Have you had FODMAP elimination diet success?

Posted by mythmara @mythmara, Apr 30 12:54pm

Going on fifth week of extreme bowel spasms/pain. It started with acute gastritis which took me to the ER. I received supportive IV including anti inflammatory treatment (it helped). A CAT scan ruled out appendix trouble or other obstructions.

Since then the gastritis of abdomen calmed but pains moved down to small intestines/bowels. In general I feel incrementally better day by day but way too slow to give me hope. I stopped drinking coffee, wine and chewing gum. During spasms I gave myself gentle abdominal massage, oh the gurgling I’d hear!

After three weeks the diarrhea came, which I treated with Imodium. Had two additional events of same. A doctor visit sent me away with a stool sample kit to use only if I experience more diarrhea and instructions to deliver it within two hours for testing. That ruled out weekends which naturally was when the next attack occurred.

Like many of us I’ve been reading a lot about the GI system and its quirks. I started a FODMAP elimination diet three days ago.

Has anyone tried the FODMAP? What was your experience?

Thanks in advance.

Interested in more discussions like this? Go to the Digestive Health Support Group.

I have had some success, but not complete resolution of symptoms. However, I have functional dyspepsia, not IBS (what the low FODMAP diet is indicated for). The thing to remember though is that it's meant as a temporary, meaning for a few days and usually no longer than 2 weeks elimination diet to see if symptoms improve, and then you can slowly add back in various categories or foods to see what you can tolerate and by how much. The reason they always recommend to do it with a dietician is because sometimes people feel so good on the full elimination that they don't progress the diet, and that can cause long-term issues.

In my case, limiting foods to strictly resulted in food stress and disordered thoughts about eating (which had literally never happened to me before) which is a known risk for people with GI conditions (understandably). I never thought it would happen to me, until it did. I'm now working with a GI-trained dietician who was able to help me be more strategic and liberalize my diet.

Sorry about your troubles; it is not comfortable and very stressful.

Do you have plans to see a gastroenterologist or your PCP if the wait is too long? They may want to rule out other potential causes first.

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I have been using the "good foods" in that diet along with a low potassium and diabetic diet. I am also taking Lizness for about week now but remain constipated. And so I wait. God bless you. Charles aka brotherchuckles80

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Haven’t tried it yet but having my CKD move into Stage 3 gotta get on it. Good luck.

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I had bad spasms, always running to toilet for IBS-C. Lost 25-30 lbs before I got a handle on it. I needed a really (really) restrictive diet. I got the Monash FODMAP app.

I already knew I was intolerant to grains (wheat, rice, oats, etc.) and lactose. To those limitations, I experimented with the low FODMAP foods at the Monash-recommended quantities. But even rice is low FODMAP...

I ended up making a diet and lifestyle from the Monash "completely green lighted" food items - kabocha squash, green plantain (and its flour), parsnips, mature spinach, radish, green onion tops, collard greens, potatoes, papaya, mung bean sprouts and kiwi. I am sure I left something out.

Open to more questions. Have to go for now.

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I have had IBS-D for over forty years. I have been gluten free for thirteen years and it has helped. I have also known since I was a kid that certain foods really bothered me. I also don't do dairy. I can't eat raw apples but can eat gluten free apple pie and apple sauce. I can't eat watermelon but I can eat cantaloupe I can eat a raw peach but not plums or nectarines. I am also having problems finding a statin that doesn't give me diarrhea. Going on a family vacation next month and am always nervous about that which I think makes everything worse. A lot of eating out. I live in the San Francisco Bay Area and we're going to Savannah GA. I have no idea how I am going to find GF in the deep south. Thank goodness we rented a big house with lots of bathrooms.

