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Heard of HealthTree Cure Hub?
I just had an hour-long online walk thru of the HealthTree Cure Hub website (https://healthtree.org/curehub). I was wondering if anyone is a member here.
This website appears to be a well designed site to manage all of one's healthcare data one wants to share (they support direct import from several cancer centers, including Mayo), our medications, reactions, offers medical information, etc., etc. It's a site that also caters to researchers by providing a source for research surveys. You can also find people that have similar demographics to yourself to limit comparisons tied to reactions/progress/etc.
They said that their largest community at the moment is about 11,000 patients with myeloma. Currently, he reported that they have about 500 CLL patients, and that they are working to add more CLL-centric content.
Anyone else look at this & have any thoughts to share? I was impressed with the features and see a significant upside to participate once their CLL patient numbers grow.
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Did anyone ever respond to you on your question re: HealthTree Cure Hub? I am looking at that site too - I am concerned though that they want me to link my medical records - not too confident about doing that?
Hi @puzzled211,
No replies here. I did hear from others (on another site) about the same data sharing concerns. I haven't joined yet. They just started ramping up support for CLL.
It's an interesting concept to utilize data to find people similar to others. If they had an option to enter data rather than giving them unfettered access I'd be far more inclined to joinpuzzled211 ,
No replies here. I did hear from others (on another site) about the same data sharing concerns. I haven't joined yet. They just started ramping up support for CLL.
It's an interesting concept to utilize data to find people similar to others. Though, we're already in small company! If they had an option to enter data rather than giving them unfettered access I'd be far more inclined to join.