Connect
High anxiety regarding Reclast or Prolia decison for OP meds
I am overwhelmed with making this decision. Currently on Evenity, 2 more injections left. Severe Osteporosis. Spine -4.7. I left my OP Dr's office last week with an order for Prolia starting Oct/Nov. And blood work orders. We did discuss Prolia vs Reclast but I didn't ask enough questions I guess, despite having a 1 hour appt with her. I did know and told her I feared Prolia. She relayed how much easier it was than Reclast. And the Reclast stays in your system much longer. She wrote the RX for Prolia for 1 year, then relay to Evenity again. That does not sound right to me. I can't find any studies supporting that drug sequencing. This Dr is new to me but in the practice of the most respected Endo offices in my state. She only see OP patients. I am staying up til 3am every night reading and researching. There is no right answer.
Like
Helpful
HugInterested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.
Connect
Wel... I did Tymlos... but love some humor on here!
Agree, if only there were more studies and more answers. These drug manufacturers make it so hard - maybe being a little cagey. You make some great points, why does every treat have to be a year?
I've wondered about 2 straight years of evenity. I've read so much and watched so many videos, it's a blur. But somewhere, I did that mentioned. And am I dreaming, but does Evenity lose most of it's efficacy after the first few months? And of course insurance might be an issue.
Try to persuaded her to try Tymlos someday 🙂
On a serious note, @gently made a great point. I wonder if remodeling based bone building by Forteo/Tymlos is truly different from that by evenity. You were saying in another post that bone loss is fastest after Evenity if an antiresorptive is not used. Maybe this is why?
-
Like -
Helpful -
Hug
1 ReactionFrom one evenity study I read, on average, bmd increased a little over 4% during 0-3mo, closer to 4% during 4-6mo, then roughly 3-4% during months 7-12. If therapy continues, the second year had another few percentage increase in bmd so not very effective. Like you noted, efficacy in bone building is greatest during first few months.
-
Like -
Helpful -
Hug
1 Reaction@255anny, thanks!
Mablin, manipulation fails if you aren't discrete. I should have written teriparatide.
It's windyshores who is convincing me to take Tymlos, without even trying to be manipulative.
-
Like -
Helpful -
Hug
1 ReactionI’m experiencing really bad dizziness and vertigo following my first Reclast infusion. It’s been 2 weeks. My doctor doesn’t seem to know what to do for it. Any suggestions?
I wrote on the other thread....I had fever, then pins and needles, then some dizziness (which I tend to anyway) and then after the first weeks was fine. (Low dose though.)
In my experience PT's (at least those who are trained in dizziness and balance) are the best at diagnosing and treating dizziness and vertigo. There are several different kinds and many have treatment.
BPPV involves the PT looking at eye movements. There are maneuvers to do at home. Labyrithitis and vestibular neuritis also have exercises you can do at home. I get vestibular migraines which are "central" or brain-based vertigo and don't take anything for it but some people do. Hope this is all moot and you feel better soon!
Forteo and Tymlos are both great medications! I could tolerate one but not the other but then other people have the reverse experience...
-
Like -
Helpful -
Hug
2 ReactionsThanks for the info. I like the part where after a few weeks you were fine!
-
Like -
Helpful -
Hug
3 Reactions