Connect
How to find Clinical Trials for Pancreatic Cancer?
Having applied for a couple of trials and searching for new ones, I now realize I need help navigating these clinical trial options and doing this takes a great amount of time and expertise. I am doing as much as I can on my end, but it is overwhelming and I need more help. I am now having a recurrence and am considered Stage 4 so I am keenly aware that time is of the essence and the windows of opportunity for me to get into any trials are closing rapidly.
I think what I really need is to personally hire a part-time or full-time person to navigate through clinical trials. Do you know someone or have any recommendations on how to find someone (located anywhere), who has the expertise and can take the lead in determining appropriate trials and making direct contact with study coordinators and principal investigators to expedite the determination of my eligibility, the availability of slots, and guide through the process? Would this role be called "clinical coordinator" or something else?
If you have any suggestions about how to find someone I can personally hire to help me, I would be most grateful. StageIVSurvivor, perhaps you know someone or how to find someone?
Beth
Like
Helpful
HugInterested in more discussions like this? Go to the Pancreatic Cancer Support Group.
Connect
@judif, is this the study you're referring to?
- Phase 2 Study of TTX-030 and Chemotherapy With or Without Budigalimab for 1L mPDAC Patients https://clinicaltrials.gov/study/NCT06119217
Has anyone here heard of or has information or is on the TTX Trial Study?
I started a clinical trial at the NIH in Bethesda, MD in early June of this year. The trial is for patients with acinar cell pancreatic cancer and who also have the BRCA2 mutation. The doctors at the NIH have me taking Olaparib, 300mg twice daily. It has had a positive effect on the one remaining tumor on my liver that is visible in a CT scan. If you have acinar cell pancreatic cancer and the BRCA2 mutation, the NIH is still looking for applicants. I have to travel there once a month. I can't speak highly enough of the people there I've interacted with.
-
Like -
Helpful -
Hug
3 ReactionsI am in the 3rd cycle of Trial drugs RM9805 and RM6236. Since July 8 it has moved my CA19-9 to 44 from 250 and shrunk my tumors by 39%
Daily pills, no infusions. Bloodwork is steady. The only side effects are skin breakouts, about 1 hour of nausea and needing to fast for 4 hours!
These are drugs that target the KRAS mutations.
-
Like -
Helpful -
Hug
5 ReactionsWould you kindly post which clinical trial this is? Maybe a link to the website or something. Thanks.
-
Like -
Helpful -
Hug
1 ReactionThank you.I'm going to look at these
-
Like -
Helpful -
Hug
1 ReactionThanks for clarifying, @bceg1969. I expanded the title of your discussion to reflect your question and added it to the Pancreatic Cancer support group too.
You might be interested in these related discussions:
- Help Finding Clinical Trials
https://connect.mayoclinic.org/discussion/help-finding-clinical-trials/
- Clinical Trials: they are not designed only to be a “last resort”
https://connect.mayoclinic.org/discussion/clinical-trials-4/
- Anyone have any experience with clinical trials or immunotherapy?
https://connect.mayoclinic.org/discussion/clinical-trials-3/
See all discussions related to clinical trials and pancreatic cancer here: https://connect.mayoclinic.org/group/pancreatic-cancer/?search=clinical%20trials&index=discussions
-
Like -
Helpful -
Hug
1 ReactionYes.My husband starts one on Monday that his oncologist ,Dr Rubinson At Dana Farber in Boston has said has shown good results
Yes Pancreatic cancer
-
Like -
Helpful -
Hug
4 Reactions@bceg1969, are you looking for clinical trials for pancreatic cancer specifically?
-
Like -
Helpful -
Hug
1 ReactionCLINICAL TRIALSAnyone been on a clinical trial that has helped