Headache and Migraine Group: Let’s connect

What brand and model do you use? Jim

I would like to bring a correction to my previous post . The Vitamin B12 dose is 1000 mcg three times a week.

I have lived with horrible migraines since the age of 8. I am now 78 and have had the migraines 24/7 for about the last15 years, albeit at a lower intensity. I have tried EVERY possible therapy out there, including ALL the latest CGRP’s. NOTHING worked! I used to live for the2 days a week when I allowed myself 1 Tylenol3 - no more so as not to cause medication overuse headaches. My new family doctor suggested taking Vitamin B (400 mg of B2 daily and 1000mcg of B12 per week). I would say my headaches are 70% gone, and the intensity of the other 30% about a 2. And this happened at most a week after starting this supplement. I no longer take Tylenol 3. To all my fellow migraine sufferers out there, this might be something for you to speak to your doctor about, or just simply try. You cannot take too much Vitamin B as it is hydrosoluble and any excess will be excreted by the kidneys. I hope it works for some of you!

I would like to add to my previous comment that I, too, am on CPAP. I love my CPAP and find sleeping difficult if I’m not wearing it.

I'm 73 years old. I have had migraines for about 13 years, caused by a stress event. My program now is I do Botox every 90 days, I take Vyepti 300 ml every 90 days. I also take Aimovig or Ajovy once a month. I've quit taking Topiramate and Amitriptyline (quitting helped). The first thing I should have done was go to sleep doctor. I have sleep apnea. I tried the CPAP machine, couldn't take it. So, my dentist made up a mouthpiece which is really for snoring, but makes you breathe better, which helped a lot. I no longer wake up with headaches. Now, if I get them, I wear a cold patch on my forehead I buy from Amazon, and take 3 Advil. That seems to have worked for the most part. At least now I can function.

Thank you so much for your reply and information. I am keeping a list of things people suggest for when I see my Doctor again. I am desperate to have some changes in my life to help me! Any other suggestions are greatly appreciated.

My rarely occurring migraines became daily migraines in 2020 following open heart surgery in late 2019. After trying various medications, as well as Botox, my migraines have basically disappeared by using Zonisamide daily. I continue my Botox treatment also.
Also, I am a female in my late 70s.
I hope this will benefit you.

I am a 73 year old retired school teacher. I started with migraine headaches after my son died tragically 15 years ago. They have progressively gotten worse over the years and I have been on different meds,, Botox, shots, and am currently taking Qulipta daily. Nothing seems to work for long. Headaches usually come in the afternoon/evening and are now probably considered cluster headaches as I get them almost daily. Imitrex and a cold pack in a darkened room for a couple of hours usually help. I am miserable and not sure where to turn next. Any suggestions and or help would be greatly appreciated!

Hi, @mablesmith - glad the sumatriptan (Imitrex) finally helped you with your migraines.

You likely have input that could be helpful in these discussions on migraines and auras and on pain:

- Migraine Auras: Do you take any treatment that controls it?
https://connect.mayoclinic.org/discussion/migraine-auras/
- Daily headache pain: How did you get relief?
https://connect.mayoclinic.org/discussion/daily-headache-pain/

I just wrote a long comment that disappeared. I guess it wasn't supposed to be. Just know you are not alone and I now know I am not alone. A lifetime (my parents first consulted a doctor when I was 5) of frequent to near constant to constant headaches has been my life. I just try to ignore them as much as possible, using ice, steam, darkness, and quiet when needed,and acetaminophen as a last resort. I just refuse to stop living my life because headache pain keeps nagging at me.