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Hi. I’m new to the site and am interested in treating osteoperosis. I’m 39 yo and recently had a bone density that showed I’m at -2.4. So, going through the intial “I can’t believe it” stuff. 🙂
Thanks for your feedback, Sue. My mother took Prolia and ended up in the hospital with severe low blood calcium. So, I'm reluctant to start that drug. Also, my Endo did say what you have commented, that with Prolia there is no stopping it. Doctor favored Reclast over Prolia because she indicated Reclast stays in the body longer once you stop infusions, thereby being able to take off a year or two. I am very active, exercise, eat super healthy, take additional vitamins, and am otherwise healthy. It's just my bones that are in such poor shape! I'm very frustrated by the fact that women with osteoporosis just don't have better options!
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Hi, Thank you for your message. I am starting with once weekly OsteoStrong, which means once week osteogenic work, an appointment with an integrative MD at Northwestern Medicine in Chicago, and continuing to try to find information about how to treat osteoporosis without the biosphosphonates. I just ended one year of Tymlos, and there have to be other solutions than just jumping on Reclast or an oral bisphonsphates. I would not take Prolia. My mom developed osteonecrosis after five years on Fosamax (early 2000s) and had spinal fracture while she took the Fosamax – so I have not wanted to take the bisphosphonates. I know stress reduction, diet (I also eat a lot of spinach and 5 prunes daily) and weightbearing exercise help. Do you know about AlgaeCal or Dr. Susan Brown of Save Our Bones? https://saveourbones.com/ I wish you well, and will update if I find any promising treatments.
Good evening @kstoller22, Welcome to Connect. I was so glad to see you telling us that you are new on this path. If you are speaking about the world of osteoporosis and all of its options and afflictions, we are all sort of new to this part of the aging process. Remember though that as we keep pushing the aging envelope higher and higher, we run into more and more of our body parts that encounter some roadblocks, and others that just need a lot of help from the food we eat and the exercises we do in hopes that we are doing our best to live a healthy life, rich on the quality side with family, friends, activities, and experiences and attentive on the quantity side to make sure we are doing everything we can to age peacefully and without undue pain and suffering.
As time passes we find that osteoporosis often creeps up and weakens our bones. There are quite a few different strategies to deal with this inadequacy. Some of us are on a natural path. Some of us need help from medications and supportive regimens. What we have been doing for the last few months is trying to get all of us to join together as we encounter different options and choices. It appears that we all will have to make some pretty major decisions. There is no one solution for all. There are medically trained clinicians who will help us learn about osteopenia and then osteoporosis. There are folks on Connect who will share their helpful stories.
What are you considering at this point @kstoller22? Would you be comfortable sharing more of your medical situation and whatever in your life has led you to this point?
May you be safe and protected from inner and outer harm.
@kstoller22 I like what Chris Trout told you. I just thought I would tell you about my arthritis and weaken bones from osteoporosis. I also welcome you. Because of soft bones and osteoporosis, my Dex just showed Osteopenia, but I have osteoporosis. I had to have a surgery because of degeneration of my spine. It was a back fusion from T-10 to my pelvis, a big surgery. The degeneration from osteoporosis had caused a acoliosis, but also had stenosis in L4 and L5 I am in a brace for now and can't bend, twist, or lift anything over 7 pounds. I'm off of all of my pain medicine and doing pretty good. I still have pain, but I can tolerate it or take 2 tylenol and a muscle relaxant. I'm also on Tymlos, an injection with a very small needle into my stomach to increase my bone mass. I have to use it for 2 years and then go on another one, which I think is an injection every 6 months. I had my 9 hour surgery at Mayo at Rochester MN. I had the best surgeon!!! He was a professor of orthopedic and spinal surgery and had 3 other qualifications. I take calcium citrate too.
I am walking short distances several times a day.. The weather here in Iowa does get hot, but it doesn't bother me. Yesterday was great. I wish you the best. Make sure you get a Dex, but they are not always accurate. If in pain a pain doctor is a good start. I had one that just kept on giving me injections and didn't even mention I could have soft bones or needing surgery. Take care and I will be thinking of you. See a good doctor!
It is so helpful to hear from people experiencing osteoporosis and learning about options. My doctor has recommended Zometa infusions. Does anyone have experience with this? I know there are side effects to consider. At this time I am leaning toward getting the infusions. From the reading I have done this option supposedly can result in 70% fewer vertebral fractures and 41% fewer hip fractures. Now to balance tis against the side effects.
Thanks for any help, Denise
Hello- what are the supplement brands you are using to get the MK4 and MK7 and Boron and Magnesium – is it one tablet? Thanks- new to this blog and new on this path.
