Help pheochromytoma

Posted by lpflash44 @lpflash44, Dec 18, 2024

Hello all. I have been experiencing certain symptoms for four months now. I have been having heavy anxiety, arms tingling, adrenaline rushes weakness, dizziness and light headed. Blood work and 24 urine test are normal but say extremely likely to be a tumor. Nothing shows on ct scan but I think it’s that small they missed it. I’m feeling these symptoms every day and am going nuts. Does anyone have any ideas what to do. I have more blood work tomorrow.

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One thing I can tell you is that a hallmark of this condition is extremely high blood pressure. It can be sporadic, but I'd suggest getting a BP device and check your pressure whenever you feel you have symptoms. The 24hr urine tests are usually very accurate.

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If all tests ate negative, who says it’s likely to be a tumor?

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@lpflash44 what kind of provider are you seeing? In other words, who ordered your bloodwork and urine tests? What does that provider think about your symptoms?

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I was seen by a cardiologist who ordered those test now I’ve seen an endo doctor for the first time yesterday. She ordered more blood work.

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I had a pheochromytoma had it remolved the 24 hour urine test and the blood test sometimes show a false positive my endo doctor told me that .If you do have to have it removed .That was the easiest surgery I ever had in my life I was 70 years old

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