Treating Osteoporosis: What works for you?

You can take Evenity after Tymlos. That is my plan if I can do it. After Evenity, I was advised one Reclast infusion and then I will try some natural methods, be monitored and hope to minimize or stay off drugs. My doc does not want Prolia for me.

Thank you @windyshores ! Now I understand why my doctor said "without fractures" he recommended Prolia instead of Forteo....it's"about the approval from Insurance. I thought he was following some type of diagnostic protocol. He said without a fracture he recommended Prolia or Fosamax instead of Forteo. Thank you for the education!! 🙂

My immune system is a little awry (lupus). I assume that is why. With a score of -3.4 can you go on Tymlos, Forteo or Evenity to grow bone before Prolia or Reclast? I have read that using Prolia first can interfere with the effectiveness of the bone-growing drugs and that the docs (and insurance0 have the sequence backwards. Check to see what your insurance will allow. Do you have any fractures? Have you tried Fosamax? The latter two things can help get insurance coverage for the anabolics.

@hello1234, @windyshores, I now have the right words. Prolia prevents bone destroying elements from attacking the new bone you have built with one of the bone-building options, Forteo, Thymlos, or Evenity. It does not build bone. Hope that helps.

Hi there again #dagmarswift. Would you please share with us the reference about the "non-quality bone" that according to the way I read your post is grown with the help of Prolia? I only know Prolia as a medication that can prevent the wearing down of bone not the building of bone. I, too, respect your research efforts.
Thank you.
Chris

My score did not change that much . Similar to your score . It good but not terrible. Once off Prolia …bone begins to ‘go away’. It’s not ‘quality’ bone that was grown . It kind of crumbles away so to speak once off it.
If I knew that if I wanted to stop and ‘really’ can’t without the real possibility of multiple spinal fractures I never would have started it. There is a lot to read learn and study about Prolia … I should have not just listened to my doctor …. But then again a lot of doctors don’t know . I have researched and armed myself with a lot of information.
Just wish I’d never gotten Into it … but am moving forward.

I had only one shot! I started developing some side effects and decided to research . It’s a most controversial drug and the fact that once you start , it’s dangerous to ever stop! As I said that if I had known that from the beginning I NEVER would have taken it . So the only thing you can do to protect yourself coming off of Prolia is take a relay drug and the only relay drugs are bisphosphonates. ( I have a hiatal hernia and some reflux so that’s not helping me. ) I would stay on the bisphosphonates for x amount of time. However if I have a bad reaction I can stop immediately without the awful ramifications that Prolia can give you.

@artscaping ...one more question. What is your T score?

I had only one shot! I started developing some side effects and decided to research . It’s a most controversial drug and the fact that once you start , it’s dangerous to ever stop! As I said that if I had known that from the beginning I NEVER would have taken it . So the only thing you can do to protect yourself coming off of Prolia is take a relay drug and the only relay drugs are bisphosphonates. ( I have a hiatal hernia and some reflux so that’s not helping me. ) I would stay on the bisphosphonates for x amount of time. However if I have a bad reaction I can stop immediately without the awful ramifications that Prolia can give you.

Hi @artscaping ! Unfortunately I don't know the answer to your questions either. I am hoping @windyshores may know 🙂 I have the same questions. My local endocrinologist was not very clear on all of the options. He recommended Prolia because I didn't have a fracture yet. I am not totally confident that a -3.4 score should be treated with Prolia instead of something like Forteo.