Treating Osteoporosis: What works for you?

@dagmarswift are you thinking of trying Forteo since Prolia didn't do much? Or what is your next step? Were you on Prolia for a couple years? Sorry for all the questions but I think you have great experience with this! Thank you so much for all the info!!! 🙂

My score did not change that much . Similar to your score . It good but not terrible. Once off Prolia …bone begins to ‘go away’. It’s not ‘quality’ bone that was grown . It kind of crumbles away so to speak once off it.
If I knew that if I wanted to stop and ‘really’ can’t without the real possibility of multiple spinal fractures I never would have started it. There is a lot to read learn and study about Prolia … I should have not just listened to my doctor …. But then again a lot of doctors don’t know . I have researched and armed myself with a lot of information.
Just wish I’d never gotten Into it … but am moving forward.

Hi @dagmarswift 🙂 Thank you for joining in! What is your current T score and how are you treating it? Did your score go down after stopping Prolia or did it remain the same? (I need to do something with my score -3.4).

Hi @artscaping ! Unfortunately I don't know the answer to your questions either. I am hoping @windyshores may know 🙂 I have the same questions. My local endocrinologist was not very clear on all of the options. He recommended Prolia because I didn't have a fracture yet. I am not totally confident that a -3.4 score should be treated with Prolia instead of something like Forteo.

Good afternoon @hello1234, @windyshores, I am very interested in this issue of which comes first. My endocrinologist told me that only Tymlos, Forteo, and Evenity have the ability to grow new bone. Prolia was the medication recommended to me to maintain the progress made with Tymlos over a two-year span of injections.
Prolia infusions are twice a year........and are possibly a lifetime medication in order to prevent fractures that are known to occur when Prolia is discontinued or interrupted. What have you learned and please share how the information was given to you?

May you have peace and ease today.
Chris

Good afternoon @hello1234, @windyshores, I am very interested in this issue of which comes first. My endocrinologist told me that only Tymlos, Forteo, and Evenity have the ability to grow new bone. Prolia was the medication recommended to me to maintain the progress made with Tymlos over a two-year span of injections.
Prolia infusions are twice a year........and are possibly a lifetime medication in order to prevent fractures that are known to occur when Prolia is discontinued or interrupted. What have you learned and please share how the information was given to you?

May you have peace and ease today.
Chris

I don’t know that there is that big of a difference between Prolia and Evenity. They are both products of Amgen and they both scare me. Got off Prolia after one shot …. But once you take these you’re in the Prolia trap.

Hi @windyshores Did your doc share why he didn't like Prolia for you? (I am getting ready to go on Prolia next month and I am unsure if that's the best solution for me). I am -3.4 currently. Many thanks for any info you may have!

Hi @windyshores , I haven't had a fracture so my endocrinologist said I can start with Fosamax or Prolia. He said he would use Forteo if I broke something. He is suggesting Prolia over Fosamax because the number is bad and he wants more power up front and then if things go well, his plan is to move me to Fosamax. But I agree with you that something like Forteo makes more sense. Is it possible to switch to Forteo after taking Prolia? Is that an option if the Prolia doesn't work? Thanks so much for letting me know your experience!