Heard of HealthTree Cure Hub?
I just had an hour-long online walk thru of the HealthTree Cure Hub website (https://healthtree.org/curehub). I was wondering if anyone is a member here.
This website appears to be a well designed site to manage all of one's healthcare data one wants to share (they support direct import from several cancer centers, including Mayo), our medications, reactions, offers medical information, etc., etc. It's a site that also caters to researchers by providing a source for research surveys. You can also find people that have similar demographics to yourself to limit comparisons tied to reactions/progress/etc.
They said that their largest community at the moment is about 11,000 patients with myeloma. Currently, he reported that they have about 500 CLL patients, and that they are working to add more CLL-centric content.
Anyone else look at this & have any thoughts to share? I was impressed with the features and see a significant upside to participate once their CLL patient numbers grow.
Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.