1. < Colorectal Cancer

Hi, stage 4 colorectal cancer here

Posted by wifemom3 @wifemom3, Apr 23, 2022

Hi. I am new to the group. My name is Michele and I am located in Florida. I was recently diagnosed with stage 4 colon cancer on January 19th 2022.
I am currently on my 7th round of chemo. Is anyone else newly diagnosed with stage 4? Looking for a little support.

Interested in more discussions like this? Go to the Colorectal Cancer Support Group.

cjay | @cjay | Jul 15, 2023
In reply to @laser "After I had my surgery, I had to wear an ileostomy bag for 3 months and..." + (show)
@laser

After I had my surgery, I had to wear an ileostomy bag for 3 months and then had it reversed. I also did experience some other issues from the radiation regarding my sexual organs but at least I'm alive and am able to have some good years with my loving wife yet. We have been married 52 years this August. My wife stood by me all the time during my procedures and was with me during every doctor visit. You are such a fantastic companion while your husband is going through this. Believe me he does appreciate your standing by him through all of this. I know this from experience.

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@laser
How are you doing now after the reversal of your ileostomy? Do things go back to ‘normal’? I’m having mine reversed in early October. Hoping the transition will be smooth. I guess we can deal with anything after this battle!

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1 reply
laser | @laser | Jul 16, 2023
In reply to @cjay "@laser How are you doing now after the reversal of your ileostomy? Do things go back..." + (show)
@cjay

@laser
How are you doing now after the reversal of your ileostomy? Do things go back to ‘normal’? I’m having mine reversed in early October. Hoping the transition will be smooth. I guess we can deal with anything after this battle!

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@cjay The reversal went smooth. Depending on what surgery you had and the extent of the surgery will determine how you feel for the next couple of months too. It took me a while to fully recover from the surgery. All the plumbing is working again although I have bouts of constipation and then days I spend a lot of time on the toilet. It's like I empty out that day. I would think everyone's experience will be somewhat different too. Good luck and enjoy your life now.

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evee | @evee | Jul 16, 2023
In reply to @briancl "I started chemo (12 sessions plus 2 days on chemo pump after each session) and radiation..." + (show)
@briancl

I started chemo (12 sessions plus 2 days on chemo pump after each session) and radiation (6 weeks every day) treatment shortly after diagnosis, starting in November 2022. After that treatment my surgeon performed a colonoscopy and said that he can't see any signs of cancer. I have to check again in 5 weeks but it seems that the treatment worked. It was the best news that I have ever received so here's hoping that I get the same result in 5 weeks time.

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Am so happy for you. Would you please share where you are being treated. Thank you and my good thoughts and prayers are with you.

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1 reply
briancl | @briancl | Jul 17, 2023
In reply to @evee "Am so happy for you. Would you please share where you are being treated. Thank you..." + (show)
@evee

Am so happy for you. Would you please share where you are being treated. Thank you and my good thoughts and prayers are with you.

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I was diagnosed in Wellington, Fl., but decided to return to South Africa for treatment for various reasons. I am being treated by Hopelands Cancer Center, located in Busamed Hospital in Hillcrest, South Africa. My oncologist is Rob Wilson and the treatment and staff are world class.

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1 reply
evee | @evee | Jul 17, 2023
In reply to @briancl "I was diagnosed in Wellington, Fl., but decided to return to South Africa for treatment for..." + (show)
@briancl

I was diagnosed in Wellington, Fl., but decided to return to South Africa for treatment for various reasons. I am being treated by Hopelands Cancer Center, located in Busamed Hospital in Hillcrest, South Africa. My oncologist is Rob Wilson and the treatment and staff are world class.

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Thank you for the info. Am very appreciative. Unfortunately, I’m in NYC and very disappointed with my treatment at Cornell Weil. Stay healthy and my continued good wishes and prayers.

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rilk | @rilk | Jul 18, 2023
In reply to @becmcmanus "My husband also has stage 4 colon cancer metastasized to his liver—11 spots. Would you be..." + (show)
@becmcmanus

My husband also has stage 4 colon cancer metastasized to his liver—11 spots. Would you be willing to share what cancer center your husband received treatment at? He’s thinking he needs the HAI pump and looking for a cancer center for that. Thank you!

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I had colon cancer stage 4 metastisized to my liver 2 spots in 2004. I was 46 years old and on the heavy side. I went right to Sloan Memorial Kettering cancer center in Manhatten New york city. ( 2nd best in the country ) They first told me they were going to try to save my life. The surgeon first removed two tumors just under 3 cm and put in 2 pumps. One chemo pump for systematic chemo in my upper right chest and the HAI pump for the chemo in my side 3 inches under the skin for the chemo to go right to my liver. I think its a miracle I'm alive today. I was in a clinical trial run by Dr. Nancy Kemeny at Sloan Kettering hospital and its been 19 years and I'm still doing great, no cancer. I get a CAT scan of my chest, abdomen and pelvis once a year for a check up. Check to see if Dr. Nancy Kemeny is still putting HAi pumps.

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1 reply
evee | @evee | Jul 19, 2023
In reply to @rilk "I had colon cancer stage 4 metastisized to my liver 2 spots in 2004. I was..." + (show)
@rilk

I had colon cancer stage 4 metastisized to my liver 2 spots in 2004. I was 46 years old and on the heavy side. I went right to Sloan Memorial Kettering cancer center in Manhatten New york city. ( 2nd best in the country ) They first told me they were going to try to save my life. The surgeon first removed two tumors just under 3 cm and put in 2 pumps. One chemo pump for systematic chemo in my upper right chest and the HAI pump for the chemo in my side 3 inches under the skin for the chemo to go right to my liver. I think its a miracle I'm alive today. I was in a clinical trial run by Dr. Nancy Kemeny at Sloan Kettering hospital and its been 19 years and I'm still doing great, no cancer. I get a CAT scan of my chest, abdomen and pelvis once a year for a check up. Check to see if Dr. Nancy Kemeny is still putting HAi pumps.

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Thank you so much for this info. It gives me hope

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Moderator
Colleen Young, Connect Director | @colleenyoung | Aug 2, 2023
In reply to @becmcmanus "My husband also has stage 4 colon cancer metastasized to his liver—11 spots. Would you be..." + (show)
@becmcmanus

My husband also has stage 4 colon cancer metastasized to his liver—11 spots. Would you be willing to share what cancer center your husband received treatment at? He’s thinking he needs the HAI pump and looking for a cancer center for that. Thank you!

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@becmcmanus, you may wish to connect with members in this discussion:
- Hepatic artery infusion chemotherapy (HAIC) pump for liver mets https://connect.mayoclinic.org/discussion/haic-pump-for-liver-mets/

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | Aug 2, 2023
In reply to @lisaf64 "This just happened to my husband and coming here to find answers on what is next...." + (show)
@lisaf64

This just happened to my husband and coming here to find answers on what is next. So many questions.

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How are you and your husband doing, @lisaf64? What questions do you have?

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nrdl2879 | @nrdl2879 | Aug 3, 2023
In reply to @nrdl2879 "My husband has stage 4. Spread to lungs Diagnosed July 2022 had 12 chemo treatments with..." + (show)
@nrdl2879

My husband has stage 4. Spread to lungs Diagnosed July 2022 had 12 chemo treatments with terrible side effects. Has been on a 3 month chemo break. He has regained some of his strength. He has a PET scan July 18th. We are enjoying everyday but it is scary.

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Pet scan showed tumors in his lungs doubled in 3 months So back on chemo. I am so scared watching him going thru this again
This time the chemo will try to stop the spread and keep it from going to other organs

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