Connect
Hello! I am a new member
I am looking for info on new meds for PMR. I have delt with this disease for 15years off and on. I am curious what others say about their dealings, and symptoms with PMR. I believe my daughter who is 51 is starting to have symptoms of PMR but is being treated for Fibromyalgia.
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HugInterested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.
Connect
Look into LDN. It is an alternative to steroids and very mild for most people. Doctors are beginning to prescribe it more for arthritic conditions, including PMR. You can Google this. In the meantime, here's a FB group that is very helpful. The title is pending right now. https://www.facebook.com/groups/108424385861883
My daughter takes LDN as prescribed by her incredible doc at Mt Sinai Hospital in NYC for long covid which had her sidelined. She, thank the Universe, is doing so so much better.
Best to you.
Hello @ksquiltergirl, I would like to add my welcome to Connect along with @glinda47 and others. There are a few other discussions that might be helpful
-- PMR: Are there treatment alternatives to Prednisone?: https://connect.mayoclinic.org/discussion/alternatives-to-prednisone/.
-- Leflunomide, Kevzara for PMR, who knows about them?: https://connect.mayoclinic.org/discussion/leflunomide-kevzara-for-pmr-who-knows-about-them/
-- Kevzara (sarilumab) to treat PMR: https://connect.mayoclinic.org/discussion/kevzara-sarilumab-to-treat-pmr/