1. < Blood Cancers & Disorders

Suspicion for chronic myeloid leukemia (CML) turned out to be anemia

Posted by phulwanik0611 @phulwanik0611, Dec 25, 2023

Hi everyone i am new here and looking to connect with people to help me with my current situation.
One fine doctor visit has brought to me my notice that my Wbc has been persistently elevated (between 11.9 to 13) since last 1.5 years
Hence i got my blood work done and the haematology doctor suggested a peripheral blood smear which apparently came normal but because of my extreme anxiety and fear he has asked me for a BRCABL1 test to rule out any possibility of cml...he said he is 99% sure its all benign but doing it for my peace...

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Mentor
Lori, Volunteer Mentor | @loribmt | Dec 27, 2023

Welcome to Connect, @phulwanik0611. Chromic Myelogenous Leukemia is often very slow to develop and without the need for immediate treatment. With treatment, if required, patients can live a full and healthy life.

We have a number of members in the forum who also have CML like @pam62 @ilahi @ortina2023, whom you’ve already spoken with in this discussion: https://connect.mayoclinic.org/discussion/does-anyone-have-cml/

Your doctor is going one step further to confirm your diagnosis with running genetic testing to see if you have a mutated gene that may be causing your CML. I also noticed that you’re pregnant from another comment you made. From reading this article below, it explains that if you do have this gene, that it is an acquired mutation, not one that is passed down from parents to children. So hopefully that will give you a little peace of mind with your pre-natal depression. That’s a lot to be grasping at one time!

Here’s a very good article on CML for you to read through:
https://www.healthline.com/health/chronic-myelogenous-leukemia-cml
Is this your first pregnancy? Have you discussed your depression with your Ob/gyn?

REPLY
1 reply
phulwanik0611 | @phulwanik0611 | Dec 28, 2023
In reply to @loribmt "Welcome to Connect, @phulwanik0611. Chromic Myelogenous Leukemia is often very slow to develop and without the..." + (show)
@loribmt

Welcome to Connect, @phulwanik0611. Chromic Myelogenous Leukemia is often very slow to develop and without the need for immediate treatment. With treatment, if required, patients can live a full and healthy life.

We have a number of members in the forum who also have CML like @pam62 @ilahi @ortina2023, whom you’ve already spoken with in this discussion: https://connect.mayoclinic.org/discussion/does-anyone-have-cml/

Your doctor is going one step further to confirm your diagnosis with running genetic testing to see if you have a mutated gene that may be causing your CML. I also noticed that you’re pregnant from another comment you made. From reading this article below, it explains that if you do have this gene, that it is an acquired mutation, not one that is passed down from parents to children. So hopefully that will give you a little peace of mind with your pre-natal depression. That’s a lot to be grasping at one time!

Here’s a very good article on CML for you to read through:
https://www.healthline.com/health/chronic-myelogenous-leukemia-cml
Is this your first pregnancy? Have you discussed your depression with your Ob/gyn?

Jump to this post

Hi lori, thank you for your response. However my diagnosis is not CML after consulting two haematologist...thank god..
The genetic testing was ordered just so that my anxiety settles down. ...however the doctor said that the same isnt necesary at the moment as my diagnosis is iron deficiency anemia

REPLY
1 reply
Mentor
Lori, Volunteer Mentor | @loribmt | Dec 28, 2023
In reply to @phulwanik0611 "Hi lori, thank you for your response. However my diagnosis is not CML after consulting two..." + (show)
@phulwanik0611

Hi lori, thank you for your response. However my diagnosis is not CML after consulting two haematologist...thank god..
The genetic testing was ordered just so that my anxiety settles down. ...however the doctor said that the same isnt necesary at the moment as my diagnosis is iron deficiency anemia

Jump to this post

That’s excellent news, @phulwanik0611 and what a relief for you. Though that doesn’t change the iron deficiency. It’s not unusual to develop anemia while pregnant. Has there been a discussion about taking iron supplements?

REPLY
phulwanik0611 | @phulwanik0611 | Dec 29, 2023

Yes...they have prescribed me an iron infusion...and then see how that works...moreover my wbc go high n low themselves so the dr. was suggesting that in CML they elevate dont go down like mine ..so..
Well for me this whole tough has started because of my severe health anxiety and then multiple doctors visits lab tests etc

REPLY
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