Bone Metastasis: What treatment did you have?

Hello everyone, I’m currently going through the diagnostics process and today I was told by my Doctor that my Pet Scan shows that my prostate cancer has spread to the bone and two lymph nodes, now I’m waiting for Oncologist appointment, without getting ahead of my self what procedure it’s the norm for cases like this PSA 7.5 and Gleason 9

Thanks
Zzotte

Hello everyone, I’m currently going through the diagnostics process and today I was told by my Doctor that my Pet Scan shows that my prostate cancer has spread to the bone and two lymph nodes, now I’m waiting for Oncologist appointment, without getting ahead of my self what procedure it’s the norm for cases like this PSA 7.5 and Gleason 9

Thanks
Zzotte

My Dr didn’t go over the results in a lot of detail, the biopsy showed 5+4 with metastatic to the prostate nerve, I asked what now? He said we do Pet scan and go from there, the pet scan show bone and two lymph nodes, so he scheduled a consultation with an oncologist so that will be next, I have to admit that I’m a little at loss, I didn’t not even know what I should had asked I know the sooner I accept the fact the better off I’m will be.

Thank you Jeff
Zzotte

Hello everyone, I’m currently going through the diagnostics process and today I was told by my Doctor that my Pet Scan shows that my prostate cancer has spread to the bone and two lymph nodes, now I’m waiting for Oncologist appointment, without getting ahead of my self what procedure it’s the norm for cases like this PSA 7.5 and Gleason 9

Thanks
Zzotte

You have to understand that with good treatment, you could live many more years. You have a chance to be proactive, Find out a lot about what can be done, And then be prepared when you talk to the doctor.

When your doctor says you have bone Metastasis is it just one spot or are there more spots. That’s important to know because the more spots there are the more complex it gets.

Now they say that you are going to have an oncologist to work with. You want to make sure it’s the right type of oncologist. Genito Urinary Oncologists specialize in prostate cancer, Medical oncologist work with all different types of cancer. You want to speak with a GU oncologist about what is the best treatment to get? If you are going to do chemo, then you may go to a medical oncologist.

Tell your doctor you would like a copy of the biopsy report. You can check your medical records. It might be able to be downloaded from there.

You have a serious case of prostate cancer. You really need to get a second opinion so you can get the best advice and Have choices that make sense. Not sure where you are going now, Working with a center of excellence will give you a chance to have multiple doctors looking at all aspects of your Diagnosis and treatment.

There are a lot of people writing in this forum with similar cases to yours. Take a look at the titles and first message in this forum and find ones that are similar to your case and see what people said to do. You can get a real education here.

I forgot to welcome you to the club within a club (metastatic prostate cancer). 😕

As @jeffmarc mentioned, going to a decent multidisciplinary cancer research centre is critical at this point, because treatments for stage 4 PCa have changed enormously over the past few years, and the word hasn't gotten out to all the smaller practitioners yet.

If treated quickly with the latest best practices, it might become more like a chronic disease than a terminal one, at least for many years, and maybe indefinitely.

There are no guarantees, but we have genuine hope now.
https://www.scientificamerican.com/article/treating-prostate-cancer-at-any-stage/

Thank Jeff I will do the search,
Zzotte