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Having My First Lidocaine Infusion
I am seeing a Wash-U Pain Management Doctor that Specialized in Small Fiber Neuropathy (SFN). He has me scheduled for a Lidocaine Infusion on Wednesday, July 2nd. I have severe dull burning pain in my right ear. In January of 2023, I had a Neurologist diagnosed this as SFN with an underlying unknown auto immune disease. No effort has been made to determine the auto immune disease. I am not sure what to expect with the Lidocaine Infusion. Any comments on the Lidocaine Infusion would be greatly appreciated. This Pain Management also had me try Journavx (suzetrigine) new non-opioid. After 2 weeks, the Journavx had no impact on my pain.
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@dstone501957
I have never heard of a lidocaine infusion. I have idiopathic SFN.
Do you mean injection?
Did you have neuropathy bloodwork and a skin punch biopsy to diagnose the SFN? Did your bloodwork show any abnormalities like high glucose/A1C, high/low b vitamins, etc.?
I had a back injury from a car accident in 1998. The pain in my lower back was almost unbearable, I refused to take narcotic medication in spite of the pain. A pain management doctor gave me 7 lidocaine injections in my lower back, it was life-changing. Pain will come back if I overdue it and can last all day, nothing as bad as it was.
I don't know if there's any similarities between injections and the infusions, but it does sound promising. You have my best wishes for a positive outcome.
I also have idiopathic SFN. I did have SYN-ONE skin biopsy, a proprietary skin biopsy done at Wash-U but sent to CND Life Science for analysis. All results were normal. I am having a "lidocaine infusion" AI copilot search can tell everything about it.
ANA positive 1:320
IgG vs FGFR3 7500 Normal Value < 3000
Unrelated, same Pain Doctor prescribed Journavx, the new non-opioid wonder drug. Tried for 2 weeks, no improvement with pain.
How did that help you as lidocaine wears off in a couple of hours?
I'm not sure how it works, it was more complicated than a typical injection. My diagnosis was a pinched or damaged nerve causing pain. The medication was injected near my lower spine under general anesthesia in an attempt to "kill" the nerve. I was scheduled for 8 injections, I had a seizure after the 7th and the doctor decided against giving me the 8th. (The doctor was not aware of my seizure disorder. )
I was told it could relieve my pain for 10 minutes or a lifetime and most people get relief for 2 to 5 years. My pain is no longer constant, it does come back ever so often, never as bad as it once was. It can be caused by doing too much or something as simple as bending the wrong way.