Headache and Migraine Group: Let’s connect
Welcome to the Headache & Migraine support group on Mayo Clinic Connect.
If you or someone you care about has headaches or migraines, this is a great place to talk with others with similar experiences. It’s a welcoming forum to learn from each other and share stories about challenges, coping strategies, setbacks and what helps.
Take these steps to participate in the group:
- Follow the group.
- Browse topics.
- Use the group search to find answers to your questions.
- Introduce yourself.
Pull up a chair and chat. Why not start by introducing yourself? What is your experience, or your loved one’s experience, living with headache or migraine (i.e., what type, how long since diagnosis, how it’s managed)? Have a question, tip or story to share?
Interested in more discussions like this? Go to the Headache & Migraine Support Group.
Connect

@lynns21 as for Triptans, my primary physician and migraine specialist both agreed taking me off Triptans when I turned 60 years old, they said it can cause stroke after 60.
My VA provider said he never heard of the caution but didn’t want to over ride the other 2 providers…all I know is that Sumatriptan works but I’m left with no relief due to high copayments of other migraine medications 🤷♂️
-
Like -
Helpful -
Hug
1 ReactionI have been suffering with chronic headaches and migraines for the last 15 years. I think I have tried most of the options available to me and am currently doing the Emgality shot which make my headaches more controllable but they’re still there almost every afternoon. I just read an article about VNS or vagus nerve stimulation helping chronic headaches and migraines. (AARP newsletter). Has anyone tried this? Apparently it is FDA approved to reduce inflammation. Feedback would be most welcome.
I get Botox every three months for my headaches. It helps a lot for two months . The third month it starts to not help much. I have had no side effects . I recommend yo u try it. Good Luck. Bernie Boy
-
Like -
Helpful -
Hug
1 Reaction@bradley99
Hi Bradley, have you tried triptans for your headaches? They helped my migraines. When my husband was your age, he had cluster headaches. Worse than migraine. They came on suddenly. He stopped drinking alcohol and other headache triggers. The doctor prescribed inderal (propranolol) and oxygen. The oxygen helped. This went on for several months and just like that they were gone. I hope you get relief.
Vitamin E caused my migraines.
@bangerang512 It is criminal that these vital treatments are so unaffordable. Do you by chance have access to Kaiser Permanente health insurance? I live in California, Have Kaiser and am on Medicare and my treatments cost $15! I wish you the best of luck!!!
-
Like -
Helpful -
Hug
2 Reactions@bangerang512 sorry for your situation. I was placed on disability due to stage IV cancer and also have chronic migraine with pain level 8-10 24/7. There’s no way I could hold a job as my migraine affects my entire life.
Have you applied for disability? You should talk to your care team about disability!
I’ve been receiving Botox for a few years now and it’s no longer helping.
I can’t take Triptans because I’m over 60(63).
Nurtec and others are $400 copay so those are out of the question for me.
I wish you the best!
MOJO
-
Like -
Helpful -
Hug
1 ReactionThank you Bernie boy
@suszy39 thank you
@bernieboy Good news, wonderful to hear positive help.
-
Like -
Helpful -
Hug
2 ReactionsBotox is given every three months. I have been getting Botox for a year and it works. At first I didn't see any change but in the last3 months I have seen my headaches getting less. I use to take Tylenol 3 times a day & how I take it once a day. Don't give up on Botox if it works for me it can work for you. Bernie Boy.
-
Like -
Helpful -
Hug
2 Reactions