Treating Osteoporosis: What works for you?

Posted by heritage1955 @heritage1955, Apr 1, 2016

Hi. I'm new to the site and am interested in treating osteoperosis. I'm 39 yo and recently had a bone density that showed I'm at -2.4. So, going through the intial "I can't believe it" stuff. 🙂

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@prashantnayal123

Hi Everyone in june 2017 a had a leg fracture simply by stepping wrong foot and i am scared that i have osteoporosis and my weight is 83 kg i am so scared because when i googled for osteoporosis i found out that it has no cure and i cant go for test i am very poor i dont know what to do

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I do not think you need to worry unless you over 65,or more likely, 75.

Check Mayoclinic.org for osteoporosis. You might also get a battery of blood tests to see your Calcium and Vit D3 values.

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Hi Everyone in june 2017 a had a leg fracture simply by stepping wrong foot and i am scared that i have osteoporosis and my weight is 83 kg i am so scared because when i googled for osteoporosis i found out that it has no cure and i cant go for test i am very poor i dont know what to do

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@ujeeniack

I am now 83,male,heavy, and getting my first bone density scan in at least eight to ten years. Results show Osteopenia,the state just before Osteoporosis.

I would advise anyone over 65 to get this scan.

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Y’all can add me to the osteoporosis group if I am not already as I have that too.  Note, Fosamax and calcium and exercise and my readings are up 4% from my bone scan 2 years ago.

Steve  

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@ujeeniack

I am now 83,male,heavy, and getting my first bone density scan in at least eight to ten years. Results show Osteopenia,the state just before Osteoporosis.

I would advise anyone over 65 to get this scan.

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My Vit. D3 was borderline low in mid August. Calcium,Sodium,Potassium and Phosphate Normal.

Thanks.

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Nothing:I wlll review my Calcium and Phosphorus levels, as well as Vit D3.

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@ujeeniack

I am now 83,male,heavy, and getting my first bone density scan in at least eight to ten years. Results show Osteopenia,the state just before Osteoporosis.

I would advise anyone over 65 to get this scan.

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Hi @ujeeniack
I moved your message to this existing discussion about treating osteopenia and osteoporosis where you can meet others managing this condition like @gailb @jo54 @dolan @rnwholovedtowork @painwarrior @marield65 and others.

Ujeeniack, what treatment or lifestyle changes did your doctor suggest to help prevent or slow the progress from osteopenia to osteoporosis?

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I am now 83,male,heavy, and getting my first bone density scan in at least eight to ten years. Results show Osteopenia,the state just before Osteoporosis.

I would advise anyone over 65 to get this scan.

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@junegreen

You are young to have osteoporosis! I encourage you to pursue why you do. Same with me and eventually found out it can be a symptom of other disease. In my case something called CVID or common variable immune deficiency. Good luck!

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How do you get your general practitioner to pursue further testing? Before I begin medication I want to know why I have osteoporosis based on a DXA scan only. She did a thyroid hormone function test ( 1.02), a celiac disease panel (negative) and a 25 Hydroxy Vitamin D (46 ng/mL). I live where there are not specialists for osteoporosis. Any thoughts? Thanks!

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@rnwholovedtowork

I also only took the oral medication for a short time. Probably should have continued. Now I have seen a Rheumatologist and she suggested Prolia or Forteo. I am due to start the Forteo after some dental work, and feel better about it since hearing from those of you who have taken it. I recently hit another snag------I had 4 episodes of rapid heartbeat. Don't know what type. I am now wearing a Holter monitor for 2 weeks and then am scheduled for an Echocardiogram to Rule out any Mitral Valve Issues. I, like some others of you did not follow up the way I should have after I had my first fracture, bu the Rheumatologist did not tell me nothing could be done. In fact she told me that I was past the point for taking the oral meds and suggested the Forteo. My out of pocket cost will be $100 per month for the 2 years (Hopefully, the price will not continue to go up), however I am ok with the cost if the Forteo actually builds bone for me. I will post my activity with the Forteo after I can get it started. Good luck to all of you that are having similar problems. Glad we can discuss these problems on this thread.

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Yes, I'd love to hear the progress!

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I appreciate all those who have written about your experiences both with taking Forteo and Prolia while still osteopenic, and those who waited until they had full blown osteoporosis. I am osteopenic now and I have been resisting my doctor's recommendation that I start taking Prolia. I resisted because of the negative information I have read and heard about the side effects. However, I am now willing to try it out. I don't want to go into osteoporosis, and I have broken 2 bones in the past 5 years; my first ever broken bones. I'm 68 years old now and will turn 69 in December. Thanks to everyone for your willingness to discuss what you have been through as it has helped me make my decision. I will see my PCP in September.

Warm regards, Gail B. Ledesma aka @gailb

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