High Risk Mutation (ie. BRCA, ATM, RAD51D)

Posted by corinneberg @corinneberg, Fri, Mar 15 9:46am

Anyone out there know they carry a genetic mutation that increases their risk for cancer? I run a support group every other month at the Dan Abraham Healthy Living Center (DAHLC) in Rochester. If interested feel free to reach out to me. We would love to build our group. 🙂

@corinneberg

Hi Rochellec13! I would recommend you meet with a genetic counselor if you haven't yet. The National Comprehensive Cancer Network (NCCN) states that with a RAD51C mutation there is unknown or insufficient evidence for breast cancer risk but an increased risk of ovarian cancer. They state to "consider a Risk Reducing Salpingo Oophorectomy (RRSO) at 45-50 y". This age recommendation can change based on family history. The surgery can be done laparoscopically and has a relatively short downtime. I help run a support group through Facing Our Risk of Cancer Empowered (FORCE) and we meet regularly at the Dan Abraham Healthy Living Center (DAHLC). Our next meeting is June 6th at 7pm. We would love to have you!

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Facing Our Risk of Cancer Empowered (FORCE) meetings are held in Dan Abraham Healthy Living Center (DAHLC) in at the Mayo Clinic Rochester campus.

@corinneberg do you meet regularly? And can people join the meeting when visiting Mayo Clinic, Rochester, in other words not as regular attendees?

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@colleenyoung

Facing Our Risk of Cancer Empowered (FORCE) meetings are held in Dan Abraham Healthy Living Center (DAHLC) in at the Mayo Clinic Rochester campus.

@corinneberg do you meet regularly? And can people join the meeting when visiting Mayo Clinic, Rochester, in other words not as regular attendees?

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Colleen thank you! Yes, we meet regularly and anyone is welcome (anyone with risk even if they don't have a mutation, family members, care givers, friends, etc). Our next meeting is Thursday June 6th at the DAHLC basement level in one of the conference rooms (seems to change rooms a bit). We do take a break in the summer so this will be the last meeting until the fall. 🙂 Please reach out to me with any questions!

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