Headache and Migraine Group: Let’s connect

Posted by Lisa Lucier, Moderator @lisalucier, Feb 27 1:49pm

Welcome to the Headache & Migraine support group on Mayo Clinic Connect.

If you or someone you care about has headaches or migraines, this is a great place to talk with others with similar experiences. It’s a welcoming forum to learn from each other and share stories about challenges, coping strategies, setbacks and what helps.

Take these steps to participate in the group:

Follow the group.
Browse topics.
Use the group search to find answers to your questions.
Introduce yourself.

Pull up a chair and chat. Why not start by introducing yourself? What is your experience, or your loved one’s experience, living with headache or migraine (i.e., what type, how long since diagnosis, how it’s managed)? Have a question, tip or story to share?

Interested in more discussions like this? Go to the Headache & Migraine Support Group.

Jody aka mojo244 | @mojo244 | Jul 18 3:07pm

In reply to @bernieboy "Thanks Jody. Did you go thru this & finally get relief from Botox ?" + (show)

Yes it took a bit over a year, I think my 5th injection is when it started to work.
I only had relief though but I suffer 24/7 and I was a constant 10 pain and it brought me to about a 7 but I would have occasional 10’s.
This lasted for about a year and then zero relief.
She started injecting into my neck and that gave me a 7 for 2 months and 10 the third month. My last injection she didn’t put as much into my neck and I have been pretty much a 10 for the past 2 weeks.
I’m going to ask her to put it all in my neck next time.
But keep in mind that everyone is different, I just happen to be one that isn’t finding better results. I suggested that my dental hygienist try Botox and she found instant relief and is very thankful for it!
Hang in there and fight the good fight
Jody

bernieboy | @bernieboy | Jul 18 2:16pm

In reply to @mojo244 "Botox can take up to a year to start relieving the migraines so hang in there!..." + (show)

Thanks Jody. Did you go thru this & finally get relief from Botox ?

Jody aka mojo244 | @mojo244 | Jul 18 9:07am

In reply to @bernieboy "I have had headaches for over a year & I had Botox twice so far no..." + (show)

Botox can take up to a year to start relieving the migraines so hang in there!
Jody

bernieboy | @bernieboy | Jul 17 2:20pm

In reply to @docb99 "Hello I’m a 75 year old female. Retired professor. Grandma of 3. Mom of 3. I’ve..." + (show)

I have had headaches for over a year & I had Botox twice so far no help.I takeSpironolactone 25 mg. for B.P. Can this be causing my headaches ?

ripfence | @ripfence | Jul 16 7:42am

In reply to @nsandhya "Please let me know if u ever come across a solution to this problem. I had..." + (show)

That sounds like classic cluster headache symptoms. My heart goes out to you.

Vasoconstrictors help me but they have their own set of worrisome issues.

There are a lot of newer preventative medications on the market for migraines that may work and I think at least one that's got an approval for cluster headaches. They didn't help me but they may help you.

One thing I'd suggest is to try to find what if anything triggers your episodes and remove those. These could be food, food additives, medications, alcohol etc. in my case, anything with vasodilation properties can trigger or worsen a headache.

Some people seem to have issue with things that elevate serotonin or histamine. Hopefully you can narrow down your triggers.

I hope you feel better soon

nsandhya | @nsandhya | Jul 15 11:45pm

In reply to @ripfence "I'm a 55 year old male who has had cyclic cluster headaches since the late 80s...." + (show)

Please let me know if u ever come across a solution to this problem. I had a very bad episode recently when I had very bad pain behind my right eye and eyebrow daily for almost 5 hrs and 12 consecutive days in a row.

nsandhya | @nsandhya | Jul 15 11:34pm

In reply to @lisalucier "I'm tagging @danny5 @dlydailyhope @richardfrancine @jenapower @grandmar @benchi300 @nathalietremblay @mercuryrose @gracie2020 @faithann64 @jalo @docb99 @mlpults @joannbar..." + (show)

I'm having migraine headaches since last almost 15 yrs now. However, what surprised me was this constant throbbing pain behind my right eyebrow and eye on a daily basis from 6.30am to around 12noon continuously for 12 days. Cold compress, coffee shots and painkillers helped to some extent but affected my daily work. It stopped after 12 days and am dreading when it will recur

ripfence | @ripfence | Jul 15 8:06am

I'm a 55 year old male who has had cyclic cluster headaches since the late 80s.

Over the past few decades I've tried virtually every medication treatment (both on and off-label) on the market. The only ones that seem to offer relief are abortive vasoconstrictors such as triptains and high dose oxygen.

As I've aged, I've noticed my cycles are shorter but the intensity of the headaches that occur during those cycles are worse.