1. < Osteoporosis & Bone Health

Treating Osteoporosis: What works for you?

Posted by heritage1955 @heritage1955, Apr 1, 2016

Hi. I'm new to the site and am interested in treating osteoperosis. I'm 39 yo and recently had a bone density that showed I'm at -2.4. So, going through the intial "I can't believe it" stuff. 🙂

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blythe | @blythe | Jun 4, 2016
In reply to @mohavegal "Hello, I'm new to this group. My osteoporosis is not improving and after a dexa scan..." + (show)
@mohavegal

Hello, I'm new to this group. My osteoporosis is not improving and after a dexa scan my doctor wants me to go on a drug. Tried one before and experienced a REALLY bad reaction. It was Ibandronate Sodium. Don't know what "family" it's in. Having horrible pain when lying down.

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I am trying Atelvia delayed release tablets. Been on it for one year and have not had any bad side affects.
Waiting for results on new bone scan to see if numbers stayed the same or better. It is taken after breakfast
with 4and one half ounces cold water. Stay upright for 30 minutes. This is better than others that you take on an empty
stomach and then stay upright for 30 minutes. One of my Doctors has lowered my Calcium, said it might get too
much in my blood and that would be bad. Anyone please comment Thanks

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lesleighjarrett | @lesleighjarrett | Jun 3, 2016
In reply to @angelas "Has anyone received their 1st BMD scan with a low t-score, like -3.1 in the spine,..." + (show)
@angelas

<p>Has anyone received their 1st BMD scan with a low t-score, like -3.1 in the spine, and been prescribed Forteo? I'm 50 and a little freaked out as I thought I doing a baseline BMD scan. I have no underlying conditions that can explain the extremely low score. Family history of estrogen-receptive cancer puts HRT out of the question. I would like to wait a year, increase calcium/vit D/exercise, and get another scan. Thoughts?</p>

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I went that exact route six years ago (-3 ) and now have a compression fracture! I know what you mean about wanting to avoid the meds, but not sure there is a better alternative. You do not want a fracture!! I'm on my 5th month of healing with very limited activity!

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nessiewolfe | @nessiewolfe | Jun 1, 2016

U may want to see if there is any underlining cause for it i was diagnosed at age 19 drs blew me off at 36 was diagnosed with pbc once it was being treated then the rest was easier to treat

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nessiewolfe | @nessiewolfe | Jun 1, 2016
In reply to @jmbjar "@heritage1955. You are very young to have low bone density. Have you had your serum (..." + (show)
@jmbjar

@heritage1955. You are very young to have low bone density. Have you had your serum ( blood ) Calcium checked ? One disease which can cause bone loss at a young age is Hyperparathyroidism , not to be confused with the thyroid.

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Believe it or not i was diagnosed the osteo at age 19 later i had several other drs that blew me off because i was to young to have it finaly at age 36 the cause was found it is caused by having pbc if i had known earlier it could have prevented alot of issues that i have now

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jmbjar | @jmbjar | May 31, 2016

@heritage1955. You are very young to have low bone density. Have you had your serum ( blood ) Calcium checked ? One disease which can cause bone loss at a young age is Hyperparathyroidism , not to be confused with the thyroid.

REPLY
1 reply
susandockter | @susandockter | May 16, 2016
In reply to @nancyevn "I just heard of Prolia a couple days ago when I talked to the doctor. I've..." + (show)
@nancyevn

I just heard of Prolia a couple days ago when I talked to the doctor. I've been taking (chewable) Calcium & Vit. D. I have no concerns about Prolia so far but have yet to read all the materials he gave me. Dental work first is a new thought. The side effects are always scary. Injections twice a year appeals to me over oral meds.

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I had my first injection of Prolia 6 weeks ago and no side effects. I had to increase calcium, vitamin c and vitamin d before I could start and after blood tests am still taking them.

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maryny | @maryny | May 16, 2016
In reply to @jmbjar "Hi Mary I have Primary Hyperparathyroidism. ( Not to be confused with thyroid ) High blood..." + (show)
@jmbjar

Hi Mary

I have Primary Hyperparathyroidism. ( Not to be confused with thyroid ) High blood calcium and low vit d are the /can be the result/indication of this disease, as well as osteoporosis . Did they ever run parathyroid hormone in your lab work ? I would suggested they add pth ( serum parathyroid hormone ) to your June 1st lab work .

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That will be next if the June 1st bloodwork isn't dramatically improved.

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mdsa55 | @mdsa55 | May 14, 2016

Hi. I was 48 wen they told me i had osteoporosis, and gave me EVISTA took it for 1 year and did helped .

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jmbjar | @jmbjar | May 13, 2016

heritage1955 > Osteoporosis at an early age can also be from Hyperparathyroidism . I imagine they did check your serum calcium but have they also checked parathyroid hormone ( not thyroid ) . It is important to have serum calcium and parathyroid hormone labs done at same blood draw .

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jmbjar | @jmbjar | May 13, 2016

Hi Mary

I have Primary Hyperparathyroidism. ( Not to be confused with thyroid ) High blood calcium and low vit d are the /can be the result/indication of this disease, as well as osteoporosis . Did they ever run parathyroid hormone in your lab work ? I would suggested they add pth ( serum parathyroid hormone ) to your June 1st lab work .

REPLY
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