My daughter has Klippel-Trenaunay Syndrome.

Hi @paulineaustralia, and welcome to Connect. Thanks for reaching out - I applaud you for being such a strong support for your daughter.
I found some information on the types of treatment Mayo Clinic offers for KT Syndrome (http://www.mayoclinic.org/diseases-conditions/klippel-trenaunay/care-at-mayo-clinic/treatment/con-20035785). I understand that it's unlikely you'll be able to travel to the clinic, I hope this link gives you an idea of the methods of treatment available for this condition.
Is your daughter seeing her primary physician? Or have you discussed seeing specialist?

Hi it's Pauline again yes Jessica is seen by Dr Mark Moroney at Ipswich<br />
Hospital Queensland, Orthopedic he says she needs a knee replacement but<br />
she is too young (she is 18 and no where near over weight) I'm concerned if<br />
they do, do this they never have mapped her veins or had a vascular<br />
radiologist of surgeon in with her when operated on. Also she sees Dr John<br />
Coulston vascular radiologist at Royal Womens Hospital Brisbane I think he<br />
worries about doing anything now but especially her foot. She is not over<br />
grown her calf muscle is smaller so I have been told she has muscle wastage<br />
which I do not believe she is mostly in active due to pain. When she isn't<br />
in pain she is over active. The only pain relief the give is panadol and<br />
ibuprofen which does nothing. We would appreciate anything you can do to<br />
help.<br />
Yours Hopefully<br />
Pauline and Jessica Watkinson<br />

Have you tried acupuncture?