Treating Osteoporosis: What works for you?

Posted by heritage1955 @heritage1955, Apr 1, 2016

Hi. I'm new to the site and am interested in treating osteoperosis. I'm 39 yo and recently had a bone density that showed I'm at -2.4. So, going through the intial "I can't believe it" stuff. 🙂

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@artscaping

Hi, GailBL, thanks for the suggestion. I was on Medicare Advantage for 10 years. When their profits dropped in Southern California because too many seniors lived there, they made MA totally unavailable. I now live and register in MN. So I am on my second year of MN with a CA add on just in case I stub my toe while there.

I will ask my agent in plenty of time.
May you be free and content.
Chris

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Some follow up @gailb. I checked on my Supplement. It is the "F" package that will only be available after January 2021 (or was it 2020) with the Medicare Supplement programs, not the Advantage programs because of other services provided by independent insurance companies. Thanks again for you help.
Chris

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@contentandwell

I came across this article this morning and it is interesting. Please, be aware of your sources when you are investigating treatments.

Dr. Karpf’s Response to Bone Drugs Article
https://americanbonehealth.org/medications-bone-health/dr-karpfs-response-to-bone-drugs-article/
JK

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Thank you for this; I wasn't aware of this organization. The exercises they show are helpful.

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I came across this article this morning and it is interesting. Please, be aware of your sources when you are investigating treatments.

Dr. Karpf’s Response to Bone Drugs Article
https://americanbonehealth.org/medications-bone-health/dr-karpfs-response-to-bone-drugs-article/
JK

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@nancyguy

Thank you, Nancy 1228, for your reply. Certainly seems like the stress caring for your parents and loss of weight, etc. caused the drop. I am going to research holistic treatment more extensively. I wish you the best of luck. Saying a prayer that you will find the best option for your health.

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Thank you. I wish you the best of luck and prayers as well. I keep reading these forums and follow a couple FB groups recommended by @parrotqueen. The shared knowledge and experiences of all of us is valuable as we research our best health options.

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Many times I have come here or to other medical chats and I have encouraged people to pay attention to their bodies and communicate with their doctors - instead of just doing what the doctor tells you to do and accepting unwelcome consequences. This has been met with a lot of criticism. I came across a doctor who said basically all the same things I am saying. Here is just a small snippet of what they said, "We operate from a deeply held conviction that in the long run each person is his or her own best physician. Practitioners may have greater medical knowledge and technical expertise, but there is no one who knows more about what is best for this patient, on the deepest level, than the patient. He or she has traveled roads on the life journey that we have not. The health challenges he or she faces are a part of that journey, and practitioners are privileged to be able to grow and learn from the people they work with." This can be found in a subchapter called "Be An Actualized Patient" in a book called "Thyroid Power: 10 Steps to Total Health" by Richard L. Shames M.D. and marilee Halo Shames, R.N., Ph.D. This book talks about many health care concerns - not just thyroid. I highly recommend this book to anybody who is seeking better health and a way to communicate with doctors. As I always say, doctors have enormous case loads and there are SO MANY medications and diseases and conditions for them to keep track of. Even the best doctor may only know a little about each problem. And they cannot be inside your body - so they have no idea how you are feeling when you take a medication. If you just want to read this one section, it is on pages 101-104. These doctors encourage the patient to speak up and communicate with their doctor - don't just listen and comply.

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@nancy1228

Hi Nancy. Also having the same name. Your situation is very similar to mine. I have been on alendronate for a year and a half and am seriously considering stopping. These forums and other sites have been helpful in researching the drugs and meds as well as provide nutritional info. I was Taking Evista a year and actually my numbers which were osteopenia improved 1%. my gyn dr. Didn’t think that was good enough. She really pushed bisphosphonates. Because I was experiencing so many hot flashes I switched to alendronate. Well a year with that and my numbers dropped over 3%. It was a horrible time where I had been caring for aging parents 1000 miles away. I lost 13 pounds and know I wasn’t eating well or keeping up with vitamins. My numbers weren’t bad to begin with. Even the endocrinologist thought so. My next dexa scan is in December. His NP said if I don’t improve the next step is Prolia. I was reading the brochure waiting in exam room. No way will I start that. So I appreciate input from folks like you on these forums as we navigate the best options for our health.

