1. < Osteoporosis & Bone Health

Treating Osteoporosis: What works for you?

Posted by heritage1955 @heritage1955, Apr 1, 2016

Hi. I'm new to the site and am interested in treating osteoperosis. I'm 39 yo and recently had a bone density that showed I'm at -2.4. So, going through the intial "I can't believe it" stuff. 🙂

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

JK | @contentandwell | Oct 4, 2021
In reply to @windyshores "You can take Evenity after Tymlos. That is my plan if I can do it. After..." + (show)
@windyshores

You can take Evenity after Tymlos. That is my plan if I can do it. After Evenity, I was advised one Reclast infusion and then I will try some natural methods, be monitored and hope to minimize or stay off drugs. My doc does not want Prolia for me.

Jump to this post

@windyshore I am on Tymlos. Evenity is also a bone-building drug, and you can take it after Tymlos? Is it as costly as Tymlos? I am only about 6 months along on Tymlos but I'm trying to understand what the best options will be after I finish two years on it.
JK

REPLY
1 reply
windyshores | @windyshores | Oct 4, 2021
In reply to @hello1234 "Thank you @windyshores ! Now I understand why my doctor said "without fractures" he recommended Prolia..." + (show)
@hello1234

Thank you @windyshores ! Now I understand why my doctor said "without fractures" he recommended Prolia instead of Forteo....it's"about the approval from Insurance. I thought he was following some type of diagnostic protocol. He said without a fracture he recommended Prolia or Fosamax instead of Forteo. Thank you for the education!! 🙂

Jump to this post

You also can get coverage for Tymlos or Forteo if you try the other meds and cannot take them. I forget if you have to try one or two. It is counterproductive for the insurance companies in the long run to do it this way!

REPLY
hello1234 | @hello1234 | Oct 4, 2021
In reply to @windyshores "My immune system is a little awry (lupus). I assume that is why. With a score..." + (show)
@windyshores

My immune system is a little awry (lupus). I assume that is why. With a score of -3.4 can you go on Tymlos, Forteo or Evenity to grow bone before Prolia or Reclast? I have read that using Prolia first can interfere with the effectiveness of the bone-growing drugs and that the docs (and insurance0 have the sequence backwards. Check to see what your insurance will allow. Do you have any fractures? Have you tried Fosamax? The latter two things can help get insurance coverage for the anabolics.

Jump to this post

Thank you @windyshores ! Now I understand why my doctor said "without fractures" he recommended Prolia instead of Forteo....it's"about the approval from Insurance. I thought he was following some type of diagnostic protocol. He said without a fracture he recommended Prolia or Fosamax instead of Forteo. Thank you for the education!! 🙂

REPLY
1 reply
windyshores | @windyshores | Oct 3, 2021
In reply to @artscaping "@hello1234, @windyshores, I now have the right words. Prolia prevents bone destroying elements from attacking the..." + (show)
@artscaping

@hello1234, @windyshores, I now have the right words. Prolia prevents bone destroying elements from attacking the new bone you have built with one of the bone-building options, Forteo, Thymlos, or Evenity. It does not build bone. Hope that helps.

Jump to this post

Prolia is an anti-resorptive, Forteo and Tymlos are anabolics. The important point is that Prolia should come after the anabolics but insurance companies cover Prolia first.

REPLY
dagmarswift | @dagmarswift | Oct 3, 2021
In reply to @artscaping "Hi there again #dagmarswift. Would you please share with us the reference about the "non-quality bone"..." + (show)
@artscaping

Hi there again #dagmarswift. Would you please share with us the reference about the "non-quality bone" that according to the way I read your post is grown with the help of Prolia? I only know Prolia as a medication that can prevent the wearing down of bone not the building of bone. I, too, respect your research efforts.
Thank you.
Chris

Jump to this post

Once you go off Prolia you are at risk for multiple spinal fractures… the reason you must have relay drug , bisphosphonates. I believe in in some of Prolias own info they might now be mentioning’ this .
However I have many many xeroxed pages from research done not only in US but Canada, Australia, UK. This drug is not they old ,( pulled off market once ) and still lots not known. The side effects were too much for me so sought info that had not been given to me by medics . Just research as much as you can. So important to know and understand what we do or put into our bodies .

