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Histamine intolerance
I have my histamine intolerance more or less under control thanks to Diamine Oxidaise diet management and helpful info on the internet but now and then I get an unexplained reaction. I am wondering if stress is a significant factor. I have never found a doctor who knows what I am talking about. They dismiss it as just an allergy. Isn't it covered in their medical training?
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https://www.yahoo.com/lifestyle/mystery-food-sensitivity-might-actually-220000099.html
This is an article which includes Dr. Sara Axelrod of ENT Allergy Associates in East Brunswick NJ.
Completed extensive studies in Histamine Intolerance. She is an amazing Doctor; listened to me. Discovered I have a potentially harmful medical condition if not monitored. Ran tests even UPenn/Johns Hopkins doctors overlooked. Most of all, has given me peace of mind; I am not imagining this condition.
Uncertain where you are located but definitely inquire. Maybe her office can refer you.Let me know if you need anything else.
GOOD LUCK!
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5 ReactionsMany thanks. I am in Australia. I found articles by Janice Joneja in the UK set me on the right path but she has retired. Good to see research on this condition is still underway. Strangely DAO is not approved here so I have to import it. Been trying to find out which is best the pork based or vegan DAO
.Best wishes
https://shop.connersclinic.com/products/abp1-assist
I have been taking ABP1 Assist with Histamine Scavenger for 1 1/2 years. It has been a lifesaver. I either purchase from my holistic practitioner or purchase it on Connors clinic shop site.
Peptide Collagen has helped me as well. Again, best to you.
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2 ReactionsWhenever I get sick or triggered, the histamine release starts. Mostly Shortness of breath and rapid heart beat at night. It can last months and then stops until triggered again.
I am trying to get some ideas on how to reduce the histamine levels without having to go on a mast cell stabilizer. I use DAO with high histamine meals now. I will check into the two above medicines. Thanks.
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1 ReactionI was born with migrains (as my Father and his mother before him). And my mother took me to a lot of drs tofigure it out. Finally an allergist did and pronouced it a histamine senstativity. I spent that summer getting increasing strengths of histamine to build up my tolerance. That fixed my migrains until I got my menses and estrogen came into play. I had to deal with the headaches until, years later, I was put on HRT and they were a thing of the past. But that is a risk factor for breast cancer (which I have) and now I am on a calcium channel blocker. Works!
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2 Reactions@tracyfurtiscaudle It’s been a long while since you shared this! Unfortunately, the article is no longer available, but I’m grateful you shared it. I live close enough and have a consultation with Dr. Axelrod coming up soon—so I’m hopeful!
I’ve had nocturnal migraines for 14 years and suspect mast cells/histamine intolerance may be part of the picture. After years of seeing neurologists without really understanding why, I’m hoping Dr. Axelrod can shed some light and help connect the dots. Thank you! ❤️
@suetex I’m so sorry you’ve had to endure so many years of migraines, especially while also going through breast cancer. I can only imagine how difficult that must have been. I truly hope you’re doing well now. ❤️
Thank you so much for sharing your experience—it really gave me hope. I’ve now made two appointments: one with an allergist I found through Tracy’s comment below, and another with a neurologist at Einstein/Montefiore who specializes in hormones.
I’ve had nocturnal migraines for 14 years. They wake me from sleep, usually between 1–5 a.m., and about 99% of my migraines happen while I’m sleeping. Sadly, none of the migraine preventives I’ve tried have helped. I also experience itching at night, and I’ve noticed that eating lower-histamine foods and taking antihistamines seem to lessen my migraines. It’s made me wonder if histamine might be part of the picture.
This all started around menopause, and I’m 68 now. I’m really hoping these consultations might finally help me connect the dots and understand what’s going on. I’ll definitely come back and share what I learn. 🙏❤️
I have MCAS and it’s under control but when I have a flare I go straight to generic Allegra and generic Fexofenadine a couple of times per day until it calms down. I was concerned as Allegra is one every 24 hours but I can take it every few hours and I’m ok. I don’t suggest anyone taking more than prescribed but I’m sure you know that. Take care, wishing you well.