Hi, stage 4 colorectal cancer here

Posted by wifemom3 @wifemom3, Apr 23, 2022

Hi. I am new to the group. My name is Michele and I am located in Florida. I was recently diagnosed with stage 4 colon cancer on January 19th 2022.
I am currently on my 7th round of chemo. Is anyone else newly diagnosed with stage 4? Looking for a little support.

Interested in more discussions like this? Go to the Colorectal Cancer Support Group.

@colleenyoung

@makatak47, I don't think that any of us here can respond to your question of whether seeking treatment at Mayo Clinic can lengthen your life. But the expert physicians at Mayo Clinic may be able to answer more knowledgeably. I suggest you contact them. By reviewing your complete medical records, they can tell you if there are options they can offer that currently are not available to you or if you are receiving the same care they would offer. They don't want you to travel if not necessary. Here's how to contact them http://mayocl.in/1mtmR63

@wifemom3, Michelle, how are you doing? What brought you a smile today?

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Hi. I am doing tolerably well. I go to the cancer center to get my 5FU pump taken off. That always makes me happy! I've had my "little pump buddy" for 2 whole days. The weather is pretty crummy here in Florida, but I am thankful for another day. I have finished meditation and wrote down my 3 things I am grateful for. Now ready to start my day. (:

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YES, I had a CT scan that showed a large tumor right at my colon. The biopsy showed stage4 cancer. It has metastasized into some bone, and a bit ino my left lung. I am scared to death. I presently am in the Philippine Islands, but wil have the funds to fly to Phoenix on June2. My worry is howler it could spread in that time. AND how long it would take to get an appointment. I could only afford the hostel there. Any ideas? I am a 74 y/o male.

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@makatak47

YES, I had a CT scan that showed a large tumor right at my colon. The biopsy showed stage4 cancer. It has metastasized into some bone, and a bit ino my left lung. I am scared to death. I presently am in the Philippine Islands, but wil have the funds to fly to Phoenix on June2. My worry is howler it could spread in that time. AND how long it would take to get an appointment. I could only afford the hostel there. Any ideas? I am a 74 y/o male.

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Hi James,
I can imagine that you are scared. It's only natural to imagine that the cancer is spreading like wild fire. Keep in mind that colorectal cancer is typically a slow growing cancer. While June 2 seems like an eternity away, it is less than 2 weeks.

Have you contacted Mayo Clinic to secure an appointment? I'm sure you don't want to make the trip without having an appointment.

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@colleenyoung

Hi James,
I can imagine that you are scared. It's only natural to imagine that the cancer is spreading like wild fire. Keep in mind that colorectal cancer is typically a slow growing cancer. While June 2 seems like an eternity away, it is less than 2 weeks.

Have you contacted Mayo Clinic to secure an appointment? I'm sure you don't want to make the trip without having an appointment.

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I will get paid (monthly) on June2, and will have enough to get to Skyharbor on about the 4th. Is there any hospice rooms available at that time, and is there a shuttle from the airport? I will be traveling alone.
Thank You,
James Mackey
PS..I am a retired firefighter with a Calpers pension.

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@makatak47

YES, I had a CT scan that showed a large tumor right at my colon. The biopsy showed stage4 cancer. It has metastasized into some bone, and a bit ino my left lung. I am scared to death. I presently am in the Philippine Islands, but wil have the funds to fly to Phoenix on June2. My worry is howler it could spread in that time. AND how long it would take to get an appointment. I could only afford the hostel there. Any ideas? I am a 74 y/o male.

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Since you are coming to Phoenix, can you possibly look into MD Anderson cancer Crnter? That is who did my surgery and subsequent treatment. I’m still a surveillance patient there. They are connected to Banner Gateway hospital which is very convenient. My oncologist, Dr. Dragovich is the head of oncology. Start making calls now!! As someone else mentioned, it is a slow growing cancer. I’m not sure if your tumor is obstructing or not

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@lisag03

Since you are coming to Phoenix, can you possibly look into MD Anderson cancer Crnter? That is who did my surgery and subsequent treatment. I’m still a surveillance patient there. They are connected to Banner Gateway hospital which is very convenient. My oncologist, Dr. Dragovich is the head of oncology. Start making calls now!! As someone else mentioned, it is a slow growing cancer. I’m not sure if your tumor is obstructing or not

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I have another biopsy today, for bone cancer. Thank you so much for the information. I guess appointments are difficult. I'll get right on it. My colon cancer is at Stage 4. I wonder if there is any hope? Jim

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There is ALWAYS hope. Look up Kate Bowler. She is a terminal colon cancer survivor still going strong. Her book Everything Happens for a Eeason And Other Lies I’ve Loved. So good She has a podcast too

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@wifemom3

Hi. I am doing tolerably well. I go to the cancer center to get my 5FU pump taken off. That always makes me happy! I've had my "little pump buddy" for 2 whole days. The weather is pretty crummy here in Florida, but I am thankful for another day. I have finished meditation and wrote down my 3 things I am grateful for. Now ready to start my day. (:

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Hello, Your comments and your "blue ribbon saying" caught my attention. My husband was diagnosed with advanced colon cancer in October 2020. It caught us by surprise. Through the course of his treatment, he had an initial surgery to receive an ileostomy bag (temporary) and to treat an infection. This was followed by several rounds of chemo, and colon surgery in April, 2021. In August some spots were found on his liver and in the lungs. Subsequently, more rounds of chemo. His last chemo was in November, and he has had 2 good scans since then. He is stronger and looking better day by day. He has been back to work full time since November. Your saying that you attached is exactly true, and thank you for sharing that. The journey is life changing. But always have HOPE, and one or two people to share your thoughts with, (including this forum) and continue to move forward!

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@lisag03

Since you are coming to Phoenix, can you possibly look into MD Anderson cancer Crnter? That is who did my surgery and subsequent treatment. I’m still a surveillance patient there. They are connected to Banner Gateway hospital which is very convenient. My oncologist, Dr. Dragovich is the head of oncology. Start making calls now!! As someone else mentioned, it is a slow growing cancer. I’m not sure if your tumor is obstructing or not

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Do you have the phone numbers? My tumor is partially obstructing.

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@makatak47

Do you have the phone numbers? My tumor is partially obstructing.

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Mine was partially obstructing as well, so I had surgery first then chemo.
Their number is +1 (480) 256-6444
Please know that any type of obstruction can turn into a serious complication. I was told I couldn’t wait more than a month or so to have my surgery. In the meantime, I had to follow a very low residue diet. No fruit and vegetables. A partial obstruction can turn into a full obstruction, and thus an emergency

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