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Has anyone tried ibrutinib for DADS anti- MAG?

Posted by lloucass @lloucass, Jun 10 10:23pm

IVIg and Rituximab were f little to no help, Ibrutinib suggested as last resort in long standing case of DADS anti-mag. Has anyone tried this drug?

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lloucass | @lloucass | Jun 11 10:42am

Thanks, I’m consulting with both. They have been treating me for several years.

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Becky, Volunteer Mentor | @becsbuddy | Jun 11 11:04pm

@lloucass Welcome to Mayo Clinic Connect ! We’re glad that you’re here. But, let me ask, how did you find Connect?

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lloucass | @lloucass | Jun 25 7:50pm
In reply to @lloucass "Thanks, I’m consulting with both. They have been treating me for several years." + (show)
@lloucass

Thanks, I’m consulting with both. They have been treating me for several years.

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Pre approval denied, drug not Medicare approved for use in my condition even on or off label.

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