Treating Osteoporosis: What works for you?

Posted by heritage1955 @heritage1955, Apr 1, 2016

Hi. I'm new to the site and am interested in treating osteoperosis. I'm 39 yo and recently had a bone density that showed I'm at -2.4. So, going through the intial "I can't believe it" stuff. 🙂

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@windyshores

The problem is that my self-administration gadget (Tymlos pen) needs to be followed by something else, at least initially and I do not want Prolia. I am hoping to do Evenity but that needs to be followed by something else too, again, at least initially. My hope is to do natural methods during the expected breaks in Reclast.

Jump to this post

I hope you can too and have confidence that, if there is a path that accomplishes that, you will find it! How much longer can you take Tymlos?

REPLY

The current recommended daily calcium for women is something like 1000 mg/day, higher for women over, I believe, age 70. (In which case the general consensus is 1200 mg/day.) Does the Bone Strength have enough calcium or are you relying on diet for that?

The formula that I take has 1300 mg/calcium from algae but I don't take the recommended 4 capsules a day. I figure 3 is enough and, as I get more calcium from foods, I may cut back more. The reason is that I read a few studies that suggest calcium from supplements might build up in the arteries but calcium from whole foods doesn't seem to. I figure the K2 protects against that, as does my female cardiologist who takes the same supplement, but food sources are still preferred. And a recent echocardiogram showed everything seems fine. (And surprised my PCP as I have high-ish cholesterol and can't tolerate statins. After reading the echo and calcium score results, he stopped lobbying for statins. Doctors know a lot but the human body remains an enigma, lol.)

REPLY
@windyshores

Theraputic dose for strontium is 680mg. That tiny amount is misleading. How much D3 and K2? Calcium is low too but maybe you get it in diet.

Jump to this post

@windyshores I get K2is 120 mg along with D3plus I take an extra D3

REPLY
@lioness

@windyshores Computer problems but can respond now.I take Bone Strength it has 3mg Strontium,3mg Boron calcium 90 mg D3@VitK2 I take 4pills daily 2a.m.,2p.m. my last dexascan was better but Drput me on Relast ,I take this in Dec.

Jump to this post

Theraputic dose for strontium is 680mg. That tiny amount is misleading. How much D3 and K2? Calcium is low too but maybe you get it in diet.

REPLY
@windyshores

Total Bone Support if that is what you are taking has 500mg strontium. The therapeutic dose was 680mg but 500 is a considerable amount, and will make your DEXA scan look like your bones are better than they are. In other words, that amount of strontium throws off your DEXA. Strontium replaces calcium in the bone and is denser by nature, so the DEXA looks denser. Sorry but this is a well-known factor in what looks like improvement.

That said, you may have some improvement from the Reclast and even the strontium: you just cannot tell.

Europe/UK no longer approve the ranelate form of strontium due to clots/cardiovascular risks. Some US companies have stopped making the citrate form.

Jump to this post

@windyshores Computer problems but can respond now.I take Bone Strength it has 3mg Strontium,3mg Boron calcium 90 mg D3@VitK2 I take 4pills daily 2a.m.,2p.m. my last dexascan was better but Drput me on Relast ,I take this in Dec.

REPLY
@callalloo

The GERD thing is a problem, I know. Injections avoid esophageal irritation or worse but there's something about a 6-month dose of something injected into the body that, for me, is a concern. I'm the kind of person who'd rather a little inconvenience and the kind of self-administration gadget that your osteoporosis drug uses.

Jump to this post

Oral bisphosphonates can have (for some patients) side effects that are more than "a little inconvenient." A friend ended up with bad esophagitis which took weeks to resolve after stopping the medication.

REPLY
@callalloo

The GERD thing is a problem, I know. Injections avoid esophageal irritation or worse but there's something about a 6-month dose of something injected into the body that, for me, is a concern. I'm the kind of person who'd rather a little inconvenience and the kind of self-administration gadget that your osteoporosis drug uses.

Jump to this post

The problem is that my self-administration gadget (Tymlos pen) needs to be followed by something else, at least initially and I do not want Prolia. I am hoping to do Evenity but that needs to be followed by something else too, again, at least initially. My hope is to do natural methods during the expected breaks in Reclast.

REPLY
@windyshores

Many people cannot tolerate oral bisphosphonates due to GERD. My doc mentioned doing a low dose of Reclast first, but that is for maintenance not bone growth. I think the dose of Zometa that stage 4 cancer patients get is higher than that for osteoporosis, and most of the osteonecrosis of the jaw happens with those.

Jump to this post

The GERD thing is a problem, I know. Injections avoid esophageal irritation or worse but there's something about a 6-month dose of something injected into the body that, for me, is a concern. I'm the kind of person who'd rather a little inconvenience and the kind of self-administration gadget that your osteoporosis drug uses.

REPLY
@callalloo

I read that the rate of osteonecrosis is higher, and growing, with the injected or infused bisphosphonates and Prolia. The article didn't cite a study or I'd add the link. But conceptually it makes sense in the same way that injected antibiotics hit the body faster than ingested ones. And the fewer injections per year, the greater the chemical/med load per injection. I understand the convenience of getting a big dose of something less frequently but, personally, find the idea a tad alarming unless there is a totally 100% safe readily available antidote to whatever is injected in case of a problem. But that's just me.

Jump to this post

Many people cannot tolerate oral bisphosphonates due to GERD. My doc mentioned doing a low dose of Reclast first, but that is for maintenance not bone growth. I think the dose of Zometa that stage 4 cancer patients get is higher than that for osteoporosis, and most of the osteonecrosis of the jaw happens with those.

REPLY

I read that the rate of osteonecrosis is higher, and growing, with the injected or infused bisphosphonates and Prolia. The article didn't cite a study or I'd add the link. But conceptually it makes sense in the same way that injected antibiotics hit the body faster than ingested ones. And the fewer injections per year, the greater the chemical/med load per injection. I understand the convenience of getting a big dose of something less frequently but, personally, find the idea a tad alarming unless there is a totally 100% safe readily available antidote to whatever is injected in case of a problem. But that's just me.

REPLY
Please sign in or register to post a reply.