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help with medical issue

Posted by @undiagnosed123 in Brain & Nervous System, Jan 17, 2012

Thank you in advance for reading about my medical issue and hopefully replying back.

The following is the background on my health problems:

At the end of December 2006 I would feel light headed every time I was physically active, the light headed feeling would last 2-3 hours and then the symptoms would go away. Nothing had significantly changed at that time in my life and I had been consistently going to the gym 4-5 times a week. The best way I can describe how I feel is the morning after someone has been out too long during a night and had little to no sleep (a bad analogy but the best I can do). Not dizzy but light headed. This problem has continued and now occurs for no correlated reason (I keep a journal with every time I get light headed). I become extremely light headed sometimes during the day without physical activity and the symptoms can last a couple of hours. The symptoms still intensify with working out at the gym (which I have stopped) or with any physical activities.

There are some days in which I am so light headed that I cannot even drive a car. The only thing I can do when I have a bad episode is lay on the couch until it goes away. This problem has turned my life upside down over the past 4 and half years. I am a 37 year old male.

When this first occurred my doctor had no clue what was happening and tried prescribing a couple of different medications for my problem. I was prescribed lexapro, fludrocortisone, anti-dizzy pills, beta-blockers and sent to several specialists. Nothing has had any positive effect on me so far. So far I have done so many blood tests that I can’t even count them, seen a cardiologist, a hematologist, a neurologist, a urologist and many other specialists. I have done intensive tests and have copies of all the tests that I have taken. I have even seen several psychologist/psychiatrists and every single one says it is real and not in my head.

At this point I am lightheaded every day. For the past 6 months my left hand has been tingling/numb and my face cheeks are numb as well.

If this issue sounds familiar or you have a suggestion, please reply to me. Any help or direction is greatly appreciated!



Tags: mens health, undiagnosed illness, rare disease


Posted by @petere, Jan 18, 2012

Have you had a CT scan? It sounds like that could be something serious. I once several years back experienced a similar lightheadedness. One day as I was going through what I thought was merely a routine dizzy spell, I had a seizure. I'd definitely have a brain imaging scan done and allow the neurologist to determine the cause.

For the record, I am not a doctor and my opinions do not constitute medical advice.

PamEganNP likes this

Posted by @royjaneannhotmailcom, Aug 19, 2012

I am NOT a doctor; I can only empathize. I am lightheaded when I am upright, standing or sitting. It goes away when I lie down or swim in a horizontal position. It feels as if I am drunk.

I was diagnosed, by a neurologist, with Parkinson's; a movement specialist is in the process of diagnosing PSA, a Parkinsonism. I have had a CAT-scan, a DAT scan (which confirmed a lack of dopamine in the "sustancia nigra" of the brain), I will have some other test tomorrow: autonomic system test. I belong to a Parkinson's Support Groupl Afterwards I see the movement specialist; if there is no relief then, I will see a group of doctors, neurologists, specialists in movement disorders, in Dallas or Houston; then if I am not satisfied, I'll go to Mayo in Rochester, Minn. More later.


Posted by @joj85, Jan 21, 2012

I have the sane symptoms... See an endocrinologist and give then your symptoms. Have them check pituitary, adrenal, and thyroid... Also could be deficiency in something like B 12 or D. Always get copies of your labs so you can view them. Doctors I have noticed can overlook things. Good luck.


Posted by @alexsimon, Feb 3, 2012

Hello -
If you are interested in getting a consultation by a Mayo Clinic physician in MN, FL or AZ please click on the "request an appointment" link on the upper right hand corner of your screen.


Posted by @dizzy, Mar 31, 2012

I wish I had the answer, unfortunately all I can give is empathy. I have the exact same symptoms, including numb hands and face cheeks (both mostly on the left side). It's to the point where I notice when I'm NOT dizzy. I'm lightheaded probably 90% of the time. I am so frustrated with doctors telling me, "All your tests are normal." Sometimes I feel I'm not being taken seriously.

I also have an additional symptom which I hope you are spared. For the past week I've had 24/7 ringing in my ears. I'm just about out of my mind. I'm female, 51. Just curious, what do you do for a living? I'm a teacher.

I have yet another visit to my PCP on Wednesday about the ringing. I'm sure he won't have a clue, but I'm getting increasingly desperate. I truly wish you relief, and will certainly let you know if I learn anything beneficial.

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