Headache and Migraine Group: Let’s connect
Welcome to the Headache & Migraine support group on Mayo Clinic Connect.
If you or someone you care about has headaches or migraines, this is a great place to talk with others with similar experiences. It’s a welcoming forum to learn from each other and share stories about challenges, coping strategies, setbacks and what helps.
Take these steps to participate in the group:
- Follow the group.
- Browse topics.
- Use the group search to find answers to your questions.
- Introduce yourself.
Pull up a chair and chat. Why not start by introducing yourself? What is your experience, or your loved one’s experience, living with headache or migraine (i.e., what type, how long since diagnosis, how it’s managed)? Have a question, tip or story to share?
Interested in more discussions like this? Go to the Headache & Migraine Support Group.
Connect

OK, I watched the video and this clearly explains my Neanderthal results. I may try Botox again once I've screwed up my courage. Having just failed Qulipta, I'm still coming down from that
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2 Reactionsthanks, I'll look Dr. Blumenfeld up!
I've been doing Botox for a long time, and it's the best preventative I have. But what I've learned is not all doctors do it the same. I would switch doctors. I did that and got much better results with the second one. There is a doctor named Dr. Andrew Blumendeld who is an expert on Botox. Go on YouTube and he does an actual demonstration on the procedure. Good luck. Jim
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1 ReactionLeft work at the job of my dreams having 18 + migraines per month. Treated then with sumatriptan with success.
, but turned out it was harmful later on. I am receiving Botox since 2017 with much success. I am used to it by now. I find it was hardest the first 2x. It got easier after took a break at beginning of pandemic took a few cycles to get more relief. I hear a crunchy sound in my scalp. I feel like this has been a game changer for me. Local neurologist I found is so supportive. I also get lidocaine nerve blocks and trigger point injections from my neurologist. Medication methods had failed. I use ice and dark room for pain. Tried Emgality injections were super easy for me due to injections of my animals and making IVs at hospital I worked at. Unfortunately adverse effects were too much to bear. Impacted constipation.
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2 ReactionsHello I am new. I reside in the American Southwest. Migraine since age 19. Have diagnosis of intracranial hypertension treated with stent not at Mayo. Wish to travel to Mayo for follow up. A friend recently went to Rochester location and found the care phenomenal for a different brain issue. Having trouble getting followed in my home state. Thank you for this site.
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2 ReactionsThank you very much sir
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2 Reactions@migraineelaine
It took a year before I noticed any relief from the Botox.
But then it only lasted a year, now I’m back to 10 pain but injections are going in my neck now and that helps.
Jody
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5 ReactionsHi, I'm also 75 and a retired professor. I failed so many Rx for my chronic migraine and then tried Botox. Injections (so painful)-- scalp, shoulders, neck, forehead. At the 3 month mark, I had the second round of injections. I'm not even kidding--I looked like a Neanderthal because my forehead dropped so dramatically. Not trying to throw shade on Neanderthals, but that's not the look I'm going for. Anyway, I was still having multiple migraines per month and did not get the injections at the 6 month mark. But I do know that Botox does provide relief for many people. Just not me.
Karen
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3 ReactionsHi, @highlands1946 - my error. It was indeed the wrong link, and I've amended it in my post above.
Here is the right one:
Evidence-Based Guidelines for the Chiropractic Treatment of Adults With Headache https://www.sciencedirect.com/science/article/pii/S0161475411000686
highlands1946, I noted you mentioned some dietary changes that help you with migraine prevention. What other holistic medicine approaches are you considering for migraine prevention or management?
I already like green vegetables, and incorporate them into our daily meals. We’re trying to eat less meat and a more plant- based diet. It’s tempting to get those processed foods to make mealtime easier, but all I have to do is read the label to see how much fat, sodium and other undesirable ingredients are in there. Giving up sugar is a whole other prospect. Getting my husband to take a sugar vacation will be a challenge. He’s in great shape, weighs the same as when he graduated high school, walks or runs every day, and never gets cavities. But does he ever have a sweet tooth. So I will have to take that challenge on my own. Stopping sugar would probably make a lot of things better. Do you have an aversion to sugar after being away from it for a while? What do you do for dessert or a treat? Thanks for the tips! SJD