Headache and Migraine Group: Let’s connect

@migraineelaine - will you elaborate on your "looking like a Neanderthal" comment? Are you indicating some kind of disfigurement from the shots?

@bernieboy Botox did not help me and I wound up looking like a Neanderthal--not even kidding

... maybe I should not comment ... I have many different ailments ... but recently am wondering about food intolerance.. no one ever checked me for this and seems doctors dont always think they are helpful... am only wondering if there would be something that we eat almost daily that could cause headaches... perhaps another commenter would know ... J.

@krissyme I started getting Botox every three months about a year ago for headaches. I don't have migraines but the he aches started getting less & less . They help a lot I still get headaches but usually once a day instead of three times a day. .I suggest you try it you have nothing to lose. I had no side affects from the Botox shots. Good luck. Bernie Boy

@lisalucier Yes, I have been to, two neurologist and the first one wouldn’t even prescribe me a medication for them, they were making me come in and get samples and they would only give me three samples at a time. My husband was the one who had to go there and pick up this sample and he was juggling work to get there before they closed the office at five o'clock. The second neurologist prescribed different types of medication and none of them have worked. I know that mine are affected by the barometric pressure, high stress and sometimes it doesn’t seem to be either of those.

@krissyme - welcome to Mayo Clinic Connect. Having headaches since childhood seems like a long time, regardless of your current adult age.

Also, experiencing a headache for a month that affects your depth perception and gives you nausea sounds awful.

You mentioned not having an official diagnosis. Have you been to a neurologist specializing in headache? If not, could you ask your primary care doctor for a referral to one?

Hi there I’m Krissy and I’ve had headaches since I was a child, I couldn’t describe how it looked to my mother and the doctor other than it looked glammory. I was a kid and of course they asked me what did I mean by that and if it was blurry. They couldn’t figure out what I meant and they sent me to the obvious answer and that was the optometrist. I never had a diagnosis and I lived with headaches my whole life. A couple of years ago I started having severe “headaches” that caused me to go to my doctor because it was so bad. She gave me a shot and prescribed sumatriptan which neither one helped. I’ve had MRI’s and tried countless medications to no avail. I’ve had my current one for about a month now and I haven’t gotten it to break even with a shot, which I knew wasn’t going to work but I am desperate because this one has made me have nausea and effected my walking, depth perception, I have even done the Celtic salt I am so desperate.

@lynns21 as for Triptans, my primary physician and migraine specialist both agreed taking me off Triptans when I turned 60 years old, they said it can cause stroke after 60.
My VA provider said he never heard of the caution but didn’t want to over ride the other 2 providers…all I know is that Sumatriptan works but I’m left with no relief due to high copayments of other migraine medications 🤷‍♂️

I have been suffering with chronic headaches and migraines for the last 15 years. I think I have tried most of the options available to me and am currently doing the Emgality shot which make my headaches more controllable but they’re still there almost every afternoon. I just read an article about VNS or vagus nerve stimulation helping chronic headaches and migraines. (AARP newsletter). Has anyone tried this? Apparently it is FDA approved to reduce inflammation. Feedback would be most welcome.

I get Botox every three months for my headaches. It helps a lot for two months . The third month it starts to not help much. I have had no side effects . I recommend yo u try it. Good Luck. Bernie Boy