Help with IBS

Posted by clkurth @clkurth, Dec 7, 2023

My daughter has severe IBS. Intermittent diarrhea and occasional vomiting and stomach cramps. She has been medically evaluated and prescribed an antispasmodic, but this does not seem very helpful. She also has chronic Gerd. Would appreciate any feedback on treatments that might be helpful. She is desperate!

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Has she had a CT scan for MALs ( median arcuate ligament syndrome) also known as Dunbars disease and celiac compression syndrome. Very much underdiagnosed and considered to be a rare condition. The only cure and management is surgery. I have been dealing with this since childhood, 58 now. If I can help just one young person avoid life long suffering by getting the word out and sharing my experience , then it's to the good. Be a strong advocate for your child , be vigilant with research , insist on more scans , hopefully they will start looking outside of the " cookie cutter" diagnosis. Praying for a quick resolution!

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First, my heart goes out to you and your daughter. I understand the frustration, embarrassment, anxiety and distress that you are experiencing. I have the same thing and am no expert, but maybe I can tell you what has worked for me and you may see something that can help your daughter. For GERD, I purchased a 7" high foam wedge from Amazon for sleeping and this has really helped stopped acid, food, etc. from traveling back through my esophagus into my throat. I eat early and less in the evening. I began eating a Mediterranean diet, began walking, and lost weight. This was very hard for me. 🙄 I also saw a dietitian and she gave me a list of foods to avoid to help with GERD and I am fairly serious about not having spicy food, processed foods, caffeine, chocolate, etc. The list is long, but there are many foods that aren't acidic. It has really helped!

IBS is a nightmare. I can't seem to get a handle on what is causing it. I'm about to try FODMAP. Google it. It's a food elimination system to see what's triggering the constipation, diarrhea, bloating, etc. I hope something here helps.

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Thanks much. Your thorough response is greatly appreciated.

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@cowtownusa

Has she had a CT scan for MALs ( median arcuate ligament syndrome) also known as Dunbars disease and celiac compression syndrome. Very much underdiagnosed and considered to be a rare condition. The only cure and management is surgery. I have been dealing with this since childhood, 58 now. If I can help just one young person avoid life long suffering by getting the word out and sharing my experience , then it's to the good. Be a strong advocate for your child , be vigilant with research , insist on more scans , hopefully they will start looking outside of the " cookie cutter" diagnosis. Praying for a quick resolution!

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This is must useful to consider. She has not had this assessment, but I will advocate for it. Thanks!

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@asdf

First, my heart goes out to you and your daughter. I understand the frustration, embarrassment, anxiety and distress that you are experiencing. I have the same thing and am no expert, but maybe I can tell you what has worked for me and you may see something that can help your daughter. For GERD, I purchased a 7" high foam wedge from Amazon for sleeping and this has really helped stopped acid, food, etc. from traveling back through my esophagus into my throat. I eat early and less in the evening. I began eating a Mediterranean diet, began walking, and lost weight. This was very hard for me. 🙄 I also saw a dietitian and she gave me a list of foods to avoid to help with GERD and I am fairly serious about not having spicy food, processed foods, caffeine, chocolate, etc. The list is long, but there are many foods that aren't acidic. It has really helped!

IBS is a nightmare. I can't seem to get a handle on what is causing it. I'm about to try FODMAP. Google it. It's a food elimination system to see what's triggering the constipation, diarrhea, bloating, etc. I hope something here helps.

Jump to this post

I feel like my IBS is under control. I’m following the FODMAP diet, taking the probiotics found in Kefir, Chobani yogurt, and taking 25 mg of Nortriptyline daily. If needed, on occasion, I also take Imodium.

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@seabright2001

I feel like my IBS is under control. I’m following the FODMAP diet, taking the probiotics found in Kefir, Chobani yogurt, and taking 25 mg of Nortriptyline daily. If needed, on occasion, I also take Imodium.

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I appreciate your answer and will investigate your ideas to see if they'll work for me. Fingers crossed!
Thank you!
Mary

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I have suffered through the same thing. I have found Align probiotic to help. I also cut dairy out which was extremely helpful. Stress is another huge factor.

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@asdf

I appreciate your answer and will investigate your ideas to see if they'll work for me. Fingers crossed!
Thank you!
Mary

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Thank you!

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I developed similar symptoms. After taking antibiotics to treat SIBO (small intestine bacterial overgrowth), my GI person has suggested the low FODMAP diet, and restricting dairy. I am finding it very helpful. Hope your daughter gets relief soon.

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@smcg

I developed similar symptoms. After taking antibiotics to treat SIBO (small intestine bacterial overgrowth), my GI person has suggested the low FODMAP diet, and restricting dairy. I am finding it very helpful. Hope your daughter gets relief soon.

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I'm using the FODMAP system of eating right now! It has greatly reduced my bloating, flatulence, diarrhea, and somewhat reduced the constipation. Definitely worth trying!

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