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Have you got Primary Progressive Apraxia of Speech? Let's connect
Are you living with Primary Progressive Apraxia of Speech? Sometimes it's called progressive apraxia of speech or PPAOS. It reflects difficulty with speaking quickly and accurately. It may start with a simple word you can’t pronounce. Your tongue and lips stumble, and gibberish comes out. It can sometimes occur by itself (speech is the only problem) or develop into other neurologic syndromes like corticobasal syndrome or progressive supranuclear palsy.
On Connect we would like to bring together people who have been affected by PPAOS and provide a space to share your experiences and provide tips for managing it. Patients and family members are welcome.
Grab a cup of tea, or beverage of your choice, and let's connect. Why not start by introducing yourself?
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@larry68, how did the appointments go?
Thank you, Colleen. Bill was diagnosed with. MCI in 2020 at Banner Alzheimers Institute. His apraxia diagnosis came from his speech pathologist just this year.
Peggy Pierce
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1 ReactionNot a lot yet.I got a ultrasound of my legs today.Tomorrow i get a EEG and then next week a MRI. .I have had vertigo to go along with everything else.Still have days where i can't hardly get a word out.Maybe after EEG and MRI they will figure it out.
Hi @peggypierce, denial with mild cognitive impairment is common. I think you may appreciate the blog posts written by the directors of the Mild Cognitive Impairment program called HABIT at Mayo Clinic. See:
- Living with Mild Cognitive Impairment https://connect.mayoclinic.org/blog/living-with-mild-cognitive-impairment-mci/
Your situation reminded my of this post written by @drmelaniechandler
- Is it Denial or Something Else? https://connect.mayoclinic.org/blog/living-with-mild-cognitive-impairment-mci/newsfeed-post/is-it-denial-or-something-else/
I agree with @aoibhin. This is a lot to absorb and to deal with. Who on his medical team has told him about his diagnosis of MCI and apraxia? Have you been able to get support?
Hi @larry68, what did you learn at your recent appointment? How are you doing?
As a matter of fact i am going to a new Dr. wednesday
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1 ReactionMy first neurologist said nothing wrong with my brain. Then the second neurologist opened my MRIs both them clearly showed I frontal atrophy. I am a doctor, but dead brain cells are not normal. Can you get another neurologist?
It is a a lot to handle
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1 ReactionI have not been diagnosed yet but i am sure i will before long.This is exactly what i got but not all the time.It just happens sometimes.I have been to neurologist,xrayed and cat scanned to tell me i am good except some dead brain cells on left side.Its aggravating when i know what i want to say but can't get it out.
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1 ReactionI sorry that you are having to deal with this and his diagnosis. It is a lot to absorb. Who has told him? Neurologists are not the best messenger. Are you getting support?.
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1 ReactionMy husband has been diagnosed with apraxia but doesn't want to admit it or perhaps doesn't understand it. He has MCI which he is refusing to address too.
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