Treating Osteoporosis: What works for you?

Posted by heritage1955 @heritage1955, Apr 1, 2016

Hi. I'm new to the site and am interested in treating osteoperosis. I'm 39 yo and recently had a bone density that showed I'm at -2.4. So, going through the intial "I can't believe it" stuff. 🙂

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

jmbjar | @jmbjar | Sep 1, 2016

In reply to @susandockter "Hi Marty - so hard! What are you doing about it?" + (show)

Hi Mary
Have they checked your blood calcium again , was it still high ? If so , did they test your parathyroid hormone level ?

Jan

dolan | @dolan | Aug 31, 2016

I totally 'get it'. I had broken ribs sneezing, broken clavicle reaching for the phone...The shock....at 35 I fractured my T9 playing volleyball on July 4th. Really I was only raising my arms above my head. After multiple weeks of therapy and little relief of pain and back spasms I saw a spine specialist. He took an X-ray (1st one) and I found out about the fracture (Sept 10). I had my initial DEXA scan with -2.9 spine and -4.7 hips. Premenopausal and no history of osteoporosis. Started on Fosamax daily...worked for a while then tapered off...then 2 years of Forteo (worked wonderfully and wished I could have remained on that for longer but not suggested), then Fosamax weekly....At this time I was diagnosed with Systemic Mastocytosis because of the severe numbers on my scans and spots on skin. I was sent to Mayo and saw 3 doctors, many tests and a bone marrow biopsy (having extra mast cells in bones)...causing more brittleness. My osteoporosis specialist at home gave me a 'drug holiday' since I'd been on medication for so long and at a younger age. Plus with the diagnosis at Mayo...I ended up with chemo (Interferon) 3 x a week for 3 years. Then 2 years ago I slipped and broke my pelvis in 5 spots and was told no surgery since I have 90 year old bones. So after 11 weeks began Prolia. I am on the end of my 2nd year. Really was the only thing left for me to use. Hasn't worked as well as Forteo...but could be age as I'm now 60. I have had NO side effects from any of the medications.

emilia | @emiliaolga | Aug 23, 2016

In reply to @mohavegal "Hello, I'm new to this group. My osteoporosis is not improving and after a dexa scan..." + (show)

I am also taking Curcumin, specifically Curamed extrastrength and it has helped a lot with pain. Thank you for the Traumeel information. I am waiting to see if I find an alternative to Prolia which my endocrinologist has advised.

kayelle | @kayelle | Aug 17, 2016

In reply to @mohavegal "Hello, I'm new to this group. My osteoporosis is not improving and after a dexa scan..." + (show)

Great source of knowledge you mention and great exercies

Caress | @caress | Aug 16, 2016

In reply to @mohavegal "Hello, I'm new to this group. My osteoporosis is not improving and after a dexa scan..." + (show)

Hi, I came upon a book called "SaveourBones" Program by Vivian Goldschmidt, and read how these bisphosphonate drugs are not safe, serious side effects from these drugs. I take Vit. D 200mg. plus I try to get my calcium from food, almond milk, yogurt, cheese, green leafy veggies I'm praying this will help me with this osteoporosis.

karaokelady | @karaokelady | Aug 16, 2016

In reply to @mohavegal "Hello, I'm new to this group. My osteoporosis is not improving and after a dexa scan..." + (show)

I'm currently reading a book called Death By Calcium by Thomas E Levy, Md. It is making a whole lot of sense, if you are interested. I am following what was recommended. Hope this helps.

karaokelady | @karaokelady | Aug 16, 2016

Most dr's and health care people recommend Calcium but I have read a most interesting book called Death by calcium by Thomas E. Levy, Md. and following his advice. Makes so much sense.

emilia | @emiliaolga | Aug 9, 2016

In reply to @angelas "I, too, am interested in treatments for osteoporosis at a younger (50) age; however, postmenopausal. I..." + (show)

Thank you @arthritichands for your story, if you decided on Prolia, maybe i will not be so fearful and start with this medication too.

Caress | @caress | Jul 28, 2016

In reply to @gemma "I am 61 years old very active, running, cycling, tai-chi... my diet couldn't be better, I..." + (show)

I just read your message, I don't want to take these dangerous biophosphonates, so many bad side effects, i'll just keep
taking my Vit. D (2000) Calcium mostly from food, walking and hope for the best. If you can read SaveOurBones Program by V ivian
Goldschmidt.