Help with MY type of Rhabdomyolysis, PLEASE!

Posted by bhusebye @bhusebye, 8 hours ago

At 8 years old I was electrocuted after being told in a Torrential Rainstorm to go unplug the dryer by my Evil, vindictive, step mother! My finger slipped and touched a 240v lead. It was raining so hard I was now stuck on the cord, i saw blue electricity reflected back from a screenless window in my eyes staring back at me. My vision shank one resolution, then 2 and 3 and 4. I could only see out of my right eye and (i could tell by the way my vision shrank to the right) after the 4th time I knew I was dying and each reduction started coming faster and faster, my insulation was wearing off, the water. So I shook my hands really hard to try to get loose. I could see more of the background under my ever shrinking eyesight window it was the muscle fibers inside my eyeball. 5th time came and went FAST, I put my little arches on the corner of the concrete pad the Washer was on and pushed as hard as I could backwards, 6th and final time as I was pushing backwards, I made sure to see the last thing I saw in my eye, before I popped free.
My mind has always had the ability to slow time artificially so I can take nano second slices so my brain pays attention and allows me to see the unseeable or in an accident find and calculate solution of getting through safely ( had to swerve end up on 2 wheels 3 separate times in a Bronco 2 and I was able to save me and the poor people in the other car with my only warning me by seeing the bottom of red lights, rolled the truck on purpose it was beaded to a Hess Gas station where I slowed time again without a seatbelt and kept me in the truck).
So the last thing I saw that was left of my vision, it was 6 pixels across with 2 pixels underneath the six. And I was finally free! One more split second I would have been blind or dead. I didn't tell that evil b word anything. My life worth less than a dryer coil.
Now i am closer to 60 than 50 and the Rhabdo is making me pay. At 37 I felt the first Pain from it, it was my first day back plumbing and I told the guy there is NO WAY I could ever work for you. I said he sucked and the easiest way to fix these, slop artist work was to make the person doing it, FIX IT! NOT ME, I disagree good for you don't even bother sending me a check.
This all over pain feels like someone beats me up, i weighed about 160 very healthy all but my low back. So 42 comes around that same pain all over feeling has been bothering me for more than a decade and a half. My Rhabdo is Emotional. The all over pain has become worse. If I get too sad or too mad I get the beat up all over feeling like 10 people beat up on me (and they have because I am more handicapped than this. So anyways I had been on Lyrica for YEARS, and it started to make me itch all over uncontrollably. I asked to be taken off of it and my Pain Management crew did not help me, tapering off was haphazard and finally I was free, my Neurologist gave me Lamotrigine which in a few months caused me to itch like crazy as well. I already lost money to crypto and was having a bad bad day. This has happened to me before. I went to the hospital like three times, two of them for Rhabdo pain. All three they only tested my pee and blood to see if my muscles were breaking down into my bloodstream. I have had this body many years and my skin started shedding at 9, my step mother beating me for being a bleep dirty kid. I lost nearly ALL my short term Memory at 16. My Rhabdo if I am mad enough goes into GOD Mode (ai said it, not me). I have had problems with cell osmosis, peeing sooner than others. getting dehydrated faster. So lets say there are three things that happen with MY Rhabdo. 1. Emotion Runs the Show 2 All over pain (I also have Poland Syndrome which twists 2 vertebrae at the bottom of the connected ribcage at night and ZERO muscle Symmetry across my skeleton, tested after working out a year with a Chiropractor that said I could come back every day of my life and NEVER be better. Also have 2 blown disks 3. When I get mad or in an Accident I blow up and end up overly swollen.
Had one head on and my neck swelled up so big the nurse at Henry Ford in Sterling Heights Michigan was pulling on my head while laying on me so she could get my whole neck in the Xray!!! This when you can see proof! My pee will turn color and all that myoglobin and adrenaline causes a huge spike in strength ( Some idiots got mad when I passed them in a no passing 45 mph zone while they were swerving back and forth and I confronted them after 5 miles of being consistently honked at, no one was hurt, they didnt have their seatbelts on, I didnt let that puny guy get out of the car and grabbed the luggage rack slot on their car and grabbed the window frame and I shook them up until she screamed once, whatever her frustration. 4. If I get too upset emotionally other than mad (a feeling of dread and/or sadness and or horror combined, I still get the beat up feeling after without dropping myoglobin or detectable lab traces of it and MANY of my outer layers of skin slough off. And I still get that beat ip feeling. My doctor is combative and does not understand or want to in my opinion. It is NOT Seborrheic Dermatitis! With AI it says it is an emotional response tied to all my skin's physiological protections being gone and I feel that beat up feeling all over. My bedroom looks like a bad dandruff snowstorm. These conditions are so bad I cannot even look at the News or Facebook or Twitter because arguments online can start the pain process with the Country facing this administration. My brain makes me too emotional. They say I have Parkinsons LIKE Syndrome when my Old Neurologist in Michigan Said I had Parkinsons. I was hurt by a pallet jack with bent wheels, I asked Chrysler to get it fixed $165 dollars and I could put the new wheels on for them, they refused, already had taken out one Janitor with it. I was shaking uncontrollably in physical therapy. There was nothing on my DVD but the finding on my Dat Scan CD. I watched it as it as it was being administered on a GE Machine. Making Dopamine in my my Brainstem but my Neurons were NOT picking up the Pez, thats what the dopamine looked like! Please, any help or discussion is welcome.

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