1. < Osteoporosis & Bone Health

Treating Osteoporosis: What works for you?

Posted by heritage1955 @heritage1955, Apr 1, 2016

Hi. I'm new to the site and am interested in treating osteoperosis. I'm 39 yo and recently had a bone density that showed I'm at -2.4. So, going through the intial "I can't believe it" stuff. 🙂

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windyshores | @windyshores | Jul 22, 2022
In reply to @kilh "@windyshores Hope your visit with your daughter is great and that she noticed you are a..." + (show)
@kilh

@windyshores Hope your visit with your daughter is great and that she noticed you are a little stronger. That is great to know. You are lucky that driving is an option for you. Tymlos has been good for you without alot of side effects. I hope that soon I get to be driving again which would be a great help. The hare is far ahead of the tortoise and that is great. Take care and check in now and then. KLH

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Thank you friend! I have pain and cannot lift, but your challenges far surpass mine at the moment.

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1 reply
kilh | @kilh | Jul 22, 2022
In reply to @windyshores "@joan26 I can relate, with 7 spinal fractures. People don't realize how much pain and disability..." + (show)
@windyshores

@joan26 I can relate, with 7 spinal fractures. People don't realize how much pain and disability can result, as well as a loss of independence. I wonder if you have done or are doing any bone-building drugs like Tymlos, Forteo or Evenity.

I cannot do much but my daughter is visiting and noticing I am a little stronger than last year right after 4 of the fractures. Meaning, I can lift a little more. (I don't mention the pain.) I am on Tymlos.

I am lucky- I can drive. In fact the support of my car seat actually helps. Loss of driving would be tough since walking while carrying is hard.

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@windyshores Hope your visit with your daughter is great and that she noticed you are a little stronger. That is great to know. You are lucky that driving is an option for you. Tymlos has been good for you without alot of side effects. I hope that soon I get to be driving again which would be a great help. The hare is far ahead of the tortoise and that is great. Take care and check in now and then. KLH

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1 reply
bruceandruth1970 | @bruceandruth1970 | Jul 21, 2022

Thank you for your reply. What have you decided to do about your need for oral surgery?

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joan26 | @joan26 | Jul 21, 2022
In reply to @bruceandruth1970 "I had severe pain in my thigh after taking prolia for three years. It felt like..." + (show)
@bruceandruth1970

I had severe pain in my thigh after taking prolia for three years. It felt like I was trying to walk on a broken leg. It also caused bone loss in my jawbone, so I’m unable to have an implant.

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That was my experience as well - after a few years on Prolia several vertebrae fractured leaving me in a good deal of pain, and the oral surgeon my dentist recommended is reluctant to do an implant because I am on Prolia. I don't have many regrets in my life, but I do have one: ever going near Prolia!

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toni7 | @toni7 | Jul 20, 2022
In reply to @egrolman "Good question. I have that appointment with my doc next Monday after lab work and DEXA..." + (show)
@egrolman

Good question. I have that appointment with my doc next Monday after lab work and DEXA scan. I’ve read recently that the current thinking indicates you can stay on Forteo more than two years so if that’s possible, I’ll certainly consider that.

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Thank you. Please let us know your doctor's recommendation.

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egrolman | @egrolman | Jul 20, 2022
In reply to @toni7 "Good morning, I've heard mention that Forteo has minimal side effects. Has your doctor mentioned what..." + (show)
@toni7

Good morning,
I've heard mention that Forteo has minimal side effects. Has your doctor mentioned what treatment will be following Forteo?

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Good question. I have that appointment with my doc next Monday after lab work and DEXA scan. I’ve read recently that the current thinking indicates you can stay on Forteo more than two years so if that’s possible, I’ll certainly consider that.

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1 reply
toni7 | @toni7 | Jul 20, 2022
In reply to @egrolman "I’d like to put in a good word for Forteo, as I’m just now finishing up..." + (show)
@egrolman

I’d like to put in a good word for Forteo, as I’m just now finishing up my 2nd year with zero side effects. Never had a single problem with it beyond overcoming my early squeamishness about injecting myself. Have my DEXA next week and hoping for good things!

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Good morning,
I've heard mention that Forteo has minimal side effects. Has your doctor mentioned what treatment will be following Forteo?

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1 reply
bruceandruth1970 | @bruceandruth1970 | Jul 20, 2022
In reply to @toni7 "I have a question ... What are some side effects that you or someone you know..." + (show)
@toni7

I have a question ... What are some side effects that you or someone you know have experienced taking Prolia, Tymlos or Forteo? If you have had side effects, what are they and how did you deal with them? I'm more comfortable knowing firsthand what people (rather than clinical studies) deal with taking these drugs.
Thank you for your response!

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I had severe pain in my thigh after taking prolia for three years. It felt like I was trying to walk on a broken leg. It also caused bone loss in my jawbone, so I’m unable to have an implant.

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1 reply
ceciliamarypatriciafrancis | @ceciliamarypatriciafrancis | Jul 19, 2022
In reply to @toni7 "Did you have any side effects from Actonal? Thank you" + (show)
@toni7

Did you have any side effects from Actonal?
Thank you

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No, fortunately I was lucky with that - my only complaint was the $90 monthly co-pay. In retrospect it's a little scary having to take something with 8 or more ounces of water before eating and staying vertical for 30 minutes...why? I'm very obedient with doctors since I live in Yale land and have excellent providers. I've mentioned before that I recently finished a year-long expensive course of Evenity with great success, so I do what I'm told for the most part. I have had to go back on Actonel again, though to keep up the good work, so it never seems to end.

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toni7 | @toni7 | Jul 19, 2022
In reply to @ceciliamarypatriciafrancis "My one and only Prolia injection left me with an unusual side effect...within days I no..." + (show)
@ceciliamarypatriciafrancis

My one and only Prolia injection left me with an unusual side effect...within days I no longer was able to taste anything properly. I didn't lose my sense of taste; there was just a strange overlying taste. Coffee was especially foul. I refused to take any more Prolia and went back to Actonal. Belatedly reading this site, I saw so many scary side effects. In hundreds of posts, I saw only two about taste, one person described it as "burnt mouth".

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Did you have any side effects from Actonal?
Thank you

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