Treating Osteoporosis: What works for you?

My immune system is a little awry (lupus). I assume that is why. With a score of -3.4 can you go on Tymlos, Forteo or Evenity to grow bone before Prolia or Reclast? I have read that using Prolia first can interfere with the effectiveness of the bone-growing drugs and that the docs (and insurance0 have the sequence backwards. Check to see what your insurance will allow. Do you have any fractures? Have you tried Fosamax? The latter two things can help get insurance coverage for the anabolics.

Hi @windyshores Did your doc share why he didn't like Prolia for you? (I am getting ready to go on Prolia next month and I am unsure if that's the best solution for me). I am -3.4 currently. Many thanks for any info you may have!

You can take Evenity after Tymlos. That is my plan if I can do it. After Evenity, I was advised one Reclast infusion and then I will try some natural methods, be monitored and hope to minimize or stay off drugs. My doc does not want Prolia for me.

Hi, Thank you for your message. I am starting with once weekly OsteoStrong, which means once week osteogenic work, an appointment with an integrative MD at Northwestern Medicine in Chicago, and continuing to try to find information about how to treat osteoporosis without the biosphosphonates. I just ended one year of Tymlos, and there have to be other solutions than just jumping on Reclast or an oral bisphonsphates. I would not take Prolia. My mom developed osteonecrosis after five years on Fosamax (early 2000s) and had spinal fracture while she took the Fosamax - so I have not wanted to take the bisphosphonates. I know stress reduction, diet (I also eat a lot of spinach and 5 prunes daily) and weightbearing exercise help. Do you know about AlgaeCal or Dr. Susan Brown of Save Our Bones? https://saveourbones.com/ I wish you well, and will update if I find any promising treatments.

Hi, Thank you for your message. I am starting with once weekly OsteoStrong, which means once week osteogenic work, an appointment with an integrative MD at Northwestern Medicine in Chicago, and continuing to try to find information about how to treat osteoporosis without the biosphosphonates. I just ended one year of Tymlos, and there have to be other solutions than just jumping on Reclast or an oral bisphonsphates. I would not take Prolia. My mom developed osteonecrosis after five years on Fosamax (early 2000s) and had spinal fracture while she took the Fosamax - so I have not wanted to take the bisphosphonates. I know stress reduction, diet (I also eat a lot of spinach and 5 prunes daily) and weightbearing exercise help. Do you know about AlgaeCal or Dr. Susan Brown of Save Our Bones? https://saveourbones.com/ I wish you well, and will update if I find any promising treatments.

You can cure osteoporosis in several ways. The protein, calcium, vitamin D and exercise can treat your osteoporosis.

<p>Has anyone received their 1st BMD scan with a low t-score, like -3.1 in the spine, and been prescribed Forteo? I'm 50 and a little freaked out as I thought I doing a baseline BMD scan. I have no underlying conditions that can explain the extremely low score. Family history of estrogen-receptive cancer puts HRT out of the question. I would like to wait a year, increase calcium/vit D/exercise, and get another scan. Thoughts?</p>

Thanks for your feedback, Sue. My mother took Prolia and ended up in the hospital with severe low blood calcium. So, I'm reluctant to start that drug. Also, my Endo did say what you have commented, that with Prolia there is no stopping it. Doctor favored Reclast over Prolia because she indicated Reclast stays in the body longer once you stop infusions, thereby being able to take off a year or two. I am very active, exercise, eat super healthy, take additional vitamins, and am otherwise healthy. It's just my bones that are in such poor shape! I'm very frustrated by the fact that women with osteoporosis just don't have better options!

Good evening @kstoller22, Welcome to Connect. I was so glad to see you telling us that you are new on this path. If you are speaking about the world of osteoporosis and all of its options and afflictions, we are all sort of new to this part of the aging process. Remember though that as we keep pushing the aging envelope higher and higher, we run into more and more of our body parts that encounter some roadblocks, and others that just need a lot of help from the food we eat and the exercises we do in hopes that we are doing our best to live a healthy life, rich on the quality side with family, friends, activities, and experiences and attentive on the quantity side to make sure we are doing everything we can to age peacefully and without undue pain and suffering.

As time passes we find that osteoporosis often creeps up and weakens our bones. There are quite a few different strategies to deal with this inadequacy. Some of us are on a natural path. Some of us need help from medications and supportive regimens. What we have been doing for the last few months is trying to get all of us to join together as we encounter different options and choices. It appears that we all will have to make some pretty major decisions. There is no one solution for all. There are medically trained clinicians who will help us learn about osteopenia and then osteoporosis. There are folks on Connect who will share their helpful stories.

What are you considering at this point @kstoller22? Would you be comfortable sharing more of your medical situation and whatever in your life has led you to this point?

May you be safe and protected from inner and outer harm.

Chris