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Thank you, Nancy 1228, for your reply. Certainly seems like the stress caring for your parents and loss of weight, etc. caused the drop. I am going to research holistic treatment more extensively. I wish you the best of luck. Saying a prayer that you will find the best option for your health.

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@contentandwell

Thanks for the suggestion, @gailb, but I have considered it and for me it would just not work as well, from what I have heard there are too many restrictions, etc.

I almost missed your response. Since I am less active now and have joined the ranks of "alumni mentor" I don't go through all of them. It helps if you address the person with the @ and their name so they will be notified. My "name" is contentandwell.

@artscaping And those injections are daily, correct?
JK

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@contentandwell, That is correct. Tymlos injections are daily for at least 18 months.

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@nancyguy

Fosamax does not build bones. Supposedly, it helps maintain bones as they are. I have been taking it since last November; but am considering discontinuing it, because of numerous cases of femoral fractures, jaw problems, and some cases of cancer of the esophagus. Because I have had radiation for breast cancer, I cannot take any bone-building meds except Evenity--which I will not take because possible side effects include stroke and heart attack. The FDA refused to approve Evenity until (finally) April 2019. I take vitamin and mineral supplements, and exercise regularly. Of course, all of us must make our own decisions. Good luck to everyone!

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Hi Nancy. Also having the same name. Your situation is very similar to mine. I have been on alendronate for a year and a half and am seriously considering stopping. These forums and other sites have been helpful in researching the drugs and meds as well as provide nutritional info. I was Taking Evista a year and actually my numbers which were osteopenia improved 1%. my gyn dr. Didn’t think that was good enough. She really pushed bisphosphonates. Because I was experiencing so many hot flashes I switched to alendronate. Well a year with that and my numbers dropped over 3%. It was a horrible time where I had been caring for aging parents 1000 miles away. I lost 13 pounds and know I wasn’t eating well or keeping up with vitamins. My numbers weren’t bad to begin with. Even the endocrinologist thought so. My next dexa scan is in December. His NP said if I don’t improve the next step is Prolia. I was reading the brochure waiting in exam room. No way will I start that. So I appreciate input from folks like you on these forums as we navigate the best options for our health.

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@gailb

@jk

Have you looked into Medicare Advantage for your coverage? I switched 2 years ago and my husband, who's also on MA, and I are both happy with it. We are on the Kaiser Permanente Orange County plan, and although we have co-pays, it's still less than my former Medicare along with Supplemental Insurance. MA covers medication, and I pay an extra $20/month for dental, hearing, eye care, and gym membership. Medicare Advantage costs only the monthly Medicare cost of $140. The yearly deductible is less than my previous Medicare plus Supplemental.

You may find that it's a good thing for you. I recommend that you check it out.

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Thanks for the suggestion, @gailb, but I have considered it and for me it would just not work as well, from what I have heard there are too many restrictions, etc.

I almost missed your response. Since I am less active now and have joined the ranks of "alumni mentor" I don't go through all of them. It helps if you address the person with the @ and their name so they will be notified. My "name" is contentandwell.

@artscaping And those injections are daily, correct?
JK

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@gailb

@jk

Have you looked into Medicare Advantage for your coverage? I switched 2 years ago and my husband, who's also on MA, and I are both happy with it. We are on the Kaiser Permanente Orange County plan, and although we have co-pays, it's still less than my former Medicare along with Supplemental Insurance. MA covers medication, and I pay an extra $20/month for dental, hearing, eye care, and gym membership. Medicare Advantage costs only the monthly Medicare cost of $140. The yearly deductible is less than my previous Medicare plus Supplemental.

You may find that it's a good thing for you. I recommend that you check it out.

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I was checking out Kaiser Permanente a few years back. They turned me down. I'm not kidding. They said I was too sick. So I think Kaier is fine until you get sick(er(. You get a lot of services for your money.

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