Headache and Migraine Group: Let’s connect

I think the injections are to:
Anterior Scalene
Posterior Scalene
Middle Scalene
Upper area of the Trapezius
Top ridge of Trapezius

My supplemental insurance doesn’t cover my copay until I reach a large out of pocket maximum. 🤷‍♂️

MOJO

Thanks for your story. Sharing some success is always good for us migrainers. I get Botox too. But, I'm curious where in the neck do they place the injections? Pls let me know. Thanks. Jim
PS: I'm on Medicare as well and have bought Qulipta. While Medicare won't pay it all, I have a supplemental prescription insurance through Blue Shield and that covers the co-pay.

Hello, I believe that I have commented on this group but never introduced myself.
I’m Jody, a 62 year old male, Marine Corps veteran, Deputy Sheriff K-9 handler/trainer veteran and stage IV cancer survivor. Among many post treatment complications chronic migraine is one of them.
I have been battling this migraine for 8 1/2 years and the pain level holds a 7-10 24/7.
Sumatriptan was my go to for 9 days per month but once I reached 60 years old I could no longer be prescribed any Triptans due to the risk of stroke they are known for.
Qulipta and Nurtec have a $400 copay with my Medicare so those are not an option.
I do receive Botox injections but it took approximately a year to signal any relief and then it only worked for approximately a year and then was no value.
However, for my last round of Botox my NP injected the entire dose into my neck. I felt relief within 30 minutes and it lasted 2 months. Now when I say relief I mean from a 10 to a 7 and I can gladly deal with a 7. I’m in my 3rd month and I am in the 9-10 pain range but I’m getting close to my Botox injections. I’m really hoping that the next round will do as good or better than the first neck injections.
I am finding that Bayer Back and Body will take the edge off from a 10 but I only take a couple per day and not every day.
Anyway I’m convinced that my migraine is caused by the damage the radiation has caused to my neck.
As for my cancer, I was in Stage IV base of tongue, throat and lymph nodes. I had too much cancer to consider surgery so I was hit as hard as they could hit me to kill it. So far so good!
I blame the cancer on the contaminated water I was victim to while stationed at Camp Lejuene in the early 80’s. The VA however denied my claim because I never complained about any of my illness while on active duty…keep in mind that was in the 80’s and my diagnosis was 8 1/2 years ago?! Anyway that obviously is a moot subject.
Anyway I’m hoping my experiences can help someone.

MOJO

I assume everyone has tried the CGRP medicines, like Vyepti and Aimovig. They seem to held me as a preventative. My problem is that I can't find a rescue drug that works. Triptans, and Advil don't help at all. Any suggestions?

Comments please

Had new daily persistent headaches for 35 years tried “every thing” to get relief, even the neuro transmitter

Hi, I am 69. I have had migraines from the time I was 4. At 15 the dr gave me what I thought was miracle pill. It worked. I decided to read about it (in the 70's pills would come with a long long paper stating what it is) well come to find out it was barbiturates. I flushed it away. My migraines were bad bed for 7 days no smell, or light and would throw up. As I got older they changed. It wasn't until 2021 that I took the Pfizer covid vaccine, now my migraines are really horrible. I get it for 3 days in a row. this year alone have gone in to get shots cause can't take the pain. Sadly no one knows what causes it and how to prevent it. I journaled for many years, no consistency and no way to put my finger on cause.

Hello, this is my first time here. I used to have terrible migraines that would last 24 hrs. or sometimes 48 hrs. Twelve hrs on one side and then switching to the other side. Food definitely was a factor but each person needs to learn which foods trigger migraines for them. Dr. Speed, at John Hopkins Medical Center had a list of possible triggers. I believe it was on the internet. Zaler

Does anyone have severe dizziness with their headaches?

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