✅💕👍🏻

@please
How hard for you! My Mother and my Husband both had breathing problems. My Mother had pulmonary emphysema and my Husband had lung cancer. Sprays and scents, perfumes bothered them terribly. I was very glad the University of Washington Medical Center where they both went had signs up saying no perfumes!
Can you throw out the sprays etc. when your husband isn't home?
As you requested, I will say a prayer for you and your situation. God is there for us. I wish you the best.
Merry Christmas!
PML

@please I have a number of family members that have not understood how serious these types of issues are. I can't go in musty mold homes or homes where air is not circulated. I finally had to stand my ground tonight and tell my husband that as long as his Mom shuts off the air, turns off fans and close all windows in her home thus I have breathing problems and get headaches that I am just not going in. YOU are important. I finally told myself, empower yourself and do not enable others to be insensitive to your needs.

@sueinmn I agree with you

September of this year 2025 they took half of my right lung out due to cancer. I am 74 years old.

My husband 77 years old loves plug in air fresheners and spraying bb
I can’t get him to understand how much it is hard to breathe and it is dangerous
Please pray for my!

Thanks

I just had my second wedge resection - this time LUL (first time RUL). My Pathology report says Spread Through Air Spaces (STAS) Present - it did not for the first nodule resection. I know what that means (I researched it) and I am asking my doctors how they will adjust my treatment plan - I have multifocal so have another nodule which needs radiation in a different lobe.
I was wondering if they would consider going back in and taking out the lobe where resection was done. So I appreciated your comment on lobectomy. Where is your doctor located?
I also saw research paper about resection vs lobectomy. But there is little info available, so we are data points now. I read 15% to 50% small nodules are STAS present.
So how long has it been since your first identified STAS present? No new growths? What kind of observation schedule are you on now? No other therapy?
I know STAS present has negative impact on prognosis.

I would really like to see people and I also would like to eat someone's else's cooking. So, I have decided to drop in on a family gathering. Everyone is vaccinated - I don't know if they are all up to date or not. I have had Covid twice and also had monoclonal antibody treatment 3 months ago so I should have max protection. I do plan on keeping my N95 mask on while I am there. And I will take my food home with me to eat so I don't have to take off my mask.
Thinking back, what a terrible thing this Covid has been for us......how much it has changed our lives.

Believe it or not, we're just 2 weeks from Thanksgiving and all the seasonal gatherings and traditions!

Yesterday I was reminded of my sensitivity to the "smells of the season" as my friend got into my car reeking of the cologne someone in her office was wearing - not her.

Then I was thinking, about how, for 2 years, we didn't worry about big gatherings and people sharing their respiratory viruses and other bugs...but now everyone wants to be normal, even though our lungs still aren't. I am left to ponder "How are we going to gather this year?"

What do you plan to do to stay safe, but still be able to celebrate in some way?
Sue