Help with swelling/ stiffness after TKR

Posted by lawman @lawman, Oct 12, 2022

I Ann at my wits end, it has been 3 years plus and my left knee is so swollen and stiff not to mention the pain is worse than before it was replaced, had an MUA and a revision all within 4 months! Doctors tell me that the knee is well done, in alignment and not loose. Can anyone direct me in the direction of somebody that can help? I believe it is more of a nerve/ tenons or muscle issue. I live in Florida

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@marcia2023

I had a total knee replacement 11 months ago. I did well in my physical therapy in spite of the feeling of a tight band around my knee, lots of knee clunking and pain.

I was able to achieve great range of motion and my leg is strong, however this knee tightness and joint clunking with pain still persists. My doctor doesn't want to cut on me again to explore what may be going on, and he doesn't want me to have a MARS protocol MRI to look at the soft tissues. He gave me two shots of cortosine and it did absolutely nothing.

I can barely walk 15 minutes before I'm in absolute pain, and I don't know what to do. This is a living hell and is destroying me financially since I'm unable to work.

My surgeon said he would have my back and follow my progress for the next few months, but I just feel that without a plan, I'm stuck. Can anyone make a suggestion of what I might do or questions I might ask, or is it time for a second opinion.

Thank you,

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Marcia2023 great you got range back ….as artscaping said for me mfr saved me after bad tkr ….helped with stiffness , tight it band and thigh pain let’s face it my whole right leg felt stiff….. mfr helped loosen everything up …made it tolerable for me ….if you want to talk anymore about mfr or anything I be more than happy …but I suggest everyone give it a try you have nothing to lose…I do hope you find relief …
I must say my original knee dr told me he would stick by me while he was telling me I was pushing hard enough that it was my migraines you name the excuse he had it why I could not get flexion …. But after my second opinion and learning my knee was twice the size needed that is why I could not bend …. Morale of the story second opinion never hurts …. Can only help you ….sine revision I went from flexion of 65-70 at time of revision to 105 now and still going ….so good luck don’t give up read there is so much different therapies out there you can try ….. I have tried graston, cold and laser therapy, to name a few …,

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@heyjoe415

marcia,

I'm sorry for what you're going through. I've had both knees replaced this year, both using the Mako robotic assistant. It took a while for the swelling to go down, but it's good now. Please keep in mind that it can take a full year to recover from the trauma of TKR.

Have you tried simple, easy stationary biking? It doesn't have to be so hard that you sweat, just pedal at your own pace. I still do this four times a week. And pool therapy, especially walking in a pool, is great. And everyday use ice and elevate your knee above your heart. You can find memory foam products on Amazon to raise your leg while you're lying in bed. (See link below).

It may be a good idea to get a second opinion if your insurance covers that post-op.

All the best,

Joe
https://www.amazon.com/dp/B07KFPQTM8/ref=redir_mobile_desktop?_encoding=UTF8&aaxitk=b54d703e8410dedd005b9c4110c7b684&content-id=amzn1.sym.cf8fc959-74aa-4850-a250-1b1a4e868e60%3Aamzn1.sym.cf8fc959-74aa-4850-a250-1b1a4e868e60&hsa_cr_id=9859292300001&pd_rd_plhdr=t&pd_rd_r=a0d16cd4-2cd3-4488-91e5-f43337de743e&pd_rd_w=c47An&pd_rd_wg=5wdZQ&qid=1666360363&ref_=sbx_be_s_sparkle_mcd_asin_0_title&sr=1-1-9e67e56a-6f64-441f-a281-df67fc737124

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Thank you Joe,
I'm going to follow your suggestions and see what happens. Maybe there are a couple of miracles left, and I am willing to work. I guess I still have another month before I make the one year mark. I appreciate you taking the time to write.

