Treating Osteoporosis: What works for you?

Posted by heritage1955 @heritage1955, Apr 1, 2016

Hi. I'm new to the site and am interested in treating osteoperosis. I'm 39 yo and recently had a bone density that showed I'm at -2.4. So, going through the intial "I can't believe it" stuff. 🙂

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@artscaping

Thanks so very much @rashida. Very helpful.
Chris

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@artscaping - the list doesn’t mention Evenity though, which you have been researching.

Here’s another article on Prolia that a friend sent me..
https://www.rxlist.com/prolia-side-effects-drug-center.htm

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@artscaping - the list doesn’t mention Evenity and the other drug you have been researching, though.

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@callalloo

She's passed on but was living in Californis. Unless you're talking about the osteopenia website, in which the owner lives in New York State and is fun to talk with, pleased to get the phone call and knows a lot. Including what she used when she had breast cancer some years back and the surgeon found no cancer despite a positive biopsy. I hasten to add that there are such things as false positive biopsies, but she said the surgeon said that biopsy was valid. Who knows, right? Pathologists frequently find evidence of cancers that begun and seem to just die off before reaching some critical mass. My mom's professor in med school lectured about examples of what used to be spontaneous healing as an example of how strong the human body if given the right environment.

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@callalloo - I live in Toronto.

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@callalloo

Yep, it is. It has that comparison grid so people can quickly see how the drugs differ. I'm really hoping to never need any of them but am keeping an eye on the choices.

A friend of my parents had to have extensive spine and hip surgery some years back and was in her late 80s. I remember that she had to see several consultants before winning an appeal for insurance coverage for it. But the thing that I remember most is that the surgeons had to first assure themselves that she was still able to grow bone. She was, they dud the surgery, it was successful, and she was walking paim-free after being unable to walk much at all.

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@callalloo the chart does not show Evenity which @artscaping has been researching, though …

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@rashida

@callalloo - Awesome! Where does she live?

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She's passed on but was living in Californis. Unless you're talking about the osteopenia website, in which the owner lives in New York State and is fun to talk with, pleased to get the phone call and knows a lot. Including what she used when she had breast cancer some years back and the surgeon found no cancer despite a positive biopsy. I hasten to add that there are such things as false positive biopsies, but she said the surgeon said that biopsy was valid. Who knows, right? Pathologists frequently find evidence of cancers that begun and seem to just die off before reaching some critical mass. My mom's professor in med school lectured about examples of what used to be spontaneous healing as an example of how strong the human body if given the right environment.

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@callalloo

Yep, it is. It has that comparison grid so people can quickly see how the drugs differ. I'm really hoping to never need any of them but am keeping an eye on the choices.

A friend of my parents had to have extensive spine and hip surgery some years back and was in her late 80s. I remember that she had to see several consultants before winning an appeal for insurance coverage for it. But the thing that I remember most is that the surgeons had to first assure themselves that she was still able to grow bone. She was, they dud the surgery, it was successful, and she was walking paim-free after being unable to walk much at all.

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@callalloo - Awesome! Where does she live?

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Yep, it is. It has that comparison grid so people can quickly see how the drugs differ. I'm really hoping to never need any of them but am keeping an eye on the choices.

A friend of my parents had to have extensive spine and hip surgery some years back and was in her late 80s. I remember that she had to see several consultants before winning an appeal for insurance coverage for it. But the thing that I remember most is that the surgeons had to first assure themselves that she was still able to grow bone. She was, they dud the surgery, it was successful, and she was walking paim-free after being unable to walk much at all.

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Is anyone taking this as a supplement? Is it comparable to the ingredient in Bio-Sil? I would also appreciate info on which, if any, form(s) of strontium people are finding useful in bone health or protection.

I spoke with a woman yesterday who has a non-commercial website on reversing bone loss without pharmaceuticals and insists she reversed hers. She's now 86 and doesn't have osteoporosis so the analytical part of my brain wants to see if I can stop at mild osteopenia.
Or even improve bone. Have any of you done this without drugs? Thanks in advance...

Orthosilicic Acid Accelerates Bone Formation in Human Osteoblast-Like Cells Through the PI3K-Akt-mTOR Pathway
https://pubmed.ncbi.nlm.nih.gov/30421162/

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@artscaping

My dear @rashida, I will admit to you that I am considering stopping Prolia after 1 year which will be up in May. I am having some of the same reactions I had with Boniva and other bisphosphonates even though Prolia is not a bisphosphonate. Both my PCP and I are keeping an eye out for new information. She is researching Evista and I am researching Evenity. I read just last week that Evenity can now be taken for two years. Remember that Evenity does both jobs.......creates new bone and then protects it from being destroyed. If that is true, and we are just guessing, then you could do two years of Evenity ........then another what you call relay drug......then back to Evenity .......etc. etc.

I will see if there is anything more in the literature. If you find something mentioned about that possibility with Evenity, please post me here on Connect. I get so discouraged with the limited options available to those of us who are extremely sensitive to so many of the osteoporosis medications.

Other than that......get ready to enjoy springtime. Let's stay in touch.
May you have peace and contentment.
Chris

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