Has anyone with Parathyroid Gland issues taken Tymlos or Forteo?

Posted by ripley @ripley, Jun 6 12:50pm

I have severe osteoporosis, with -3.9 at my lumbar spine and -3.0 at femoral neck. I see a new endocrinologist tomorrow to discuss medication options. Several on this site said bone builders, like Tymlos or Forteo, would be a good start before bisphosphonates. My concern is that, in the past, my parathyroid levels were slightly high or on the high end of normal. Then, I had surgery six months ago that left me with only one parathyroid gland and no thyroid gland. Now my PTH blood levels have stabilized, probably because I only have one gland left now. I am worried that bone building drugs that are synthetic versions of parathyroid hormone might damage the one parathyroid gland I have left. I will ask the Dr about this, but wondered if anyone with parathyroid gland issues has taken Tymlos or Forteo with no negative effect to their parathyroid glands? Also, my I blood calcium levels are at the high end of normal, so this would have to be monitored closely if I took one of these drugs.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

My thyroid was removed in 1996 along with three parathyroid glands, leaving my just one. The remaining gland began to fail a few years ago. I am taking Forteo now, and hopefully will be able to take it for three years, ending in July 2025. After that I will be taking Fosomax and Calcitronin. I am concerned about taking Calcitronin and kidney stones. I am 77 years old, osteoporosis -3.1 in hip flexors, and a bit worried about living with a failing parathyroid gland.

REPLY
@janflute

My thyroid was removed in 1996 along with three parathyroid glands, leaving my just one. The remaining gland began to fail a few years ago. I am taking Forteo now, and hopefully will be able to take it for three years, ending in July 2025. After that I will be taking Fosomax and Calcitronin. I am concerned about taking Calcitronin and kidney stones. I am 77 years old, osteoporosis -3.1 in hip flexors, and a bit worried about living with a failing parathyroid gland.

Jump to this post

How do you know your parathyroid gland is failing. Did you Dr discuss options for what to do if no longer works like it should?

REPLY

Blood tests. No options discussed yet.

REPLY
Please sign in or register to post a reply.