Treating Osteoporosis: What works for you?

Posted by heritage1955 @heritage1955, Apr 1, 2016

Hi. I'm new to the site and am interested in treating osteoperosis. I'm 39 yo and recently had a bone density that showed I'm at -2.4. So, going through the intial "I can't believe it" stuff. 🙂

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@jbcobb2380

I am not taking the banned strontium ranelate. I take strontium citrate.

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I guess I assumed you were taking the citrate since ranelate is not available! However, it is not known if the same risks come with the citrate. Since the citrate is over the counter it is not regulated the same way as an Rx. But regardless, you have to be willing to give up accuracy in DEXA scans if you use strontium. That is the real issue.

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@lebanon100

I'm on PPI presently. Dr prescribed it for one month only, to be followed by Famotadine. He was emphatic about the one month. If symptoms persist, he advised to take the PPI when needed.

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Good doc! Some people are on PPI's forever. I gradually decreased the fomatadine, breaking it in half, then taking it only when needed if Tums didn't help.

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I am not taking the banned strontium ranelate. I take strontium citrate.

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@windyshores

There can be withdrawal from a PPI. Your system adjusts and actually may make more acid, which continues when you go off until your system adjusts to the new norm. It can help to use Zantac or Pepcid as a sort of bridge. I do 20mg then 10mg to help with withdrawal. It is possible that PPI's contribute to osteoporosis, I have read, but GERD is tough- I know!

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I'm on PPI presently. Dr prescribed it for one month only, to be followed by Famotadine. He was emphatic about the one month. If symptoms persist, he advised to take the PPI when needed.

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@jbcobb2380

You wait several hours after taking your calcium supplement which makes it doable. 680 mg. right before bedtime. Calcium in the morning and after evening meal. No strontium along with calcium.

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That was the dose recommended years ago. Since then, strontium ranelate has been banned in the EU. The strontium available as a supplement may or may not also present risk of clots and stroke. But the main problem is that since strontium is heavier than calcium, Dexa scans make bone density look better than it is after that dose of strontium over time. So there is skepticism when someone touts gains in bone density on that regimen. If you are willing to take it and not rely on DEXA, then no problem other than possible side effects (like Pharma meds).

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@windyshores

How much strontium are you taking? Strontium throws off bone density scans as you probably know.

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You wait several hours after taking your calcium supplement which makes it doable. 680 mg. right before bedtime. Calcium in the morning and after evening meal. No strontium along with calcium.

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@cheriums

I have five dental implants already, and a 6th in process now. I've known for years I don't dare take any of the above mentioned drugs because my dental needs are not at all likely to change. I inherited my mother's poor teeth. Despite listening well to her advice and instruction, and that of very good dentists, no amount of excellent dental care and hygiene at home prevents my losing teeth. I'm more afraid of osteonecrosis of the jaw than of vertebrae collapsing. Can we get a bone density scan which shows the vertebrae??

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I am the only one in my family with terrible teeth (maybe, like the osteoporosis comes from being misdiagnosed as a celiac until my 20's). Despite good dental care have had lots of tooth troubles. But these bones are at high fracture risk. So, it's a difficult situation.
There must be so many women now on osteoporosis meds who require invasive dental procedures. Wonder if there are studies that have been done.
Apparently osteonecrosis of the jaw is a rare occurrence. I agree though it is not something you want to experience.

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@sue225

Wish I was brave enough to just stop .Prolia creates problems if you need/want a dental implant. Even when it comes to extracting the tooth, which just happened, the oral surgeon told me Prolia changes the bone making it much more rigid. The oral surgeon is reluctant to do the implant unless I am off Prolia for 6months. I know the endocrinologist will strongly advise against that and recommend switching to Reclast or Aclasta as it is known in Canada. I really dislike the thought of Aclasta more than I dislike being on Prolia. Also the oral surgeon doesn't like bisphosphonates either when it comes to bone turnover in the jaw! (And he mentioned the danger of osteonecrosis of the jaw).
If a crystal ball could tell me I would be one of the lucky ones to escape spontaneous vertebral fractures I would discontinue Prolia in a heartbeat!

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I have five dental implants already, and a 6th in process now. I've known for years I don't dare take any of the above mentioned drugs because my dental needs are not at all likely to change. I inherited my mother's poor teeth. Despite listening well to her advice and instruction, and that of very good dentists, no amount of excellent dental care and hygiene at home prevents my losing teeth. I'm more afraid of osteonecrosis of the jaw than of vertebrae collapsing. Can we get a bone density scan which shows the vertebrae??

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@lillea

I plan to start Evenity soon. Since my family has a history of heart issues my doctor suggested getting a Coronary Artery Calcium Score which is a CT scan to see if I would be susceptible to risk of stroke etc. My score came out to be the best possible. Have read that it would not be advisable to take Evenity if you have heart issues in the last year or two... As I understand it, Evenity doesn't cause issues in a healthy heart. Read up on what is available online, be factually equipped on whatever you do. Good luck!

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Thank you! I will check on the test, but I doubt that my doc will prescribe it. I will research a bit more. I am taking Eliquis which, in itself , is a preventive of stroke and cardiac events.

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@ppat4pr

New to this site. What is a PPI, please.

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Proton Pump Inhibitors like Nexium

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