Treating Osteoporosis: What works for you?

Posted by heritage1955 @heritage1955, Apr 1, 2016

Hi. I'm new to the site and am interested in treating osteoperosis. I'm 39 yo and recently had a bone density that showed I'm at -2.4. So, going through the intial "I can't believe it" stuff. 🙂

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@betterhealth

I am starting Tymlos injections in a few weeks. I discussed starting on a lower injection other than '8' clicks to lessen side effects, and to allow my body to slowly get used to the medication. But my Doctor was not familiar with the option of giving injections at a lower dose? I am wondering if anyone has found this 'lower click' injection information on a website, or url anywhere that I can share with my Doctor? Or was the this information something that your Doctor verbally provided as an alternate option to make ajustment to the medication easier for you? Thank you for sharing!

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I looked up Tymlos and I found their patient information site. I just googled “Tymlos” and it popped up. It’s Tymlos.com. There is a lot of patient friendly information on their site and you can call their Clinical Educator at 1-855-730-8591 for information. Or if you have a question you can ask it on their online site. I admire your self advocacy. You know your body and your question can hopefully be answered with a phone call. Another source is your favorite pharmacist. Please post again and tell us what you learned, so we can learn from you.

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@windyshores

My doctor is head of endocrinology at one of the top hospitals in the world.
He knows I am sensitive to meds and was totally on board with me starting low. But I suggested it after having a bad reaction to the full dose. I also called Tymlos and told them they are losing customers because many cannot tolerate full dose and give up. This is a hormone, so your body adjusts to it.

If you are not sensitive to meds go ahead and try the full dose or a half dose and maybe you do better than I did. If you do react, don't give up on the drug and start lower.

If your MD doesn't support this I would either get a new doctor or understand that you can do what you want. It won't take long to get to the dose prescribed.

Do you ever take half a pill that is prescribed? These decisions are ours to make. Docs have to follow protocols and Tymlos was studied at full dose. They need evidence, not anecdotes. But the point is to get to full dose, and avoid stopping altogether, for some of us.

Docs like mine are flexible, but not all are. I told my doc that I was doing this and he was delighted. Even more delighted with me at 7 clicks now.

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Thank you for the information, it was very helpful! Take care!

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@betterhealth

I am starting Tymlos injections in a few weeks. I discussed starting on a lower injection other than '8' clicks to lessen side effects, and to allow my body to slowly get used to the medication. But my Doctor was not familiar with the option of giving injections at a lower dose? I am wondering if anyone has found this 'lower click' injection information on a website, or url anywhere that I can share with my Doctor? Or was the this information something that your Doctor verbally provided as an alternate option to make ajustment to the medication easier for you? Thank you for sharing!

Jump to this post

My doctor is head of endocrinology at one of the top hospitals in the world.
He knows I am sensitive to meds and was totally on board with me starting low. But I suggested it after having a bad reaction to the full dose. I also called Tymlos and told them they are losing customers because many cannot tolerate full dose and give up. This is a hormone, so your body adjusts to it.

If you are not sensitive to meds go ahead and try the full dose or a half dose and maybe you do better than I did. If you do react, don't give up on the drug and start lower.

If your MD doesn't support this I would either get a new doctor or understand that you can do what you want. It won't take long to get to the dose prescribed.

Do you ever take half a pill that is prescribed? These decisions are ours to make. Docs have to follow protocols and Tymlos was studied at full dose. They need evidence, not anecdotes. But the point is to get to full dose, and avoid stopping altogether, for some of us.

Docs like mine are flexible, but not all are. I told my doc that I was doing this and he was delighted. Even more delighted with me at 7 clicks now.

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@windyshores

No we are discussing Tymlos, not Prolia. We give Tymlos injections to ourselves daily. The pens have 8 clicks for a full dose and some of us are starting with two and moving up.

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I am starting Tymlos injections in a few weeks. I discussed starting on a lower injection other than '8' clicks to lessen side effects, and to allow my body to slowly get used to the medication. But my Doctor was not familiar with the option of giving injections at a lower dose? I am wondering if anyone has found this 'lower click' injection information on a website, or url anywhere that I can share with my Doctor? Or was the this information something that your Doctor verbally provided as an alternate option to make ajustment to the medication easier for you? Thank you for sharing!

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Evenity can be continued for two years and will continue to benefit bone density according to this report.
https://pubmed.ncbi.nlm.nih.gov/29694685/
The report is based on a study of patients who received Evenity for two years, followed by Prolia after completion of 2 years of Evenity. The report says that bone density continued to increase throughout the the 2 years of Evenity and continued to increase during the following year of treatment with Prolia.

I am posting this specific comment about Evenity because I have had a good experience with the medication. I have also noticed many other posts with positive comments about this medication in terms of low levels of side effects. The standard treatment with Evenity is one year but this offers the possibility of even further benefit.

I would be interested in thoughts of others in regard to this possible treatment.

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@windyshores

I am not taking acid-reducing drugs. These posts need to address someone else. I just corrected a post that said that Pepcid and Zantac are PPI's.

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@windyshores - Perhaps there are some people who confuse Pepcid with Prevacid, which is a PPI …?

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@windyshores

I am not taking acid-reducing drugs. These posts need to address someone else. I just corrected a post that said that Pepcid and Zantac are PPI's.

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Yes, thank you, windy. Who is it you want to address? Go ahead?

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@cheriums

Anyone who's taking an acid reducing med should be concerned.

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No I meant which poster. You keep addressing me. I am not taking acid reducing meds and wanted to make sure you addressed whoever asked the question.

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@windyshores

I am not sure who is concerned about iron/mineral absorption with acid-reducing meds, and hope the person sees your post.

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Anyone who's taking an acid reducing med should be concerned.

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@cheriums

Everyone who takes acid-reducing meds should be concerned about it. Your prescribing doctor should be checking levels any time you need a blood draw.

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What levels, please

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