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Hearing loss coming and going
So about 2 weeks ago I woke up and felt deaf on my left ear. I had never heard of sudden deafness so I thought it was either 1) allergy due to high levels of pollen, or 2) infection because I had been using the same silicon earplugs for way too long and I figured they could have pushed dirt and bacteria into the ear. I did a post on facebook and was overwhelmed with people telling me to seek help. However the day after it was gone and everything was back to normal.
A week later it came back and then I instantly went to the ER where they said sudden deafness. I got prednisolon which I have been taking now for 6 days. The first day if taking it the feeling of deafness disappeared and the day after the white noise disappeared too. So I was glad it was working. I started the pills on monday. Friday evening the white noise was back, and saturday the deafness and now it's sunday. What can cause it to come and go like this and what should I do next?
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Here is a discussion of sudden hearing loss you may find helpful:
https://connect.mayoclinic.org/discussion/sudden-hearing-loss-options-after-steriods-are-ineffective/
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1 ReactionHi, that is how mine started. I woke up back in July with my ears feeling full like I had been on a plane got progressively worse eventually went bilateral once that second ear started to fail they diagnosed me with AIED. Not saying that’s what you have, but it’s worth looking into. Good luck.
I wasn't sure what AIED was the acronym for. Here it is:
Autoimmune inner ear disease (AIED) is an inflammatory condition of the inner ear. It occurs when the body's immune system attacks cells in the inner ear that are mistaken for a virus or bacteria. AIED is a rare disease occurring in less than one percent of the 28 million Americans with a hearing loss.
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2 ReactionsIt is a crazy disease to be tonight diagnosed with. Ultimately, I may go deaf and need to cook your implants trying to find meds that might remove the information which hopefully will help me from losing my hearing super rare, mostly middle-aged women some people say it’s stress related some people say not. I reached out to Mayo hoping they would have some other information but I’ve yet to hear back. I really appreciate this connect through Mayo though. And volunteers like you and mentors it’s amazing. Thank you so much.
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1 ReactionSorry, I spoke my reply instead of typing it, so I apologize for the typos. That should be cochlear implants and inflammation. I shouldn’t reply this early in the morning but the prednisone wakes me up. Sorry.
Glad we can help however possible.
🙂 We hard of hearing people are used to figuring out things we mishear! ASR sometimes hears the way we do! Your typos made me laugh. I knew you weren't going to 'cook your implants'!
Anyway, sorry you have to deal with AIED. Regardless of this condition being rare, there are people out there who will appreciate that you're sharing information.
Keep us informed as you move forward.