Hi I just got diagnosed with breast cancer, any tips?

Posted by kayanonsen @kayanonsen, Sep 23, 2023

my Doctor had a hard time reading biopsy report, because in one area it says ductal carcinoma in situ but also invasive. Anybody else get these contradictory diagnoses?
Kay

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Hi Kay, I was just diagnosed with invasive ductal carcinoma ER positive SP1. I have read it’s possible to have both and you may want to have 2nd opinion if you have doubts. You are in my thoughts and prayers and just know this is an amazing support group and you are not alone. Wishing you all the best!!

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Someone else on this forum had invasive DCIS, which I also thought was contradictory. What did your doctor say?

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Have you talked to the doctor again who gave you the diagnosis? Possibly are you at a cancer hospital? I will tell you sometimes drs do get confused. I originally had Her 2 - when I got my first biopsy results. I had surgery after chemo treatments and my tumor itself was Her 2 +. My nurse practitioner with the medical oncologist was shocked of the change. She had not seen that often. Sometimes odd things happen. No matter what, talk to that doctor or get a 2nd opinion. I have been treated at City of Hope in California, but i follow the May Clinic and MD Anderson in Texas. All of them have research and studies I love to read up on. Once i got breast cancer, I think my world opened up to learning.
kayononsen....please come back and post

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@katgob

Have you talked to the doctor again who gave you the diagnosis? Possibly are you at a cancer hospital? I will tell you sometimes drs do get confused. I originally had Her 2 - when I got my first biopsy results. I had surgery after chemo treatments and my tumor itself was Her 2 +. My nurse practitioner with the medical oncologist was shocked of the change. She had not seen that often. Sometimes odd things happen. No matter what, talk to that doctor or get a 2nd opinion. I have been treated at City of Hope in California, but i follow the May Clinic and MD Anderson in Texas. All of them have research and studies I love to read up on. Once i got breast cancer, I think my world opened up to learning.
kayononsen....please come back and post

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@katgob my biopsy said HER2+ and after surgery pathology was equivocal and then negative at two other hospitals. I finally found yet another opinion from a doc who retested using more cells, which reassured me that I could avoid chemo and treatment for HER2.

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@dp77827

Hi Kay, I was just diagnosed with invasive ductal carcinoma ER positive SP1. I have read it’s possible to have both and you may want to have 2nd opinion if you have doubts. You are in my thoughts and prayers and just know this is an amazing support group and you are not alone. Wishing you all the best!!

Jump to this post

thank you so much. i was so confused about that. My doctor said it also says situ. but how can it be if its also invasive? anyway, i go to oncology on Tuesday for my first appt. My sister is dying of breast cancer; third bout went to lung and brain. she is just being made comfortable now, her 3 sons are with her and her partner and 4 of her siblings, all on the way to be by her side. i have to stay here in California because my son needs me while he recovers from a bad motorcycle accident. it is all so much. i can see how hard my sister's dying is for us, so I will fight to live.
thank you again for reaching out.

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@windyshores

Someone else on this forum had invasive DCIS, which I also thought was contradictory. What did your doctor say?

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she tried to understand the biopsy report but couldn't, it also said "in situ" how can that be so she said she would put an urgent auth in for me to see an oncologist and I am this week.

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@katgob

Have you talked to the doctor again who gave you the diagnosis? Possibly are you at a cancer hospital? I will tell you sometimes drs do get confused. I originally had Her 2 - when I got my first biopsy results. I had surgery after chemo treatments and my tumor itself was Her 2 +. My nurse practitioner with the medical oncologist was shocked of the change. She had not seen that often. Sometimes odd things happen. No matter what, talk to that doctor or get a 2nd opinion. I have been treated at City of Hope in California, but i follow the May Clinic and MD Anderson in Texas. All of them have research and studies I love to read up on. Once i got breast cancer, I think my world opened up to learning.
kayononsen....please come back and post

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I will come back, this is amazingly helpful. I'll know more on Tuesday and will let you all know what oncologist said. I am at home. i found the lump and got a mammogram, ultrasound, MRI and biopsy and very fast.

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@kayanonsen

thank you so much. i was so confused about that. My doctor said it also says situ. but how can it be if its also invasive? anyway, i go to oncology on Tuesday for my first appt. My sister is dying of breast cancer; third bout went to lung and brain. she is just being made comfortable now, her 3 sons are with her and her partner and 4 of her siblings, all on the way to be by her side. i have to stay here in California because my son needs me while he recovers from a bad motorcycle accident. it is all so much. i can see how hard my sister's dying is for us, so I will fight to live.
thank you again for reaching out.

Jump to this post

I am so sorry to hear all you & your family are going through. Right now mine is stage 1, they are verifying insurance, I will go to radiology for a tracker, be set up for surgery where they will also inject dye to check my lymph nodes. Then I will be set up for radiation and take meds for 5 yrs due to ER positive. Just keep fighting as long as you can. I have a daughter & granddaughter, so I also plan to have genetic testing for them. Hopefully that is the right thing to do. I lost my dad to kidney cancer when I was 26, but I try to look at what a wonderful dad I had. It’s hard when you can’t be there like you want to, but hopefully you can call or text your sister. The worst thing about disease is what you see your family or loved ones go through. While it doesn’t take the pain away, it does help to talk to friends & family. My thoughts & prayers are with you, your son, your sister and your families.

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Please take care of you. I am sorry your sister is going through this. Mine did not take my family letter of Brac2, and did not do anything about her ovaries and fallopian tubes. Our younger sister removed hers after finding she had BRCA2. My sister found out 20 months after my diagnosis she has ovarian cancer. She feels beatable. 3 chemo's done, surgery and 3 more chemos. My younger sister and I both want her around and tell her to please follow the drs guidelines. He is an MO. She has always been a google dr. I will pray for calm for your sister and that you can tell her you love her and treasure her as your sister.
Let us know about you as you said.

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I had invasive Dics it stated in my milk duct and went to 2 of my lymph’s. Had lump removed and had reconstructive surgery on the girl to have look the same. My her was borderline so my oncologist had a fish test done to determine what my her2 was it was negative. I was also estrogen positive dominant. So I f do don’t need chemo just surgery and radiation for 6 weeks then on anastolze for the next 5-7 years. By the way. I had all clear margins from 1st surgery. I went to VCU Massey Cancer Center!!!

Sorry you are going through this hard time keep us posted. We are all here praying with you.

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