REPLY
Mentor
Chris Trout, Volunteer Mentor | @artscaping | Oct 3, 2021
In reply to @dagmarswift "My score did not change that much . Similar to your score . It good but..." + (show)
@dagmarswift

My score did not change that much . Similar to your score . It good but not terrible. Once off Prolia …bone begins to ‘go away’. It’s not ‘quality’ bone that was grown . It kind of crumbles away so to speak once off it.
If I knew that if I wanted to stop and ‘really’ can’t without the real possibility of multiple spinal fractures I never would have started it. There is a lot to read learn and study about Prolia … I should have not just listened to my doctor …. But then again a lot of doctors don’t know . I have researched and armed myself with a lot of information.
Just wish I’d never gotten Into it … but am moving forward.

Jump to this post

Hi there again #dagmarswift. Would you please share with us the reference about the "non-quality bone" that according to the way I read your post is grown with the help of Prolia? I only know Prolia as a medication that can prevent the wearing down of bone not the building of bone. I, too, respect your research efforts.
Thank you.
Chris

REPLY
1 reply
Mentor
Chris Trout, Volunteer Mentor | @artscaping | Oct 3, 2021
In reply to @dagmarswift "I had only one shot! I started developing some side effects and decided to research ...." + (show)
@dagmarswift

I had only one shot! I started developing some side effects and decided to research . It’s a most controversial drug and the fact that once you start , it’s dangerous to ever stop! As I said that if I had known that from the beginning I NEVER would have taken it . So the only thing you can do to protect yourself coming off of Prolia is take a relay drug and the only relay drugs are bisphosphonates. ( I have a hiatal hernia and some reflux so that’s not helping me. ) I would stay on the bisphosphonates for x amount of time. However if I have a bad reaction I can stop immediately without the awful ramifications that Prolia can give you.

Jump to this post

Thank you @dagmarswift for the contribution of your experience with Prolia. You are correct about the implementation of a relay drug. I think I have to be on Prolia regardless as I am highly sensitive to any of the bisphosphonates and had various SE. Tymlos was brought in and that worked well without any side effects.
Chris

REPLY
Mentor
Chris Trout, Volunteer Mentor | @artscaping | Oct 3, 2021
In reply to @hello1234 "@artscaping ...one more question. What is your T score?" + (show)
@hello1234

@artscaping ...one more question. What is your T score?

Jump to this post

@hello1234, I have metal boxes in my cervical spine to hold my neck together and cannot have a scan of the spine. It may be possible to interpret a reasonable T score especially if you have had vertebrae fractures. Another imagining system was used to determine if I had any fractures in my spine. I have none.

May you be free, protected and safe from inner and outer harm.
Chris

REPLY
1 reply
hello1234 | @hello1234 | Oct 3, 2021
In reply to @dagmarswift "I had only one shot! I started developing some side effects and decided to research ...." + (show)
@dagmarswift

I had only one shot! I started developing some side effects and decided to research . It’s a most controversial drug and the fact that once you start , it’s dangerous to ever stop! As I said that if I had known that from the beginning I NEVER would have taken it . So the only thing you can do to protect yourself coming off of Prolia is take a relay drug and the only relay drugs are bisphosphonates. ( I have a hiatal hernia and some reflux so that’s not helping me. ) I would stay on the bisphosphonates for x amount of time. However if I have a bad reaction I can stop immediately without the awful ramifications that Prolia can give you.

Jump to this post

Thank you @dagmarswift for all this information regarding Prolia! I really appreciate your heads up and advice. I am definitely going to do some additional research before proceeding! Have a nice evening and love to you.

REPLY
Mentor
Chris Trout, Volunteer Mentor | @artscaping | Oct 3, 2021
In reply to @hello1234 "Hi @artscaping ! Unfortunately I don't know the answer to your questions either. I am hoping..." + (show)
@hello1234

Hi @artscaping ! Unfortunately I don't know the answer to your questions either. I am hoping @windyshores may know 🙂 I have the same questions. My local endocrinologist was not very clear on all of the options. He recommended Prolia because I didn't have a fracture yet. I am not totally confident that a -3.4 score should be treated with Prolia instead of something like Forteo.

Jump to this post

@hello1234, @windyshores, I now have the right words. Prolia prevents bone destroying elements from attacking the new bone you have built with one of the bone-building options, Forteo, Thymlos, or Evenity. It does not build bone. Hope that helps.

REPLY
1 reply
View MoreView Less
Please sign in or register to post a reply.