Take care,
Marcia

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@artscaping

Good evening @marcia2023 @ezas123 @sueinmn

Welcome to Connect where you will be in touch with lots of fellow TKR patients. I can tell by your introductory post that you are disappointed with your current post-TKR surgery situation. Everyone prepares for surgery differently and I hope you did plenty of pre-surgery exercises to ensure that the muscles supporting your knee and leg were as strong as possible.

I am wondering: how long ago did you have the cortisone injections? They can take several weeks to reach full effectiveness. I would also like to ask if you had a robotic TKR. That can ensure the best accuracy placement of new materials.

If, in fact, everything went well during pre and post-surgery exercises with your PT then it might be helpful for you to hear from two well-spoken ladies. First, @sueinmn, a fellow mentor, has written one of the best descriptions of how traumatic surgery can be to all of the affected body parts. And secondly, @ezas123 has been the recipient of MFR, myofascial release therapy, which she found helpful post-surgery. MFR was also my personal resource for my second TKR last year. In fact, my introduction to MFR was in response to post-surgery scar tissue removal after my first knee replacement.

May I ask: did you have robotic surgery? That, in itself, can ensure greater surgical accuracy.
And did you use ice and elevation religiously during recovery? Are you using it to help with the pain you are experiencing now?

May you be safe, free, and protected from inner and outer harm.
Chris

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Thank you so much Chris.
I don't know if I had robotic surgery or not. I was just made aware of that procedure recently. That being said I think probably not.

I was doing a lot of walking (which is how I injured it), so I had, and still do have a lot of strength in my legs. At my last checkup the doctor said they were very strong. He was hoping the cortisone shots administered a month ago would help, but they have not.

My initial post surgery recovery period was extremely difficult since I can't take opioid medications. But I did manage, God knows how, to do the in-home and later out-patient physical therapy. And I did well until one day on the bike I heard and felt a huge clunk followed by crippling pain. I only had that happen one other time about 3 weeks post surgery and it scared me to death. I still have a ridiculous amount of popping, clunking and a rolling sensations.

I did, and still do, all the icing and elevation. I will try to learn from sueinmn and ezas123. Not sure who these are, but will try to contact.

I have had some myofascial release on my neck and shoulder several years ago. Now, when I search online I find they are out of the area and extremely expensive for me and not covered by insurance.

May you also be safe, free, and protected from inner and outer harm. I love that you wrote that. I will focus on that. Thank you for your response.

Marcia

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@marcia2023

Thank you Joe,
I'm going to follow your suggestions and see what happens. Maybe there are a couple of miracles left, and I am willing to work. I guess I still have another month before I make the one year mark. I appreciate you taking the time to write.

Take care,
Marcia

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You're welcome Marcia. I know it's frustrating for you, and my suggestions aren't miracles. At this point I hope you can get some relief.

And I've never heard of a Dr. using a cortisone shot on a knee that's been replaced. I'd find another surgeon with a good track record in revision replacement. You may need a revision, and those can be tough, but it's better than the daily pain. Getting rid of the pain is a goal for TKR, not a result.

All the best to you.

Joe

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Hi lawman wondering how you are making out ? We’re you able to get any relief? I know some things are costly I am broke all the time I pay 200 a week out of pocket for therapy …..so I do understand ….how about water therapy most insurance pays for that therapy …. You might find so much easier stretch and do a lot of exercises in the pool ….I go to a place that has certified arthritis pool so it is nice warm pool lol…. Especially now getting cold for us up here in the north ….just little info I read about steroids and injection that they can help for a bit but once they wear of you can have twice as much pain than before you tried the shot or steroid… I know because I experienced this once I tried a steroid I thought it would help me get through my daughters wedding well like I said twice as much pain than before I took it ….. I thought something was wrong so I read that this can happen…..hence did not try again ….but I know some dr. Say fine to take steroids others say it’s not …. We all have to see for ourselves……I hope you find relief

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@artscaping

Good evening @marcia2023 @ezas123 @sueinmn

Welcome to Connect where you will be in touch with lots of fellow TKR patients. I can tell by your introductory post that you are disappointed with your current post-TKR surgery situation. Everyone prepares for surgery differently and I hope you did plenty of pre-surgery exercises to ensure that the muscles supporting your knee and leg were as strong as possible.

