Treating Osteoporosis: What works for you?

Posted by heritage1955 @heritage1955, Apr 1, 2016

Hi. I'm new to the site and am interested in treating osteoperosis. I'm 39 yo and recently had a bone density that showed I'm at -2.4. So, going through the intial "I can't believe it" stuff. 🙂

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@windyshores

There can be withdrawal from a PPI. Your system adjusts and actually may make more acid, which continues when you go off until your system adjusts to the new norm. It can help to use Zantac or Pepcid as a sort of bridge. I do 20mg then 10mg to help with withdrawal. It is possible that PPI's contribute to osteoporosis, I have read, but GERD is tough- I know!

Jump to this post

thanks, I will bridge with Pepcid.

REPLY
@cheriums

L.Reuteri? Add zinc to that regimen.

Jump to this post

L. Reuteri is a probiotic that is being studied for its relation to bone health. Do you know what form and dosage of zinc supports bone health? Thanks!

REPLY

New to this site. What is a PPI, please.

REPLY
@smyth2022

I am a 85 year old woman with Osteoporosis. I was on Aromasin for 5 years after breast Cancer and went from Osteopenia to Osteoporosis. I had a yearly infusion of Reclast for five years, which not only stopped further bone loss, but slightly bettered my numbers. I have taken a brake from any meds for 5 years and my last Dexa scan showed osteoporosis. My doctor suggested Evivity, but I am reluctant because of the possible negative effects on cardio and higher risk of stroke. I am of normal weight and have only lost 1" of height. I am physically active (walking, dancing, gardening). I had a PA 3 years ago, of unknown cause, and am on a anti coagulant (Eliquis). My BP is controlled as is cholesterol. I have no known heart problems, kidneys and liver are fine. I am on A PPI for Acid reflux and had flare-ups of gastritis. I am leaning to take another infusion of Reclast as opposed to starting Evivity. My doctor also gave me the choice of Forteo, but I have ruled it out. She is waiting for me to make up my mind, having given me the pros and cons of all three medications. Since my remaining "lifespan" also needs to be considered, and the females in my family tend to life into their 90th, it is also a matter of quality of life. I have never had a broken bone, but I understand when it happens at my age, it may lead to death within a year. Any suggestions?

Jump to this post

I plan to start Evenity soon. Since my family has a history of heart issues my doctor suggested getting a Coronary Artery Calcium Score which is a CT scan to see if I would be susceptible to risk of stroke etc. My score came out to be the best possible. Have read that it would not be advisable to take Evenity if you have heart issues in the last year or two... As I understand it, Evenity doesn't cause issues in a healthy heart. Read up on what is available online, be factually equipped on whatever you do. Good luck!

REPLY
@heusty

I was on Prolia for 2 years and stopped due to frequent sinus infections and rashes, then went back on Fosomax. I suffered 3 spinal fractures within 2 months of stopping Prolia. I wish I’d never started Prolia. Just be very careful if u stop. I’m not sure if the risk lessens as time goes on after stopping. I’m going to try Evenity i believe to build my bones back up. Then not sure. I hope for the best for you. It’s a hard decision.

Jump to this post

I definitely will not risk getting those fractures. In order to have this molar extracted, the endocrinologist said it is okay to go 7 months between injections (and as you unfortunately have shown the fractures can happen as early as 2 months after stopping). Sorry that you had this experience.
Unfortunately, due to G.I. issues, Fosamax is contraindicated. So it's either Prolia or Reclast for me at this point. (Unless endocrinologist suggests otherwise). I really dont like any of the osteoporosis drugs.
Thanks for sharing.

REPLY
@sue225

Wish I was brave enough to just stop .Prolia creates problems if you need/want a dental implant. Even when it comes to extracting the tooth, which just happened, the oral surgeon told me Prolia changes the bone making it much more rigid. The oral surgeon is reluctant to do the implant unless I am off Prolia for 6months. I know the endocrinologist will strongly advise against that and recommend switching to Reclast or Aclasta as it is known in Canada. I really dislike the thought of Aclasta more than I dislike being on Prolia. Also the oral surgeon doesn't like bisphosphonates either when it comes to bone turnover in the jaw! (And he mentioned the danger of osteonecrosis of the jaw).
If a crystal ball could tell me I would be one of the lucky ones to escape spontaneous vertebral fractures I would discontinue Prolia in a heartbeat!

Jump to this post

I was on Prolia for 2 years and stopped due to frequent sinus infections and rashes, then went back on Fosomax. I suffered 3 spinal fractures within 2 months of stopping Prolia. I wish I’d never started Prolia. Just be very careful if u stop. I’m not sure if the risk lessens as time goes on after stopping. I’m going to try Evenity i believe to build my bones back up. Then not sure. I hope for the best for you. It’s a hard decision.

REPLY

Agree! I am 68 and have been active all my life. I have increased the weight bearing exercise and better about taking calcium and D. Could not believe I have osteo in my lumbar. Hope to avoid any of those meds if I can !

REPLY
@smyth2022

I have had digestive problems for a long time. But I will get off the PPI and try one of the other acid suppressants. My diet is considering my problems. I also heard the PPI's can contribute to bone thinning. Thanks for the comment!

Jump to this post

There can be withdrawal from a PPI. Your system adjusts and actually may make more acid, which continues when you go off until your system adjusts to the new norm. It can help to use Zantac or Pepcid as a sort of bridge. I do 20mg then 10mg to help with withdrawal. It is possible that PPI's contribute to osteoporosis, I have read, but GERD is tough- I know!

REPLY
@smyth2022

I have had digestive problems for a long time. But I will get off the PPI and try one of the other acid suppressants. My diet is considering my problems. I also heard the PPI's can contribute to bone thinning. Thanks for the comment!

Jump to this post

Cancel osteoporosis

REPLY
@cheriums

Try to get off the PPI. Decreased acid in your stomach decreases absorption of calcium and other minerals, such as iron. Adjusting your diet? Taking a supplement which keeps acid from coming up? See a gastroenterologist.

Jump to this post

I have had digestive problems for a long time. But I will get off the PPI and try one of the other acid suppressants. My diet is considering my problems. I also heard the PPI's can contribute to bone thinning. Thanks for the comment!

REPLY
Please sign in or register to post a reply.