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@emo

I have had some success, but not complete resolution of symptoms. However, I have functional dyspepsia, not IBS (what the low FODMAP diet is indicated for). The thing to remember though is that it's meant as a temporary, meaning for a few days and usually no longer than 2 weeks elimination diet to see if symptoms improve, and then you can slowly add back in various categories or foods to see what you can tolerate and by how much. The reason they always recommend to do it with a dietician is because sometimes people feel so good on the full elimination that they don't progress the diet, and that can cause long-term issues.

In my case, limiting foods to strictly resulted in food stress and disordered thoughts about eating (which had literally never happened to me before) which is a known risk for people with GI conditions (understandably). I never thought it would happen to me, until it did. I'm now working with a GI-trained dietician who was able to help me be more strategic and liberalize my diet.

Sorry about your troubles; it is not comfortable and very stressful.

Do you have plans to see a gastroenterologist or your PCP if the wait is too long? They may want to rule out other potential causes first.

Jump to this post

Just received results of stool test, negative for white blood cells which points more strongly to IBS. It was ordered by PCP. Going to complete two weeks of phase one FODMAP, then begin adding back the possible culprits, one by one. A GI specialist would be my next logical move. Thank you for your time and thoughts.

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@researchmaven

I had bad spasms, always running to toilet for IBS-C. Lost 25-30 lbs before I got a handle on it. I needed a really (really) restrictive diet. I got the Monash FODMAP app.

I already knew I was intolerant to grains (wheat, rice, oats, etc.) and lactose. To those limitations, I experimented with the low FODMAP foods at the Monash-recommended quantities. But even rice is low FODMAP...

I ended up making a diet and lifestyle from the Monash "completely green lighted" food items - kabocha squash, green plantain (and its flour), parsnips, mature spinach, radish, green onion tops, collard greens, potatoes, papaya, mung bean sprouts and kiwi. I am sure I left something out.

Open to more questions. Have to go for now.

Jump to this post

Hearing of your success is heartening!

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@gussie

I have had IBS-D for over forty years. I have been gluten free for thirteen years and it has helped. I have also known since I was a kid that certain foods really bothered me. I also don't do dairy. I can't eat raw apples but can eat gluten free apple pie and apple sauce. I can't eat watermelon but I can eat cantaloupe I can eat a raw peach but not plums or nectarines. I am also having problems finding a statin that doesn't give me diarrhea. Going on a family vacation next month and am always nervous about that which I think makes everything worse. A lot of eating out. I live in the San Francisco Bay Area and we're going to Savannah GA. I have no idea how I am going to find GF in the deep south. Thank goodness we rented a big house with lots of bathrooms.

Jump to this post

A sense of humor always a positive! I do crave an away vacation…. (along with my daughter been caring for my 93 year old mom for three years now). That’s the big change in my life which may play a part in my situation. The GI issues are new to me, good to know you’ve arranged a workable life though suffering for so long. Bon Voyage.

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Thank you. I even have an app on my phone called We Can't Wait. It finds bathrooms near where you are in a car while traveling. This is a situation where not only is it uncomfortable it's embarrassing. By the way I'm 82 and still hanging in there

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Hello @mythmara and welcome to Mayo Connect. It looks like many Connect members, @gussie, @researchmaven, @emo and @brotherchuckles80, understand what you are experiencing. That is the great thing about this forum, members can share their experiences. Several years ago, I started a discussion group on this very topic. Here is a link to that discussion, https://connect.mayoclinic.org/discussion/fodmap-eating-plan

I was told to follow the eating plan for one month and then add back in foods to see what might trigger my symptoms. I still keep gluten at a minimum as well as milk products. There are various foods that I avoid because I know they are "triggers" for abdominal discomfort. As you work through the FODMAP plan I would suggest that you keep a food journal, so that when you being to add in various foods, you can be more aware of the triggers that cause discomfort or symptoms.

Here is video about the FODMAP eating plan and the presenter is a Mayo Clinic Registered Dietician.

I would like to hear how you are doing. Will you keep in touch and let me know how the FODMAP eating plan is working for you?

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