@lilypaws Hi glad your getting better. Bit k wiyhk4 ,,@7 makes sure calcium doesn't go into your kidneys just into your bones There are a lot of different kinds of Magnesium do you should research which is better to take Boron is a vitamin research this too ,,@parrotqueen. is very knowledgeable I buy from Amazon
@lioness ok what I understand it vitamin K had the Mk 4-@7, which I do not know what that is except for the Vitamin K. And I under stand that Magnesium and Boron is in the vitamin. I know Magnesium gives me diarrha (SP) unless this is a different kind of Magnesium. Can I order it from Amazon? Walked further today, but have to do short walks 2 or 3 times a day. I still get so tired and have some pain the worse pain is on my left side, but it feels better today, but I feel it might have been a muscle and I massaged it last night. Stay safe and Blessings to you. Jeanie
@kstoller22 Good morning I have used and studied but vitams minerals since the 70,s Parrotqueen is very knowledgeable about these naturel meds also .I use Vitacost as they are good quillty But K has the MK 4-@7 in it and make sure it is on the lable Magnesium Malete ,Boron I buy Life Extension brand.They are all seperate pills as Calcium Citrate . Strengthen exercise for your back equally important Plenty of water These are what I use .I was excited to hear those who follow this regimen dexascan should improvement
@parrotqueed Good to hear from you . I,m glad to hear some have had good results on there Dexa ScanThis affirms what you told me and what I will tell my Dr when she starts in on me about those drugs. I'm still on my D3,K 2both mk4 and 7 Boron ,magnesium and calcium of course . I find my bowels bind up but am taking Benefiber 2 times a day and prunes about 4 I eat . Hope your doing well.
In reply to @lioness My doctor was not too helpful other than suggest OTC remedies. I am going to message my endocrinologist. My PCP is going to recheck my calcium in early October as I said I wanted to remain at 800 mg instead of 1200 mg to see if my levels were high enough for my next Prolia injection. My calcium levels have never been low before.
@migizii We all have to do what we think is best I have been following this protocol have 1more year before dexascan am encouraged as to what parrotquee said.
Dear Migzil – I struggle with constipation because of medication. My doctor told me to take Milk of Magnesia every night. It works wonders with absolutely no side effects. You can get it flavored or plain. The one with the least amount of not so great ingredients is called Good Sense. If you can't find it in the stores, it is sold on Amazon for very little money.
If you take calcium, you should also take Vitamin K2 (mk4, mk7). Vitamin K2 ensures the calcium goes to your bones – not to your kidneys (kidney stones) or arteries. You need to take magnesium and vitamin D3 as well. I can only tolerate 400 mg of magnesium. If you get diarrhea, take less. It will also help with constipation. Magnesium is a natural muscle relaxer. I have posted the website about vitamin K2 written by a nutritionist (doctor) before – and here it is again: https://chrismasterjohnphd.com/blog/2016/12/09/the-ultimate-vitamin-k2-resource
This is a short read that will help you understand about vitamin K2.
There is a great group on Facebook that talks about osteoporosis – and there are nutritionists who write on there all the time giving advice. It is called Osteoporosis Natural Remedies. I have learned so much in that group! Many of the people there only do calcium, magnesium, vitamin D3, K2, and boron – and they are getting their DEXA scan scores reversed from osteoporosis to osteopenia. The problem with the bone-building drugs is that they don't really work. They give the impression of bone growth on the DEXA, but the minute you stop taking those drugs, you pee out all old bone that was hanging around making it look like you had bone griowth. That's what those drugs do – they keep the old, dead bone in your body, and it makes it look like you have new bone growth. But the real problem are the side effects. I talked to a couple of women who got osteonecrosis from those drugs. Not only did their jaws disintegrate, it moved to other areas of their bodies. Once it gets started, it is difficult to stop it. If you go on that Facebook group's timeline and ask about it, you will probably be hooked up with someone who has had it. That's how I found out about it. I went on there the night before I was going to start Prolia and several women started talking to me – two of them called me on the phone and talked to me! My guess is that you already know this. You can also ask your dentist about those drugs. Your dentist will likely have a lot to say.
Whatever you do, I wish you good luck. We are all in this together. I can't wait till this pandemic is over so I can get a DEXA scan. I have no immune system and my doctor won't let me do anything that isn't absolutely necessary. Let us know how it goes.
In reply to parrot queen, thanks for all this information! I will definitely check into these supplements even though I chose to take the osteoporosis drugs also…..I think doing everything I can to keep my bones functioning is well worth it. I have had osteoporosis since my late 40’s and have fractured now that I am in my sixties……many of the medicinal interventions did not work, but I have found success with Prolia in spite of things you have heard about and my dentist knows and keeps close care, but all is good. Thanks again and take care. I do follow the Facebook group occasionally too.
@migizii Your PCP can help you a lot of bone drugs you still need to take calcium as the literature suggest the best is calcium citrate for your bones Let me know what your Dr says
@parrotqueen I know what Vitamin K but what is (MK4, K2 & boron. Magnesium gives me diarrhea. I use Miralax and you can get this from Amazon Generic Miralax. I only use part of a capful or else I get diarrha (SP) I might try Magnesium during the day and see if I get diarrha. (SP) I use to be a good speller. Milk of Magnesia is good to so you probably just want to stick to that. Im going to get D2 and Magnesium in the morning instead at bedtime. See if it causes diarrha (SP) again. My husband takes it at night for constipation and it works for him, but he goes several times a day. Blessings to you.
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