Headache and Migraine Group: Let’s connect
Welcome to the Headache & Migraine support group on Mayo Clinic Connect.
If you or someone you care about has headaches or migraines, this is a great place to talk with others with similar experiences. It’s a welcoming forum to learn from each other and share stories about challenges, coping strategies, setbacks and what helps.
Take these steps to participate in the group:
- Follow the group.
- Browse topics.
- Use the group search to find answers to your questions.
- Introduce yourself.
Pull up a chair and chat. Why not start by introducing yourself? What is your experience, or your loved one’s experience, living with headache or migraine (i.e., what type, how long since diagnosis, how it’s managed)? Have a question, tip or story to share?
Interested in more discussions like this? Go to the Headache & Migraine Support Group.
Connect

I had very bad migraine headaches in the 1970’s. I was in my 30’s and in graduate school. I was on Meprobamate and Tylenol #4 every four hours just to keep the pain away. About once a month I ended up in the Emergency Room for a shot of Demerol because the pain got so bad. The medications took my appetite away. I got down to 110 lbs. I looked like I was dying. I had seen 6 specialists and none of them could really help. My Mom and I had been praying for 2 years but it seemed like God was just ignoring us. Then I got a new doctor who insisted on taking the pain medications away because he said I was addicted to them. I had 3 pain pills left and that was it! I was devastated! I left the doctor’s office and went and bought a big bottle of wine and sat in my car and told God that I would probably become a wino because that was all that helped with the pain except the pills. I cried and prayed really hard. I went home with my 3 pain pills and the wine. I never had another headache! I never took the 3 pain pills that I was so “addicted to.” I finally threw them out. I also didn’t drink the wine until Christmas. God answers prayers but only in his time. So keep praying and don’t give up. I’m 79 and still haven’t had a headache! I’ll say a prayer for all of you who are suffering so badly with these awful migraines. I wish you all the best.
PML
I wear it to work for several hours. I haven't had much luck with ice packs for 20 minutes at a time. I'm not looking for a cure with these, I'm just trying to get some relief to get through the day.
I wonder though, they say, 20 minutes of ice or heat at a time.
Sure. Hope it helps. It has saved me. I can’t quite say that for my doctors.
Thank you
The only thing I can suggest is buying WellMigraine Cool Patches on Amazon. You put them on your forehead, they numb the pain like an ice patch. I then put a baseball cap on, which hides the patch and then I can at least go outside. Without these patches, I couldn't function.
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1 ReactionYes, yes, yes. I have had a daily persistent headache for 5 yrs/9 mos every day/all day. Docs cannot figure it out and it has ruined my life. I spend my days on the couch with ice on my head. I try to exercise in my home in-between couching it. I am so sorry for both of us.
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1 ReactionI am a 61 year old female and have had headaches as far back as about 8- 10 years old not sure of the young age but I do remember little blue pills, little red pills but as of today, not one day as gone by the I have been with out a headache. I wake up with them and go to bed with them, not one day of my life have I not had a headache. Did EEG's a few times, CT Scans and many different types of pills. Currently Klonopin better then nothing at all. They called the Daily Chronic Headaches to Cluster headaches. Anyone else with the same issues and suggestions. I also suffer with Afib so medications as I get older scare me since I had 1 antiphallic shock ( I think I spelled correctly) so new meds make me nervous now. Anyone else with the same headache issues?
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2 ReactionsHi,
I'm 79 and have taken one B12 1000 mcg tablet daily for many years. The brand is Nature Made. They work good and with no side effects that I've noticed.
PML
Ask your doctor for a prescription. Maybe it will be free.