I am wondering: how long ago did you have the cortisone injections? They can take several weeks to reach full effectiveness. I would also like to ask if you had a robotic TKR. That can ensure the best accuracy placement of new materials.

If, in fact, everything went well during pre and post-surgery exercises with your PT then it might be helpful for you to hear from two well-spoken ladies. First, @sueinmn, a fellow mentor, has written one of the best descriptions of how traumatic surgery can be to all of the affected body parts. And secondly, @ezas123 has been the recipient of MFR, myofascial release therapy, which she found helpful post-surgery. MFR was also my personal resource for my second TKR last year. In fact, my introduction to MFR was in response to post-surgery scar tissue removal after my first knee replacement.

May I ask: did you have robotic surgery? That, in itself, can ensure greater surgical accuracy.
And did you use ice and elevation religiously during recovery? Are you using it to help with the pain you are experiencing now?

May you be safe, free, and protected from inner and outer harm.
Chris

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I wish I had been told about the exercises before surgery. I read it after it was done online. 12 weeks our now and still in so much pain. Revision TKR from 5 years ago which ever heel. This time it is still worse than before so far. On my 6 week check up I find out the new part goes from almost top of leg to ankle. I was shocked when I seen X-rays. Even the lady that done X-ray could not believe it. She said doctor will explain. Told me for extra support. Still feels like rubber band is around it tight. Burns like fire and so swollen. Told doctor all that all he said was it may take 6 month to a year to heel. I am so upset. Cannot sleep at night or do my daily chores around my house that we were in the middle of remodeling and some of it I had planned on doing myself like painting. Knee doctor told me when I wake up from surgery it would feel like better than before. It did till I got home the first two weeks I didn’t think I could get though it. therapist told me they tell you how much better it will feel while in hospital that they don’t tell you it because of all the drugs they have you on though IV.

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It is painful and you are only 12 weeks out …. I am little over 4 months now I am still having rough patches…. But I know it does get better…..listen to your body take break when you need to….continue your exercises and ice it will get better…. This is my second tkr on same knee within the year and sometimes I feel never ending….. but then I have to remind myself I am only 4 months out …. I am fortunate to have team to get through the rough patches….so hang in there….better days are coming…..I also had problems sleeping after surgery I took olly with melatonin it helped so much … it says on bottle you can take two a night but I only took 1….

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@marcia2023

I had a total knee replacement 11 months ago. I did well in my physical therapy in spite of the feeling of a tight band around my knee, lots of knee clunking and pain.

I was able to achieve great range of motion and my leg is strong, however this knee tightness and joint clunking with pain still persists. My doctor doesn't want to cut on me again to explore what may be going on, and he doesn't want me to have a MARS protocol MRI to look at the soft tissues. He gave me two shots of cortosine and it did absolutely nothing.

I can barely walk 15 minutes before I'm in absolute pain, and I don't know what to do. This is a living hell and is destroying me financially since I'm unable to work.

My surgeon said he would have my back and follow my progress for the next few months, but I just feel that without a plan, I'm stuck. Can anyone make a suggestion of what I might do or questions I might ask, or is it time for a second opinion.

Thank you,

Jump to this post

I just got back on to connect.mayoclinic.org. You may have received other replies by now but I would definitely suggest a second opinion from a highly recommended doctor affiliated with a different hospital. I hope, perhaps, by now your problem has been resolved and you are feeling better.

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In reply to @marcia2023
I just got back on to connect.mayoclinic.org. You may have received other replies by now but I would definitely suggest a second opinion from a highly recommended doctor affiliated with a different hospital. I hope, perhaps, by now your problem has been resolved and you are feeling better.

REPLY
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