Has anyone tried Vyvgart for CIDP?

I think there’s specific guidance with respect to this new treatment and whether it would be helpful as an option for CIDP. I’m not aware that this is something you’d just try. I’d like to see medical professional guidance on this or from the GBS CIDP FI medical advisory board.

What is GBS CIDP FI?
B MILLS MSN

Of course one would consult a specialist, but in my experience they want and expect my input and consent. This person is just seeking data from people that may have experience with this drug. Everyone is different we know. That does not mean you can't or do not want to hear of other's experience.

GBS Guillane-Barre Syndrome.
CIDP - Is Chronic Inflamatory Demylenating Polyneuropathy.

I made a post about it months ago after my neurologist brought it up to me. It is recently FDA approved. It has jumped thru all the hoops. My neurologist brought it up to me recently as an alternative to the Hizentra SCIG I have been on weekly for 3 years. I have not “tried” the new Vyvgart as yet as I am waiting to hear from others experiences.
The FDA approval:
https://www.fda.gov/drugs/news-events-human-drugs/fda-approves-treatment-chronic-inflammatory-demyelinating-polyneuropathy-cidp-adults

https://www.gbs-cidp.org/

Please keep us posted if you hear from others who have tried it

It’s an international support org for people with GBS or CIDP. Google them. Many helpful resources.

Yes I have now for 7months been taking Vyvgart. Before this I was taking IVIG for 1 1/2 years that last about 6-8 hours. Can’t tell if either of them have been contributing to my health.

I have three friends on Vyvgart and they all RAVE about the results