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High grade glioma-waiting for remainder of molecular testing

Posted by raphaela2025 @raphaela2025, 1 day ago

It hasn't hit me yet. Just found out. I don't know what to do everyday. I'm not working. I can't drive anymore. Thank you for having me in your group.

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azginny | @azginny | 1 day ago

Welcome. How do you know it's high grade without your complete pathology report? I'm sorry to hear you can no longer drive or work. I suggest finding a hobby to take up some of that time and to keep your mind busy. We can dwell in this disease if we are not careful.

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raphaela2025 | @raphaela2025 | 1 day ago
In reply to @azginny "Welcome. How do you know it's high grade without your complete pathology report? I'm sorry to..." + (show)
@azginny

Welcome. How do you know it's high grade without your complete pathology report? I'm sorry to hear you can no longer drive or work. I suggest finding a hobby to take up some of that time and to keep your mind busy. We can dwell in this disease if we are not careful.

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Thank you!

The first pathology report stated that I had a high grade glioma.

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thomhorowitz | @thomhorowitz | 15 hours ago

The methylation test is important. If positive you may respond to TMZ. A very tolerable chemotherapy option. I have Ben on it five days a month for a year now. Other than occasionally having nausea I find it very tolerable. Did get a rash on my back from it. It was not a systemic allergy and responded well to steroid cream.

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azginny | @azginny | 6 hours ago
In reply to @raphaela2025 "Thank you! The first pathology report stated that I had a high grade glioma." + (show)
@raphaela2025

Thank you!

The first pathology report stated that I had a high grade glioma.

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Ugh! I'm so sorry. I have a grade 3.

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